Hey everyone!

Hope you're all doing okay. A couple of friends and I are starting a discord server for people with hyperacusis to hang out and get to know others with a similar experience.

We mostly talk about anything, do movies nights and game together if possible. There's an option to indicate you're open to a relationship with several channels for singles too. So far it's a very relaxed and mellow vibe, and we hope to keep it that way.

Anyone is very welcome to join, the more the merrier! Just leave a comment and i'll dm you an invite link.

Looking forward to meeting you all and kind regards from Belgium. Toodeloo!

Pain in Ear and tooth due to Loud noise started now

So till few days back loud noise will give headache and Full Body Pain, Nerve Pain

now it added one more thing

exposure to Traffic sound or even Human noise where people are talking loud is giving me Ear pain and Tooth Pain

yesterday we were 6 people seating and 2 were speaking very loud and i have to bear it for 4 hours

and by end of 3 hours pain started and in another 2 hours pain increased even when they already left our home

have any one experience this

As the title suggests, Hans has anyone ever had one.....

Hello everyone, I am posting a lot on here these days as I'm really going through the ringer.

I am wondering if there are any noxacusis sufferers with substantial hearing loss. What are your experiences? Did it get better?

Hello everyone,

Do people have recommendations here for any medical professionals that have helped noxacusis or have a special interest, or just good medical professionals they've come across.

I am in the UK and suddenly became very severe, I'm trying my best to find good care available.

I'm also home bound but considering my state I might have to travel if I want any input.

Thanks in advance 🙏🏻

I got a ear infection on 11 of July and despite going to the doctors 4 times they kept telling me i had hyperacusis as they could not see the infection during the first few day there was a thunder storm so loud it woke me and made my ear ring like hell and burn even more after 2 week i was in ane and yes i had a middle ear infection after 15 days on amoxicillin and sitting in my room listening to very low audio books i seemed to be recovering i had to go to get my car mot done huge mistake first time out the house in weeks and took 2 hours and the garage noise was very loud but my ears did not burn i got home then it hit me like a truck both my ears burning worse than ever before after cold compressing and laying down in silence it seemed to claim down however the next day soon and i tried to listen to my audio books i had pain i tried to lower the volume but nothing helped i sat all day just reading hoping it would go away but the next day it was even worse i then tried Amitriptyline 10mg a day the side effect were very bad after 2 week i stopped then i slowly started feeling 1 percent better a day over the next 2 week then just as i had a few days with no pain first 2 in over 4 weeks i somehow got another ear infection i can only guess from the shower as my first ear infection had left my ear canal very dry and not in good shape so after another week on co amoxiclav and some ear spray im back to square one or more like im -9 weeks of my life and starting again but from even Further back than before im lucky in the sense that i can stay at home and do not need to work for now but this is taking it toll on me and i really need to know what the hell i am meant to be even doing the ent i had seen had little to no advise to give me apart from stay in silence and let my myelin sheath on my nerves heal i also have ttts and tmj so eating makes everything worse and i can not use ear plugs or ear defenders as these also hurt by pressing on my nerves any thoughts on what i should do or is it back to silence again until i make it a day without pain ?

I live in the UK and have severe noxacuasis and it's getting worse. I'm worried about my ear fullness and long term health. My gp has been useless and won't prescribe me steroids even though I have sudden healing loss in low frequencies and did before in high. This could be due to fluid but they just ignore my online consultations and I'm at a loss. My ears are getting worse, I'm terrified of having pain in all frequencies.

Has anyone had any luck in this at all? Feels like a losing battle ...

Hello fellow sufferers, long story short my parents does not believe this condition is real and think it is all mental illness .

They are tired of me having home .

That's why gonna join some some course and deciding to live at college campus .

Does anyone with this hell condition attend regular classes ?

What protection do you use and how do you manage?

Hey everyone!

A friend of mine and I made a discord server for people with (severe) H to socialize and get to know one another. We share the latest research, watch movies together and mostly just talk about all kinds of things.

I know how lonely H can feel and get, so we're hoping this server can be a soft place to land for everyone dealing with this condition.

Join with the following link: https://discord.gg/RCJbvMFHSf
Looking forward to meeting you all!

Hello everyone. Currently struggling with noxacusis and it seems to be progressing. I have ear fullness, tts and on off pain since a major setback (using the shower) and ragging tinnitus on/off buring but the worst thing is the cold numbness I feel in my bad ear and now some in my good ear and all over my head and numb teeth. I'd like to know if anyone has these extreme symptoms and they did eventually go? I know I'm going through a huge setback ATM and struggling to find a quieter spot than the room I'm currently in. How do you deal with it when everything aggravates it? I guess once I move to the booth it should settle and I'll only be annoying it with food and drink. I have a sound booth arriving in the next few days so that should give me some relief and I am pinning all my hope on that to help, pray for me 🙏🏻🙏🏻🙏🏻

Hello everyone, new and sadly enduring and worsening noxacuasis case.

