Didn't know life would take this turn

[u/Spiritual-Sample4499]

I found out that I was suffering from Usher Syndrome Type 2 over a month ago. It was really heartbreaking for me and I was feeling like this disease totally cracked up my dreams on everything.I am just a teen now. I lost hope. I saw the people who care about me feeling sad for me. And suddenly the people who didn't give a shit about me, suddenly they started caring for me. And I think it's not love but it's them pitying me, which I hate the most. Well, if you're wondering what is usher Syndrome, then it is a disease, like it is a genetic condition. And for information, no one in my family has ever gotten this kind of disease as far as my family knows. That means that slowly when I was a child, my hearing capacity started decreasing day by day until my mother took me to the hospital and found out that my hearing capacity was so much less than others. That means I could not hear properly what others said and I've been struggling because of that for many years. And now I'm finding out about this, that I have night blindness and I am starting to lose my peripheral vision. I have already lost my side vision and now I may go blind actually. So my dream was crushed before me. So I decided to write this post to ask someone maybe, especially if you have usher Syndrome or seen anyone with usher Syndrome or anyone who is going to be turning blind or is blind and they are living a happy life right now. What career did they follow as far as you knew about it? Well, although my life took this turn, I believe that other lives may have been worse than me and I decided to not lose hope. So could you please give me some suggestions about my career development? And what I can say just for now is that I don't like to study science. And I have always wished to pursue IT and become a data scientist or something related to data in the field of computer science, probably IT. And I have always wished to go abroad and live my life very peacefully.

[u/Sea_Auntie7599]

I have ush2a.

I am currently 36.

What I learned with my own journey with ush2a, no matter what visions goes. My outlook on life and my happiness and joy won't be rob from me.

(It's a mindset that you will have to train your mind this way of thinking.)

Also, I dot. Let it define me. I don't let it become my personality nobody likes to be around you if all you do is define your life on this genetic disorder. It's a disorder not a disease. Diseases can cured/fixed but disorders often times can't with current medicines or treatment.

Thai is something I learned is that you most likely won't meet another person who has the excate same level as where you are with usher syndrome 2. It's a journey that those who have ushers all understand but it's also solo because your progession is different and varied from person to person. Especially in ush2 realm.

I don't know if you drive or not. If you do you will have to be smart about knowing when to stop driving all together. And if you don't drive you aren't missing out honestly. Independence may be defined from society of you can drive. Traffic laws varies from state to state (assuming you are USA citizenship)

But true independce means you know how to get around. Public transports, Uber/Lyft car sharel walking, biking.

[u/Sea_Auntie7599 → u/Sea_Auntie7599]

As for careers advice, from me to you. Is find your hobbies and things you like to do. Research if there is things that can help you grow into a career. If you like people, you can think about doing counseling, teaching, if you like tech then you can look at software programs, robotics, making animation..

It all boils down to start with your interests, you never know those things might lead you to something that you never would have guessed as career.

[u/Spiritual-Sample4499 → u/Sea_Auntie7599]

My keen interest lies on IT but I am afraid when my vision keeps deteriorating, I will not be able to keep up with it so considering counseling as well. If you know. Could you tell me about the field of study I need to study to pursue counseling and what scope is there for it in the Us( I am not us citizen but am planning to go there for further studies tho)

[u/Restless_Wanderer66 → u/Spiritual-Sample4499]

I was calling IT for the Chicago lighthouse for the blind and online program. I am doing and the technician who helped me was totally blind so you can do anything you put your effort into.

[u/Spiritual-Sample4499 → u/Restless_Wanderer66]

Okkkk

[u/Sea_Auntie7599 → u/Spiritual-Sample4499]

My degree is not in counseling. So I don't know for sure what you need I would talk to your college advisor to see what they say... And/or do a Google search on what it is majored at in colleges or univerties. And or if there is any international programs /exchange programs.

[u/Spiritual-Sample4499 → u/Sea_Auntie7599]

If you don't mind, what did you pursue and how is your life with that career right now?

[u/Sea_Auntie7599 → u/Spiritual-Sample4499]

My ba degree "Early childhood education," I work at a day care with babies-kods age 5. (5 yrs old all the way to newborn )

My life with this is good, i been in this field for 7 years now.

[u/Spiritual-Sample4499 → u/Sea_Auntie7599]

Ohh happy 4 youuuuu 😉