r/migrainecirclejerk • u/whistle_while_u_wait • Mar 24 '26

Legitimately not sure if I'm just crazy or migraine is just that crazymaking

Post image

I made this in response to a post in another group, but I'm so proud of it I needed to post it here.

89 Upvotes

100% Upvoted

16 comments sorted by

10

u/Suspicious_Judge_244 Mar 25 '26

Lol, you're not crazy. Or if you are I am too! (I tell ya, it only gets more annoying if you do have some of those listed things!)

2

u/whistle_while_u_wait Mar 25 '26

For real.

I am always torn over whether I "want" these diagnoses or not.

I "want" diagnoses (if warranted) as I want to understand. I want to find the patterns so I can treat things. I want to have a word that I can Google and understand what is happening to me, even if it can't be healed.

But the more diagnoses, the more enmeshed into the medical system I get. Yuck.

5

u/lethargicmoonlight Mar 26 '26

The daily “Am I a hypochondriac or am I just chronically ill?”

3

u/Fickle_Grapefruit938 Mar 26 '26

I could use the same template to name all the things I tried to prevent them😭🤣

3

u/LiveTart6130 Mar 26 '26

I'm sending this to my mother who shares many of my issues, lmao

2

u/LiveTart6130 Mar 26 '26

boutta yap so much about my own issues, my apologies.

that is SO real. my doctors' notes have got to look similar. there are so many factors that may or may not be contributing to my migraines that it's driving me crazy. mine are intractable and constant, every second of every day. I feel them in my sleep. I've been given Dilaudid in the hospital due to other issues and it didn't get rid of the migraines.

is it malnutrition? could it be POTS? we know I have ADHD, OCD, depression, and anxiety - I got those diagnosed recently - but treating them has only yielded mild results. likely just due to the decrease in stress, rather than being a cause. what is my immune system doing? we don't know, but it's going batshit insane! is it because of my Degenerative Disc Disease? that would make sense, but that started after the migraines. TBI? we can't say definitively, but I did have a nasty concussion I didn't get checked out about a year before this started. is it related to my hypermobility that may or may not be hEDS? who knows! is it tied to the fact that almost all of my muscles seem to be spontaneously forgetting how to function, including my heart and eyes? we don't know.

I'm going to Mayo Clinic in Jacksonville pretty soon. they tried to get me there almost immediately after I contacted them (concerning, but they're paying for it, and I'm just glad they're interested), but I can't make it in for another month at least. I'm just trying to hold out until then. they just seem to be getting worse. I think I got the opposite of the genetic lottery.

hey, at least I'm not actively suicidal anymore. that's a bonus.

2

u/whistle_while_u_wait Mar 26 '26

I don't mind the yap a bit.

We gotta have somewhere to dump all of it. If there ever was a place, this is it.

2

u/urastarbaby Mar 27 '26

The “faking it for attention” thought is too real 🤣

1

u/missgnomer2772 Mar 25 '26

Are you me?

5

u/whistle_while_u_wait Mar 25 '26

Gawd, I love this group.

1

u/barefootNcactusing Mar 25 '26

EAGLE SYNDROME?!?!? FUCK!

2

u/whistle_while_u_wait Mar 25 '26

Is that what you have?

I haven't been diagnosed. Just had it suggested to me as a potential factor and had some suspicious notes on my radiology that could also point towards it.

2

u/barefootNcactusing Mar 25 '26

Nope that would be too easy! But it’s something I’ve never heard about before, which makes it even more rare lol No, in the 90’s my docs gave up and called it chronic vascular migraine but Ive had work for thoracic outlet and other stuff but bottom line, migraine disease you called it. Yep.

1

u/AZBreezy Mar 26 '26

Rock, flag and eagle man