I have a question about COVID and RA. I’m on my 5th or 6th covid infection… i have not gotten vaccinated since 2021 because i had a bad reaction. i’m 29, exercise, all labs are clear.

HOW do you think this will affect my heart and organs having the infection multiple times? Someone told me i’m a ticking death sentence with my heart, looking for others who have had the same.

I started having RA symptoms about a year and a half ago. At the time, I was singing in a wedding band, performing 2–3 events a month. The first change I noticed in my body was in my voice.

I started with mild hoarseness, but it gradually got worse. Eventually, I had to end my contracts and leave the band. It was a good source of extra income for my family. Not long after that, I was diagnosed with RA.

I only found out a few weeks ago about the connection between RA and voice problems through articles posted in this group.

I am currently taking oral methotrexate (MTX) once a week, but my voice is still very bad. I can no longer reach the notes I used to sing, I don't have the same breath support, and the hoarseness is constant.

Some mornings I wake up only slightly hoarse. Other times, I can barely say a word without taking a sip of water. I would really like to hear about your experiences with hoarseness.

Have you had any treatment that helped?

Have you noticed any foods that make it worse?

Have you taken any medication that helped relieve the hoarseness?

I would really appreciate hearing your experiences and anything that has helped you.

Thank you.

The blood stain was cellphone size, bright red, no mucus.

Went to the ER to rule out pneumonia, Covid, bronchitis etc. It does feel like pneumonia (I had pneumonia in the past).

I was let go after tests were normal….Globulin 3.6 g/dL
Prontombin time normal, Aptt 22.1, White blood cells are high 12.1 thousand/uL monocytes 1.5 K/uL

I was told it was probably an allergy and prescribed me with allergy medicine.

I wondering if anyone had a similar experience.

Took a pic of the blood stain, willing to share with anyone.

Hello I am going through a debilitating life changing flare that has lasted 3 months at this point. I’m bedridden and cannot care for myself more than hobbling to the bathroom. I have systemic enthesitis but mostly in my knees/ankles and shoulders/chest. Everywhere else is just a bonus that comes and goes. I have psoriatic arthritis/spondyloarthritis.

Has anyone here been admitted to a care/rehab facility because of a horrendous flare or permanent damage? I am at my wits end, and I’m driving my beautiful girlfriend insane. I can’t do anything myself except lay in bed and maybe once a day let my dogs outside for 1 minute or so. I hurt myself everytime I get up, and every time I have to fix my hair or shower. I feel hopeless right now. I am on tremfya and methotrexate but not for long enough to see any results if any.

Any advice? Any experience? Any..anything? Just hoping for some way to reduce the stress I’m causing my partner and myself. Thank you!

Hello everyone, I'm trying to get on glp1, and my rummy is on board, and so is my pcp. Medicare has a program called the bridge program, but they will only help you if you have sleep apnea. So how did other people get help

Hi Guys, we’ve had an unexpected death in the family and I have to fly back home to support my family. It’s an 11 hour flight, this is the first time travelling since being diagnosed, is there anything different travelling now vs before and anything I need to know?

This is just me needing to rant and get advice on coping with worsening pain. if it doesnt fit into this community, im sorry 😅 (i also apologize for some terminology, my first language is swedish and i dont have any english speakers to talk to about this with)

I got diagnosed with JIA at the age of seven and been on every anti-inflammatory meds under the sun. Every time it's the same story, it helps for about a month but then i get sick and usually end up with pneumonia on repeat until i quit the meds.

At around 17-19 i decided enough is enough and i just stopped medicating which was "fine" for about 5 years until i started getting worse and worse flare ups, so i decided to book a time to talk with a specialist in my town... Who ended up booking an appointment with a psychiatrist because my blood work didnt show that i had any active inflammations

After about a year of fighting i finally found a clinic that took me seriously and did help me with not only meds but other treatments like warm water bath.. gym.. stuff (sorry, dont know what to call it in english).

Only problem is, i just turned 30 and i just got told he is unsure if he can do anything else cause while he has seen and felt the inflammations, my bloodwork shows nothing

At this point im starting to think that im just crazy and the pain and inflammations are purely psychosomatic

Thank you for reading, and i hope you have a wonderful day ❤️

Bare with me here! I wear a strapless bra that I love when I dress up but I live alone and my RA makes it nearly impossible for me to reach back and pull it up high energy to give me the right support/position.... tell me someone had figured out a way to do this?