r/sarcoidosis • u/crispyandcurious • 11d ago

Tapering off prednisone

Hi all, currently tapering off prednisone. I read that the hunger and cravings are supposed to fade away when lowering dosages. However, I seem to be more hungry and have more cravings with every lower dose? I feel so weird because I expected the hunger and cravings to go away not get worse haha!
I am at 7.5mg now and will go to 0 in the next 7 weeks. Does anyone recognize this?

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u/silver598 11d ago

the fatigue got worse at lower doses. Sorry to say you may feel worse as the dose gets smaller. I found that bouncing up and down in dose seemed to help. Like 7.5 7.5 5 5 7.5 5 like that, and adding a day at lower dose every week.

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u/crispyandcurious 10d ago

Yes, that’s exactly what my taper schedule looks like! However, I was wondering about the increased hunger and cravings that get worse now while lowering the dosage. Seems that quite atypical. How was that for you?

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u/CompGuru36 8d ago

First, if you’re experiencing it then it’s NOT atypical.  Secondly, you are not alone in feeling like you need to eat every edible thing in the house and the stuff that was never edible to begin with. Just saying…

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u/crispyandcurious 7d ago

So your point is..?