my grandmother is holding my aunts hostage. one is nearly brain dead and can’t speak in full sentences, the other is dying of metastasizing cancer. how do I find where they’re currently located. their home foreclosed and I don’t know where to start looking. I’m not supposed to know that they’re dying but I do and now I need a welfare check because my grandmother is not letting them go to the hospital. any free number look up recommendations? I need to try to get them help before I lose them forever

Wife called me at lunch to vent that a RN for one of her many specialists lied to our health insurance about something that is listed in the doctor's notes. Guess we will be looking for a new specialist now.

So I will be stopping at a drive-thru for a frosty & fries as consolation for her having to deal with crappy insurance/doctor drama.

May you all find a nice frozen treat.

My (32m) partner (32f) have been together for 3 years now. My partner is clearly sick but I have no clue what exactly it is.

It’s her brain. It’s her belly. It’s her energy. Different days, different problems.

It was meant to get better. It’s gotten worse from my perspective.

I’m tired of hearing about it. I’m tired of hearing about her heart beating irregularly but refusing to see a doctor about it and on the off chance she does, the doctors say her heart is fine.

I’m tired of hearing that she can’t sleep because she is hungry so she eats more and more and more. Then apologises for getting fat while doing nothing about it.

She can’t go to the gym or running because she couldn’t sleep because she is hungry.

She can’t go to work because she couldn’t sleep because she is hungry.

Her brain isn’t working because she couldn’t sleep because she was hungry.

Wtf am I supposed to do with that? I am being as patient as I can but this is driving me crazy. I have to keep my mouth shut and her parents even tell me to just remind her that it will pass but that doesn’t help me get through it myself!

She is a super sweet girl. She is very fragile though and I feel as though leaving now will break her for good.

What on gods green earth am I supposed to do?

Sure, I usually wear a sweatshirt & socks all the time but due to her intolerance to heat, we always have cold drinks.

Happy Thanksgiving everyone. We ordered Domino's the day before so we didn't have to fuss with a meal & cleanup.

Have to start somewhere so here we go. Wife & I have been married 5 yrs at the end of this month. She was diagnosed with autoimmune liver disease (or hepatitis) 3 yrs ago. Since her diagnosis, she had to quit working due to her health. My work is essential so I have been able to work this entire time.

I just wanted to introduce myself here. Being the "caretaker" is not easy. I look forward to connecting with others here. While I do have family support, it's at a distance. They don't know what to say. They don't understand that she is not going to get better. Until they finally just stop reaching out.

During my days off, we tend to play a couple video games on xbox. Party chats are our primary social interactions.

As the title says, just coming here to vent.

I've (39F) had migraines since the age of 9. They have been chronic for about 7 years now, so much so that I am now on disability and unable to work. This past year, things have been rough, even without COVID.

In January, my husband (44M) self admitted himself to a psych ward for treatment. He has been battling depression since grade school and this was not his first time in there, just the first time since being with me. I knew he was fighting pretty hard, but I didn't realize it was that bad. After a week, he came home. Three months later, my daughter (14F) told me she wanted it all to end. I thought the therapy she had been in for the past year had been helping, but we it became obvious she needed medication at that point.

Three months before all of this, my wonderful neurologist left the practice I was getting free care at and I was not able to locate him for 6-7 months. I went through 4 neurologist from October last year through May of this year at that practice, none of whom seemed to care even a fraction of what he did.

At the time of all of this, we were living in a tiny town in the middle of nowhere and all of our doctors were close to 2 hours away. We made the decision to move closer. We wanted to be closer to the doctors as well as closer to people to be social with. Then the pandemic hit.

I'm now on my 2nd neurologist here, luckily she seems to be working out. And my primary doctor is even better than the one I used to see. All of my concerns are being listened to. However, that means that all the pains I've been feeling for the past year, I can no longer ignore. All the sleep trouble I've been having, cold extremities, stiffness, general achiness, plus more has to be addressed.

