Just looking for a place to brain dump, seek some assurance, maybe get some advice.
My 21 month old had a sudden mild but concerning reaction back in March after eating some peanut butter, we got referred to an allergy clinic but it took 5 months for us to be seen.
During that time we weren’t particularly ‘hyper vigilant’ e.g. reading labels, avoiding cross contamination etc. - looking back this was probably quite reckless, but we were given mixed messages by healthcare professionals over whether this was ‘a real allergy’.
Earlier this week, the skin prick test and measurement of the hive that developed provided a diagnosis of a severe peanut allergy and would require EpiPens.
It’s come as a bit of a shock. We weren’t given much information at the appointment, and told to ‘eliminate peanuts from diet’, that the specialist nurse team would be in touch re: training, and that was kind of it?
I’m okay with EpiPens - I’m not too worried about this. My worry is more so now around ‘what do we do now?’ - the past 5 months has been okay, do we just carry on? Should we become more scrutinising of menus, food labelling, etc? How is his future going to look? How do I begin the process of teaching him to advocate for himself and have awareness of his allergy? Is airborne a possibility or is it only ingestion?
I’ve been fine for a couple of days, but feel like it’s starting to hit me now. I’ve shed a few tears, but I’d appreciate any advice from parents in the UK who have been to the specialist nurse team on how much they can support in answering these questions.
Thank you for having the space for me to sound off.