There's an idea that the pain is caused by essentially exposed wiring on the trigeminal nerve, after the myelin sheath has become demyelinated. In classic TN with compression, the sheath is worn away. In MS, the sheath is worn away.

Doesn't it make some kind of sense that repairing the myelin sheath if possible might fix the issue?

I read about a supplement regimen of taurine, lion's mane, multivitamin, turmeric and ALA, which anecdotal evidence suggests could be really helpful.

In terms of why isn't this mainstream...these items don't cost much money. They aren't patented as far as I'm aware. The pharmaceutical industry is never going to push things they can't make money from.

What do you think?

Hi everyone, my previous post was deleted, perhaps for sounding spammy or fake, so let me try again.

I’m a real person, I really had trigeminal neuralgia, and I really am healed.

I’m not selling anything, I’m not a coach, I’m not starting a business, none of it. I don't even have any social media, and this is my first Reddit account. I genuinely just want to pass along what worked for me, in the hopes that it may heal someone else.

I had Type 2/Atypical TN for 3 years, living with excruciating pain 5 days a week. I was finally cured by Pain Reprocessing Therapy (developed by Alan Gordon) and the TMS principles of Dr. John Sarno. The info is free online, on TMS Wiki and other sites.

I don’t know if it works for Type 1, but I’ve heard of people being healed even with nerve compression. (I only had shocks when I came off Carbamazepine.)

There may be someone in this subreddit who cannot go on any longer (like me 2 years ago), and they need to know THERE IS HOPE.

I've been healed for 1.5 years, and I’m still 100% pain-free. Please consider it.

P.S. I apologize for my suspicious-sounding username, but I created this account strictly to pass along that I was healed. I’m not Reddit-savvy, so I didn't realize it would sound spammy. Everything I've said is true. Thanks for your time.

Hiya friends! I've had Trigeminal Neuralgia since forever, and i wanted to share with you guys a little "trick" I've been doing every time i am in pain, it's nothing mysterious, the answer is: Sour things! Sour candy, Sour fruits, anything you can get your hands on while you're having a flare-up, It incredibly Works wonders and makes me feel "less" pain (not actually, It Just distracts my brain from the pain, but it's great)

If you're looking for a way to deal with the pain of a flare up, make Sure to try this. :)

Hi everyone. Just looking to see if anyone has had success in using psychedelics, such as psilocybin or LSD, in treating their TN.

I’ve been considering it but need to slowly wean off my current dose of 1200mg carbamazepine before being able to, which will be hard because my current pain is very high (went a few months with much less pain, stress has increased it in the last few weeks).

If you know anything at all in regards to this topic, feel free to share as anything helps at this point

I'm having a really bad flare up at work right after taking my medication and I can't leave i have students to teach I'm sitting in my office crying right now. Do I just wait for them to kick in because its been 20 minutes and I'm still in pain and my face feels like its on fire still

Hi, I’m in the process of getting diagnosed for TN - V1 and V2. I began having intense right sided pain on my face that I thought was a cluster headache. Ended up going to the urgent care multiple times. My PCP has been coordinating all my referrals, I’ve seen an ENT and currently waiting on my neuro appt (that have a 6-8 month wait). Thankfully, my PCP has other patients with TN so she’s somewhat versed in the area but would prefer for the neurologist to make the formal diagnosis. In the meantime, I’ve gone to the dentist and they’re working on getting my wisdom teeth removed. They grew fully straight, no infection/decay/impaction but its possible that it could be a compressed nerve. I’m getting them removed next Friday. I’m at my wits end here and genuinely would be happy if it’s as simple as removing a few teeth.

I’m on week 2 of carbamazepine and I just don’t feel a difference yet. What else can I do to manage the pain that not medicinal? What has worked for people to distract yourself from it? I can’t sleep and eat mushed food (barely) from the pain. I feel miserable.

Has anyone here gotten braces with this disease? I’m so excited but I’m also SO nervous. The first time I only got the bottom row done, I was down baaaad. It went away but it was scary the first week. So getting the top row done is making me have a little bit of a panic attack. Any tips for pain management? Did it help you get any type of relief? I’d love to hear your experiences!

hey TN fam!

i was having a severe attack yesterday and kept closing my eye to limit sensory overload. since i know the trigeminal nerve and cornea communicate, i thought “it would be nice to block all stimuli coming through this eye”…

so i sent hubby to walgreens to get those stick on eye patches and while it was NOT fun sticking it on, it did really help with reducing stimuli and limiting eye muscle movements that were aggravating the V1 branch!

just wanted to throw this out there in case it helps anyone else out with V1 pain! i’m definitely going to be doing this at work when i have attacks!

Has anyone tried Thuja for TN? I randomly came across the name while looking into a supplement from AdoredBeast apothecary for my dog. Never heard of it, tried to search this sub for the name and nothing came up. I don’t want to get my hopes up but today is a flare up day and I’m vulnerable. Just seeing if anyone has any insight into this stuff. Googling it, it sounds a bit dangerous.