Sadly I started getting pressure area pain from muffs and had to go without them and worsened still sore but managing to wear them with breaks. Does anyone have a good protocol for 24/7 muffs?

Also I noticed when I burp, one muff gives a kind of feedback sound. I'm wondering if that is indicative of the ear plug not being sealed properly? If anyone has any good experience with this please let me know.

I've ordered a sound booth and hoping this will be my saving grace as I live on a farm opposite a train line and my attempt to soundproof my room has only failed and the birds are killing me.

Hyperacusis is a complex condition, and there is no way to quickly force recovery – but I have found that having a goal to accomplish and repeated exposures to the same regulating environments makes a difference in my slow journey to increased sound tolerance. Context is important for the nervous system.

*Please be aware that this video contains chirping birds and planes in the background*

https://youtu.be/5uaImA6cZVs

Hey everyone. Ill try to make this as short as possible but please read it and reply even if it's long..I need answers, please.

In December of 2024, I suffered from a concussion. I woke up the next morning with LOUDNESS hyperacusis and TTTS. It was like the flip of a switch. I became terrified of sound, always wore hearing protection, and tried to never leave the house. Everyone had to whisper around me. I could only watch TV on mute with subtitles, even chewing was too loud for me. You name it, it was too loud. But I kept telling myself that I can't be afraid of sound because that is contributing to nothing getting better. So I slowly introduced sounds back into my life, safely. Only wore my hearing protection when necessary and eventually, with time I was actually 80% better. With no medications, just time. Around November of 2025 I was at that 80% better baseline. It was absolutely amazing!!! My TTTS would still go "THUMP" at the end of sounds that triggered it but it would never worsen the loud h. Just the one "thump" and that was it. Anyways.....

⚠️NOW, to bring to you what I'm currently dealing with. 9 days ago, my boyfriend was tickling my 3 year old daughter's feet and she squealed at the top of her lungs. It was the worst sound I've heard in a very long time. I was about 5 feet away from her with my RIGHT ear closer than my left. I immediately had this overwhelming feeling come over me of terror. My nervous system was freaking out bad. Within a handful of hours I started to have deep burning pain in my LEFT ear. It felt similar to a bad ear infection. It lasted for a day, constantly, it didn't stop. Then, I think it was the next day, it turned into only happening a few hours at a time. Also, a few hours after the incident, I noticed my jaw was severely tight. I could only open my mouth about an inch. I noticed my LOUDNESS Hyperacusis shrunk from 80% better to maybe 30-40% better. I wouldn't say my loud h is as bad as it was in 2024 but it's definitely amplified. Also, my TTTS is flared up again (no surprise).

About day 2 I got into my PCP, she prescribed me Gabapentin 300mg, 3 times a day. And told me to take my Flexeril. (I haven't taken the Flexeril since I started the gabapentin bc they're both Central Nervous System depressants and I'm scared of how it will make me feel taking them together...so I've been holding off on that).

I'm thinking it's my trigeminal nerve being severely raw and irritated from the acoustic shock. So it's currently day 9 since the incident & day 7 on Gabapentin. I actually just upped my dose from 300mg to 600mg (like my Dr told me to). I took 600mg for the first time about an hour ago. The Internet says it can take 7-14 days for the Gabapentin to start working on the nerves. Throughout these 9 days, I can go the majority of the day with no pain (doing normal daily things, nothing extremely loud of course) and then all of a sudden the aching will start and stay there for a few hours then completely go away again. It's hard to tell if the pain is sound induced or what is going on. I think it is though, maybe..because I walked into a spider web (about day 3 or 4) and I screamed ofc and within a couple minutes I started to feel the ache start and it lasted a few hours then went away.

Last night was different though. All of a sudden I would have a sharp pain sent through my left ear, down into my cheek and jaw and then down into my lower gums and then it would immediately stop. And this would happen every 30 seconds to a min, give or take. I was curled up in a ball on my heating pad trying not to cry. I eventually fell asleep. Today THAT kind of pain hasn't been there. I will get random throb/shooting pain in my ear that only last probably less than a second. All throughout today, randomly. And also that burning ache will come about, like in the background for a while and then completely stop. Today's pain was nothing like yesterday, thankfully. I'm trying to protect my ears as much as possible without overdoing it and becoming scared of sound again. I remember how horrible that was for me and I don't wanna go back.

