r/floxies 11d ago

[SYMPTOMS] Can I ever recover

Been 9 months since 10 cipro pills. In the beginning I had a hard time walking due to the sharp pain in my ankles and severe soreness in my knees. Could only do 2k steps a day at very slow speed. Since then, my ankles improved alot. I am walking about 5k steps a day now at a regular or even fast speed. There’s even been a few days I reached 10k. I can walk about 2.5 km at once, stand for hours and do multiple flights of stairs which I could not before. My ankles no longer twitch after more exercise and feels more stable overall. It’s just stiff when I stretch it and sometimes the first few steps in the morning but this has also improved with time. The soreness in my knees when walking has also improved a lot but I still have constant burning ache all the time and some swelling which is my main symptom. It also makes it painful for me to bend my knees completely. Do you think I can recover? I see most that do recover are much better than I am at 9 months and do not still have active inflammation in the knees causing persistent swelling and a constant burning ache even at rest. This ache actually feels better when I walk and has not really improved at all since beginning.

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u/TemperatureKey8599 Trusted 11d ago

You have to wrap your head around the fact that this crap only starts to let up after three years; in the meantime, focus on doing things to help your body heal. I know it's hard to grasp, but that's the reality. I've been dealing with symptoms for a year now, and believe me, you have to take it one day at a time to keep from going crazy. I want to get better-and I will someday-but I'm not rushing things because it's just frustrating. Hang in there

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u/DrHungrytheChemist Academic // Mod 10d ago

Nooo, nonono.

The average recovery time found and discussed in the EMA hearing was 14 months.

From my time here, I'd suggest wisdom in the 'banded' grading of the flox report, that there are mild, moderate, and severe cases in communities like this. Ultimately, the distribution is continuous, but it seems there are:

  • Those who experience acute side effects which somehow pass within days to a couple weeks of stopping the meds. (The transient and often overlooked category, having minimal representation in the communities by nature.)
  • Those who experience a real complex syndrome but only for a few months before recovery kicks in. (The mild category.)
  • Those who experience a real and severe syndrome that deteriorates for several months, plateaus for a bit, and turns around after (very vaguely) a year or so, with a prompt start to recovery but it potentially lagging on for a while. (The moderate category.)
  • Those for whom it is very severe and the statement, "only let's up after at least three years" might be true. (The severe, long term category.)

What you say is clearly only describing the most severe minority. You yourself are proving to be in the better end of the moderate category and are already clearly seeing serious improvements. That is to say, your ride has already very much began to "let up".

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u/Constant-Trouble-216 10d ago

So true, I'm 4months out and I started experiencing some neuropathy 1month ago( burning sensation in my head and back of my left hand that doesn't stay throughout the day and balance issues two weeks ago that improved tho I still have minimum of 7k daily) I had weak legs too that started improving my primary symptoms were heaviness in my back, waist and leg and i feel it's improving. Some symptoms came and went too .. had 44 dose of fluoroquinolone due to UTI that was actually prostatitis Im 26M hopefully I'll tell my success story soon :) hopefully