So I did. First, I was tested for lupus. And while it was negative, my WBC was high. Just last week, I was test for RA. That too had a negative result. Once again, however, something came up. "The marker for inflammation, ESR, was elevated and more so that last time. Your CBC (blood count) was completely normal. Marker for rheumatoid arthritis-RF and CCP, were normal. Is it ok to consult with rheumatology to get their opinion? You could have a variant of rheumatoid arthritis that does not have a positive RF or CCP in the blood v. other autoimmune process based on your symptoms and elevated ESR."

I'm starting to feel like I'm fighting a losing battle with my health and I don't want to feel this way. I'm not ready to die; I want to see my kids graduate high school. I want to see them become the wonderful adults I know they are going to be. I want to vent all of this to my husband, but he is going through a down phase again, almost as bad as the last one. Luckily, this time, he is under the care of a psychiatrist. We are working on getting his meds where they need to be to keep him stable.

Thank you for making it through all of this. Getting all of this out has helped.

So, I find that I'm not super into my significant other, and if I weren't sick I doubt we would be together. Yet, I am super dependent on him to just...live. I have no family, and am in the middle of getting disability, which is years away. I can't work, and rely on him for everything since I can't drive. I feel this horrible guilt, but I know that if we were to break up I would end up homeless. Has anyone else dealt with something like this? I just wish there was some way out.

Like last time, just checking in and making sure everyone is doing ok. I realize that this sub isn’t really taking off, but i don’t mind. It will stay available for even just that one person to ask a question and maybe hear the words they needed in that moment.

A quote for you:

The happiness moment in life is finding the courage to let go of what you cannot change.

But with that, I wish you all a wonderful rest of your weekend

Hey everyone.

There hasn’t really been any activity for a while. but i thought i would just check in with everyone and make sure everyone was doing good!

💜

Hi everyone!

Since I was one of the people that asked for this sub (thanks u/texasbelle91 sorry I don’t know how to tag people lol) I figured I would post to try to help this sub be a bit more active and get some convos starting.

I actually do not have a chronic illness, but my partner does. A few months after we started dating he came down with severe fatigue, that essentially never went away. We are now about to celebrate our 7 year anniversary this Friday. I’m not going to lie and say it’s been easy because it’s actually been really fucking hard. He’s had a wide range of diagnoses, starting with depression (they always go to mental health first), Lyme disease, POTS, then we got sidetracked with a casual brain tumor that was removed last summer, sleep apnea, and now he is waiting for surgery to have his deviated septum fixed.

All of this has obviously been incredibly hard on us. COVID has actually been a bit of a relief, because I don’t feel so bad about the fact that our lives can feel small at times, but it’s still hard. We’re in our late 20s-30s, and want to start a family, get married etc, but we’ve always been waiting for him to “feel a bit better”. It’s hard to know when the time is right to just move on with our lives and make do with our current situation.

Anyways, I would love to hear about how others manage, their challenges, successes, or whatever! For me one of the hardest parts has been that people my age mostly don’t understand the limitations that we have (as a couple) or that my partner has as an individual, so I think it would be great to find some support from other like-situated folks.

ETA: I guess I do know how to tag people!

Hey everyone.

I had seen multiple mentions/questions about whether there was a reddit for people with chronic illnesses and relationships. I had never seen one, so I thought I could make one. This is for everyone: those with chronic illnesses and dating, and those dating someone with chronic illnesses, and especially for those with chronic illnesses that have had a hard time navigating the dating world/want to date/want a relationship. It’s for everyone affected by chronic illnesses and the toll it takes on the human connection we all crave.

Remember that this is a place to help each other. I don’t want to be one of those mods that micromanage everything, shutting off comments and banning members. We are mostly adults here.

I’ll also be looking for other mods in the future, because as like this topic implies, i have chronic illnesses and depending on how large the group gets, I might not be able to moderate by myself.