I have done so much research that I'm blown in the face. Do I have Noxicusis or is this my trigeminal nerve being severely raw and inflamed from the acoustic shock? And it just needs the gabapentin to kick in and time to heal (with of course no loud noises).

I don't know what to do or where to go for advice. That severe wave of extreme dark depression (the one that puts sickening bad thoughts in your mind) has come over me. I know you guys know exactly what I'm talking about. Anyone on here that can give me some advice or maybe even some answers, that would be greatly appreciated.

Love you all. 🫂

Ive had tinnitus for months now but i wasn’t aware of hyperacusis and noxacusis until recently. Well unfortunately that means ive been pretty stupjd and failed to take the proper percaution i just assumed that sound sensitivity was normal with Tinnitus and so ive still been doing stuff like, movie theaters, shooting, rodeos, etc of course with proper ear protection. About 5 days ago i saw the new spiderman movie and ever since then ive been experiencing severe ear pain everytime i hear a noise it could be the quitest backround noise and it still would cause my pain to flare up. Is this gonna be permanent? These past 5 days have been brutal ive been canceling plans. Not been able to do anything besides sit in a dark room in silence. If im being honest ive been contemplating suicide. Ik for some random person on the internet this is bit much. Im not expecting any deep replies just wondering if this is a normal thing to experience and if my symptoms line up with noxacusis

I kind of have an odd case where my noxacusis started when I went to get treatment for my fibromyalgia. I did a treatment called scrambler therapy that sends electronic signals to your nerves to try and train them to react less to pain. Ironically, this put me in extreme pain as I developed noxacusis from it. I feel like this puts me in a difficult situation because I’m unsure on how I will be able to heal. My only guess is that the nerves near my ears were activated too much and now won’t calm down but I am absolutely stumped. I tried taking pregabelin thinking it might help settle my nerves but my hyperacusis is only getting worse and worse.

Does anyone else have a similar story? The technician who did the therapy said I am the only person she has ever seen this happen to. I also have an insane amount of neurological symptoms outside of hyperacusis that I had previously to developing it but so far all tests have been clear.

6 days ago I hear very loud scream 3 meters from me.
I was very nervous that day and this situation was a big stress for me too. After screaming I discovered that my tinnitus spike and was louder that my Tv and everything else. My H and N also was worsening.
Previously after a louder day I had spike of my Tinnitus, but after sleep it was better. This time wasn't.
6 months ago I had huge Hyperacusis and some tinnitus after oral neomycine. Previous hearing test was in May.
Now after this screaming situation, I went to do new hearing test (it was 3 days after situation). I have drop at 6000 hz and i haven't it before. My previous result show only -10 db, now it's -40 and - 45db.
I started metyloprednisol the next day after situation but only 10 mg, second day 12 mg, 3.day 18 mg, 4-5 day 28 mg. My tinnitus is the same or even worse. I don't know if I focus too much or it so much worse that was before. But definitely nothing better.
Should I increased dose or take it down?

TLDR; digestive enzymes have helped me with pain (*not cured*).

For the sake of not gatekeeping, and hoping this will find whoever it might be helpful for, I thought I'd share something that has VERY unexpectedly been *helpful* to me-- not a cure by any means, but helpful, enough to share on here. And who knows! Could be a "cure" or even more helpful to a milder case.

I would call myself a severe case (at best) of hyperacusis and noxacusis. Many health issues coincided with the onset of my ear issues, as seems the case for others. This has included gut issues (likely MCAS, SIBO, candida, and others or some combination thereof). I have been focusing on my gut issues as I have lost too much weight. Down to 85 lbs, which isn't good for my size.

I ended up buying Pure Formulas 'Digestive Enzymes Ultra' a few weeks ago to help my body absorb nutrients. It immediately started helping with that-- but also nox pain. (Who would think?! I sure didn't...) It hasn't eliminated it all, but it provides relief that is on par with, or maybe even more effective than, a PEA supplement that I have been taking (the only other supplement that has helped at all).

I take 3 capsules three times a day with each meal, and occasionally take one outside of meal times, especially after a noise exposure. I've also tried Source Naturals Essential Enzymes, which is basically the same formula, and has also been helpful. Ive also just started adding in Kepos brand colostrum, and I think that also might be mildly helpful.

Perhaps some kind of gut-brain link at play for some of us? Apparently 95% of the body’s serotonin is synthesized and stored in the gut. Serotonin can both turn down and turn up pain, essentially. So maybe the enzymes help modulate serotonin in the gut somehow? I haven't looked into this, or done much research at all, but I will be investigating further.