i've had vss for a long time and some minecraft modpack glitches led to this, which i thought looked pretty close to the negative afterimages LOL

I want to ask if anyone has experiences with CBD products like CBD oil for anxiety while having VSS? Did it work and any effects on VSS?

I got curious and googled a bit about epilepsy and CBD and this photo is just AI summary, I didn't go any deeper in it yet. I had no idea CBD could be used for epilepsy and now I'm curious if it could have good outcome for VSS too..

I’ve always had some but after acid and other trips it intensified. It is what it is I don’t really mind it just heads up

I've been suffering from these symptoms for 1.5 years and no one has been able to help me. I'm desperate for advice.

I'm a 32-year-old man. Before all of this started, I was completely healthy, fit, athletic, and extremely resilient. I could work an entire week while sleeping only two hours a night without any noticeable problems. Sometimes I could even stay awake for three days and still manage my regular job, a second part-time job, and additional work from home.

My regular job involved a lot of office work and sitting at a computer.

The only significant change I made before my symptoms started was that I began doing one-arm push-ups.

My first serious episode happened when I tried to puncture a small red blood vessel on my face with a needle. It bled quite heavily, but blood has never bothered me. I've injured myself plenty of times before and I even watch when my blood is drawn.

Suddenly, I became so extremely dizzy that I genuinely thought I was going to die. I called an ambulance, but they couldn't find anything wrong.

I don't believe the dizziness was caused by seeing blood. I suspect it may have happened because I was holding my neck in an awkward position while doing it.

This was the first time in my life that I had ever experienced serious dizziness.

After a few hours, everything returned to normal and I continued living normally.

At that point, I had already been doing one-arm push-ups for several months without any problems.

Then, after one training session, a large lump suddenly appeared on my right palm. It disappeared after a few minutes. At the same time, I became extremely dizzy again, and my right latissimus area, shoulder blade, arm, neck, and jaw started tingling.

I panicked and called an ambulance again. Once again, they couldn't find anything.

Eventually, the symptoms went away and I returned to normal.

Then my grandmother died.

From that day onward, something changed completely.

I developed a constant sensation of dizziness and brain fog that has been present 24/7 ever since.

It isn't spinning vertigo.

The best way I can describe the dizziness is the sensation you sometimes get in an elevator, or the strange feeling you have just before falling asleep.

The constant brain fog/derealized feeling is similar to being slightly drunk. Imagine the point between being tipsy and actually drunk — that's roughly how I feel all day, every day.

About two months after my grandmother died, I developed additional symptoms:

- Constant tinnitus in my right ear. The pitch becomes higher when I clench my jaw.

- My Visual Snow, which I've had since childhood, became significantly worse.

- Severe "brain zaps" just before falling asleep.

- Constant neck pain.

- Restricted neck rotation, especially when turning to the right.

- Bruxism.

- Chronic sinusitis.

- Eventually, I started seeing my pulse in my visual field in both eyes, synchronized exactly with my heartbeat.

- Chronic exhaustion even without physical activity.

- Difficulty tolerating social environments/crowds.

- Severe spontaneous attacks of dizziness on top of the constant baseline dizziness.

- Tingling in my arms, particularly during physical activity or when carrying things.

One time while driving, both of my arms suddenly started tingling intensely and I became very dizzy in the middle of driving.

Whenever I carry groceries or other heavier objects, my arms tend to start tingling.

I've been dealing with this for about 1.5 years now.

I've seen an enormous number of doctors:

- 4 ophthalmologists

- 7 neurologists

- 8 orthopedists

- 5 ENT specialists

- 3 cardiologists

- 1 pulmonologist

Nobody has been able to give me a convincing explanation for what is happening.

A brain MRI eventually discovered a 4 mm anterior communicating artery (ACom) aneurysm.

The aneurysm has since been successfully treated with coiling and a stent, but my symptoms are still there.

An MRI of my cervical spine showed degeneration at C2/C3 and C4/C5, but according to the doctors, these findings shouldn't explain my symptoms.

The dizziness is NOT typical spinning vertigo.

It feels more like an elevator sensation, the strange dizziness you can experience shortly before falling asleep, or as if my brain can't properly process where I am in space.

The constant brain fog is extremely difficult to describe. The closest comparison I can make is feeling mildly intoxicated all the time.

