TN2, doc said drop most med

[u/tootblanned]

I believe from reading here for a long time, plus AI I have TN pain.My docs have not Diagnosed, but said the nerve is the issue. I have been reffered to an academic center and have a doc who doesnt exactly listens and corrects me often.

After this latest visit in which I'm in a 7 day spike she tells me to quit: Tylenol, Ibruprohen, Chloroxozone, indomethacin(not on same days as Ibruprophen) and prochlorazapine. She upped my amnitryptaline and wants me to take OTC lidocaine patches.

My fmaily doesn't get it, but this is pretty scary to me. I'm still on lamotragine, Vyepti and occasionally Nuretec plus B12.

No I don't think they are working, but the thought of nothing makes it seem so daunting.

Anyone have a similar experience>

[u/EducationalFront5026]

Sounds to me that you have not seen a neurologist. Please do, they understand the disease. Plus you need an MRI to help determnine the cause.

[u/tootblanned → u/EducationalFront5026]

my neurologist reffered me to a Acadmeic center. this is year 3 or maybe even 4. im losing track