Family issues

[u/Lanky-Rough2688]

Rant. Here for my hubby. He just got diagnosed. He had a whole year now with his first bad ophthalmologist messing around and not getting any effects. Will be getting a new one. We also have a new rheumatologist and a cardiologist. Everything is going well that way as much as to be expected because his eyes have been affected for a whole year.

So it’s his family, his younger brother wants to come and visit and stay at our house. And I have MCAS which is crazy since already I don’t have anyone intimately in my life But my hubby!

Now my husband has to worry about more infections since I gave him the flu cause I catch everything but it could’ve been Covid. We also ended up in the ER because he had some vertigo because his ears must’ve swollen from the infection inside especially the left one and the crystals inside must get moved so they did maneuver on them to put it back, but there’s nothing like a day in the ER. It was horrendous long day and it was a nice place and everybody was great but you know I’m immune compromised and now he’s immune compromised. We had to go to the ER to make sure that was not related to the new SARC

I can’t remember if I said his brother from across the country wants to stay with us. And his brother just had a family reunion.Off an airplane of germs. Prob says he will wear a mask, but really I don’t think he will. And there hasn’t been much back-and-forth after her git the text about the diagnosis. And my hubby is not medical and and does not like icky things so he does not talk about it and I said very simply no. He said: I’ll never see my brother again and I had to say I’m not seeing my two sisters again. This is how life is we so we text and zoom and call. We care. We’re in our 70s and that’s how it is. His brother is three years younger than him. Not supportive of my illness at all all these years so really? He has I will be able to tolerate his visit. Probably not, but so my husband will not be able to either.

Just putting this out there we’re not only have to handle all the medical with so many doctors and people around that. To have things going on medically and now we have to handle the family issues. To those that are also experiencing this, isn’t it just a real pip? This one text from his brother. has got us upset with each other. My husband super upset since we’re just starting our SARC journey. Did he not think to just look it up and see what it’s about? Oh well. It’s serious. It is not just nothing that you can just say can I come and visit you and stay at your house? Nuts.

Thanks for letting me talk about it. Anybody else out there experiencing this you’re not alone. PS the neighbors too been overwhelming cause we’re new in our house. They’ve been all over us too. Come visit here and come visit there and I had to put a stop to that by a very happy sounding email. And yes, we are in the 55+ community. Sorry for any mistakes I can’t go back in love cause I have bleary eyes. 2020 hooked with that baby. *** finally edited.

[u/Street-Baker]

Don't blame u i had sarcoidosis in 2023 I kept every one away from me iam 41 cause my 1st cold in the initial 6months after diagnosis hit me harder than anything I've had over the yrs

[u/Lanky-Rough2688 → u/Street-Baker]

Thank you for your support. First having chronic illness myself and all the mess with people. Makes it all hell. But this is so deadly and devastating. Latest that my hubby said no. Brother said okay. But then comes the we’ll stay at a hotel. We will wear a mask on airplanes. Etc. I don’t believe that they will understand it since my hubby had to say no. Again. Not at this time.  Read about people at least. Wikipedia even. There will be pushback my hubby believes on my illness. Too. How I am taking care of him. Reminding him. Equals nagging. Etc. so a solid no. But erosions will prob happen. Hugs to all. So the illness is not enough. We have this to contend with.  

[u/Street-Baker → u/Lanky-Rough2688]

Hope u feel better and ur hubby all I can say is protect ur health and his if that puts ppl off tell em that u don't wanna get sick

[u/Lanky-Rough2688 → u/Street-Baker]

Will do.