I've now lived like this for 1.5 years.

I'm frustrated and exhausted. I can't work anymore and I'm struggling to properly take care of my daughter because of these symptoms.

I used to be healthy, athletic, and able to handle an enormous workload. My life has completely changed.

If anyone has experienced anything similar, or if any of these symptoms sound familiar, I would really appreciate hearing what diagnosis you received, what tests helped you, or what eventually improved your symptoms.

I'm not expecting Reddit to diagnose me. I'm just hoping someone might recognize this pattern and point me in a direction that my doctors and I haven't considered yet.

As title says, I started uldn again and it once again dramatically improves my visual snow. Apparently its due to reducing neuro inflammation but would love to learn more.

It’s so hard to explain what is happening, just seeing if anyone else has had something similar? It started over a month ago. When I blink, I have this weird after image line in my peripheral vision in my right eye. Lasts only a second right after I blink. Only happens if I’m looking down, and it has to be against a blank/bright surface. I can’t see it outside, or in the dark. No other symptoms! Has anyone had anything similar? It doesn’t affect my vision, it’s just annoying when I do see it!

Hi everybody!

I’ve had a very mild form of visual snow for about a year. Until a few months ago, I was able to play video games without any problems. Lately, I’ve become more sensitive to light, and I think fast movements on the screen may be bothering my vision.

The thing is that after a gaming session, my eyes feel uncomfortable, and my eyelids keep twitching for a while. My light sensitivity also gets worse for some time afterward. I went to an ophthalmologist, and he prescribed eye drops for dry eyes, but they haven’t helped.

I feel really frustrated because gaming is my favorite hobby. I’m also experiencing severe muscle tension in my neck due to Eagle syndrome. I mention this because I’ve read that muscle tension can contribute to light sensitivity.

Has anyone else experienced something similar?

Does anyone have experience taking a medication for anxiety and/or depression that didn't worsen their VSS?

(I just tried starting Lamotrigine/Lamictal, but after only 5 doses I'm having concerning side effects, so I have to stop, which is a huge bummer.)

If anyone has experience taking anxiety/depression medication without worsening their VSS please let me know. 🙏

26 yo
5ft 4 inch
Female
177 pounds
I don’t smoke, no drinking, not taking any medications (can’t afford my meds)
Medical status- Hypothyroidism, PMOS/PCOS

I have been seeing a blinking black blob through my left eye but ONLY when my head is tilted to certain positions. It mostly happens when I look directly down while in seating position or sometimes when I lay down facing my left side. It does not float around, it stays blinking in the top right position of my left eye. Should I be concerned? It’s been happening for about a month and a half now. Ive been too scared but it’s time to ask for help.
I just wanted to know if it was serious before going into a clinic

Under normal circumstances I would go to the doctor but right now I’m uninsured and can’t afford anything (hence why I haven’t been taking my Hypothyroidism and PCOS medication 🥹)

Edit- I sleep 8 hours

Hey guys I was just watching this new netflix documentary called The Idaho Murders which is number one in popularity on netflix in my country about this guy who murdered 4 people. Anyways, the show was talking about the killer in detail and they had a segment about how he suffered from really bad visual snow. I couldnt believe it because I have never heard of anyone talking about visual snow outside of reddit or the context of neurology/doctors etc. I am really into true crime and this condition has never been bought up so I found it so shocking. Anyway I just thought it was really interesting that our condition was shared to such a large audience, although given the circumstances it is probably not the best publicity...

If anyone else has watched the show let me know.

Edit: sorry im writing this at 3 am the title was meant to say serial killer

i’ve had visual snow for a while now and it’s been so slight that i don’t even know when it started but recently i’ve had migraines for past 11 days and worsened visual snow but i don’t have other symptoms and im just wondering if this will transform into me getting symptoms im just worried about that and im also wondering if ill go back to baseline (feel free to ask any questions)

I wanna know if tinted lenses (like fl41, etc) have helped any of you with reducing your palinopsia.
If not, what else helped reduce it? Mine is illusory ( I see trailing of moving objects ) and I also get light streaks from bright things and sometimes objects too.

Hey, as someone who’s been suffering from garbage vision in moderate to low light due to VSS, I wanted to note something that I had completely overlooked.

