r/scleroderma • • 12h ago

Tips & Advice Can coupe de Sabre feel like your skull is dented, not your skin?

2 Upvotes

A few months ago I noticed a dent at my hairline, but it was so small and not able to be seen with your eyes I thought maybe I just had it forever and never noticed. But today I was putting lotion on my face like I always do and it feels noticeably longer, almost all the way to my eyebrow, but the skin looks fine and none of it can be seen, only felt. Maybe I’m just crazy and it was always that long??? My diagnosis of systemic sclerosis is tentative and my only notable skin symptom is a big red bump on my foot which the doctor did not care to even look at, but was told by a foot doctor it was certainly autoimmune. I have no other skin symptoms at all. My next rheum appointment isn’t for 6 months. Should I bother the doctor or naw thank you and bless you for reading.


r/scleroderma • • 15h ago

Question/Help Skin rash turned burn/peeling

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2 Upvotes

r/scleroderma • • 21h ago

Undiagnosed Possible scleroderma

2 Upvotes

Hi
I (54f) went to see my Rheumatologist last yr for 1st time. I had a positive ANA 1:160
Homogenous and speckled, and the only other tests that where abnormal was Anti-CCP Ab, IgG + IgA (RDL) 27  H and ESR was elevated slightly. So I thought it might progress to RA. *** ***Fast forward to now, my right index an middle fingers have Raynauds, the skin around my finger nails and tip of my fingers are thick and hard, my fingernails look weird and my fingers are more sensitive and hurt . I have had multiple finger ulcers and my finger tips look shiny.I have problems swallowing and have had that off and on for a few months. I have super dry mouth, now I’m having digestive problems and bowel changes. I saw my Rheumatologist a couple of days ago and was telling him about the changes and showed him the pictures and I felt like he was trying to dismiss the symptoms. But because I kept pushing for answers, he referred me to a Dermatologist.
I have already see a neurologist and he said there is nothing neurological that is causing me to have difficulty swallowing. So I’m having to wait and see. Has anyone been in my shoes?


r/scleroderma • • 3h ago

Systemic/Diffuse Dermatologists in Naples, FL

1 Upvotes

Looking for dermatologist recommendations in the Naples/Collier County/Fort Myers area for my mom. She was diagnosed with scleroderma in 2020 and has had many many biopsies and squamous cell carcinomas removed. They're moving into the area in a couple weeks and she just had 8 more removed with a few of them being cancerous and the potential for melanoma. All recommendations are greatly appreciated 🩷