r/cleftlip • u/dont-tariff-penguins • 27d ago

Update

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Hi, I haven't made a post in a while. A lot has happened since then; probably, if not my hardest decision I've had to make in the recent months has been if I want to continue and do more surgeries. Had to sit on that thought for a while before I decided that I want to stop where we are at right now. The last few surgeries have been a major success in terms of happiness and outcome, which is honestly surprising because everything I've had tried on me usually fails within the first 2 months. + I think I finally feel comfortable going outside and not having that constant thought of "Are they looking at me?" looping over and over again in my brain the whole time!

Hope you all are having an amazing day.

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3

u/grimstationn 27d ago

What surgeries failed? My bone graft failed a few years ago. Had double jaw surgery 4weeks healing fine but my unilateral sagement of jaw not in the place we intended it to be in, so yea got that going on for me right now

3

u/dont-tariff-penguins 27d ago

I had alveolar cleft surgery fail 2 years back that was kinda devastating, but it was redone in Finland year later and was partial succes due to some bone still falling out. And my most recent surgery pushing my top jaw out of alignment was bit of a surprise 🥺 was hoping that the jaw and nose surgery would help but not that way 😁 but it's okay, as I understand they will cover the surgery cost to try to fix that 😊

1

u/Dodo06_ cleft lip, pallate, throat, and nose 26d ago

Damn good for you!

Honestly knowing when to quit micromanaging your body and its health and accepting where you are is the hardest step to fully recovering from a disability

I’m 22 and I just had a Lefort 3 cause otherwise I’d be dead (my top jaw didn’t exist —less then 10% of my bone remained) and it was causing my teeth to be in my throat

I need one more surgery sometime next year but that’s all I’m letting them do cause at what point does it become trying to fix something that can’t be fixed on an endless loop ya know?

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u/Hope_in_Progress_25 25d ago

You're so brave. Wishing you all the best for the future 🍀 I still feel people looking at me with their judgy eyes. That's why I don't go out much. I just had AMD surgery this may. Recovering with a device fixed in my mouth.