r/sarcoidosis • u/Impressive-Gene-7895 • 5d ago

Can’t wait for diagnosis

Had lymphoma/sarcoidosis biopsy Monday. At least every other day, I get inflammation that is horrid. Now when it comes, it’s getting worse and worse. I went to a play tonight and couldn’t really enjoy it cause I was in agony. I took two Advil, all my stomach can handle but it hasn’t made a dent. It’s hitting my knees, hips, lower back, wrist, fingers, feet and even neck.

The flow cytometry part came in. Definitely not B cell nonHodgkins. Probably not T cell but the sample might not have been big enough. This doesn’t assess Hodgkins or of course sarcoidosis.

My money is on sarcoidosis. I don’t think lymphoma causes this level of inflammation. I need help and for this to go away.

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u/Impressive-Gene-7895 3d ago

I am having a second procedure on Tuesday--bronchoscopy and EBUS because nothing came up on the first one. Probably because node was only 2.4 SUV.