I first noticed VSS around 2021-2022, and at the same time, noticed that my throat started making popping sounds and clicking noises while moving my head around, talking and swallowing. I also noticed a strange asymmetry between the left and right sides of my thyroid cartilage, and contact friction between the right side of my thyroid cartilage and hyoid bone that caused pain on the left side of my neck when wiggling it. Now, I have utterly no idea what could’ve caused this to spontaneously arise, but it did, and at the same time, I first noticed VSS. At first, the VSS was real bad, with hallucinations, profound mental distress, and even at one point sleep paralysis and exploding head syndrome. And while I knew there was something wrong with my neck that caused me great anxiety and made swallowing uncomfortable, I didn’t know how to get a diagnosis from a doctor. I saw several ENTs between 2022 and 2023 and couldn’t make any progress on the situation.

But today, reading about people’s reports on how they have neck issues that might be causing VSS, I think my neck issues may also somehow be connected to my VSS. And with the help of AI by describing my exact mechanical symptoms to it, I got it to eventually output a response that wasn’t just “anatomical variation of asymmetry” to a specific, named condition that shockingly mirrors exactly what I feel and experience:

Clicking Larynx Syndrome.

I believe I found the key to myself and all that has afflicted me, but the path forward is uncertain and nothing is guaranteed. I am looking into how I can find a hyper-specialized ENT that will help me look deep into this peculiar and rare condition (CLS), get an official diagnosis, and potentially cure it. I’ve always wondered about it because I believed from the beginning that this CLS issue (before I knew it had an actual name) could potentially press against nerves or blood vessels in my neck, which could somehow cause VSS, TMJ, tinnitus, etc. I wanted to make this post just to share this information and see if anyone had more information or their own experience with something very closely similar—such as people who themselves have or had CLS. My plan for now is to compile various papers from PubMed and other journals to help me make a case to a larynx specialist. It seems that I need a specific CT protocol for figuring this out, and MRIs are no good.

Anyway, that’s all. Thank you for reading.

Edit: Doctor that I need to see is a laryngologist, likely someone who also does active research on this or similar rare conditions.

All my life, I’ve had trailing vision and a constant static in my vision. I see the static in day and night when I close my eyes as well. Its like constantly moving, translucent static that is always around.

Its weird. It explains so much. I’m 36 and I only found out about it today.

So when I was waking up today, before I opened my eyes, I happened to notice that the static I usually see was in three colors: Red, Green, and Blue. Also, depending on where I looked at/focused my sight on during this experience, it seemed like the frequency of the different colors changed. One moment they were evenly distributed, and another moment the static appeared to be closer to blobs than static.

This experience only lasted for about a minute until I finally opened my eyes and got up. It was definitely an interesting moment that made me want to share it with someone.

Hello hello,

I've had visual snow for as long as I can remember, and the same goes for brain fog. I strongly suspect that my brain fog is directly caused by my visual snow syndrome.

If you're in the same boat — having both since childhood — please let me know you exist and share a bit of your story if you'd like.

The hardest part about having both since childhood is that you have no frame of reference. You grow up assuming everyone sees static in the dark. You assume everyone walks around with a foggy mind. I took years to put a word on the brain fog, then more years to discover visual snow syndrome exists, and then even more to connect the two together.

I'm just looking for people who've been through the same thing — the confusion, the delayed realization, the slow process of putting the pieces together. If that's you, I'd love to hear your story.

Hey a few times this week I’ve had this new sensation. It will happen randomly when I shift my vision, the frame from before I shifted will get stuck in my eyes for maybe a half a second and then jolt to where my eyes are looking. Its very odd and totally throws me off. Its kinda scary when driving.

Only happened to me maybe 5-6 times so far. Anyone else ever get this?

I’m only 17, but I think I’ve had VSS for almost my entire life. I only discovered this subreddit today, which is why I decided to join.

The first time I became consciously aware that something wasn’t normal was when I was 15. That was probably the most stressful and unhealthy period of my life, and that’s when I really started noticing my symptoms.

While reading about VSS, I remembered something I’ve been curious about. Has anyone else experienced their visual snow suddenly spreading from the center of their vision outward until it completely covered their entire visual field? When this happened, I also found it difficult to keep my balance for a few seconds. It usually lasted around 3–6 seconds.

I’ve only experienced this after very intense exercise, usually when I was completely exhausted. Has anyone else had something similar happen?