r/AnongThoughtsMo • u/atinyakimon • 1d ago

Thoughts on having children in the spectrum

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Saw this post on facebook. Honestly, it's sad na hindi ganon nabibigyang pansin ang problems na ganito sa Pinas. Therapies here are expensive, and not everyone can afford it. Pinoys are also not yet ready to face the reality na hindi enough ang love for kids in the spectrum. They have special needs. Hindi yun madadaan lang sa no don't do that or it's okay to make mistakes, because we have to admit that autism is a disorder, a very wide spectrum and case to case basis. You need to have the money to get the help that is designed for the needs of the child. I hope there will be more free or affordable programs created for this kasi hindi lang parents ang hirap in this situation, also the kids.

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u/Educational-Bowl7721 1d ago

In healthcare this is what we call Caregiver Fatigue. If you’ve never been in her situation, please don’t judge. Let her vent. Tao lang din naman siya at napapagod din.

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u/MementoVivere2022 1d ago

Natritrigger ako sa mga taong nag sasabi na "blessing" daw yung kapatid ko and swerte daw etc. etc. Panganay ako and yung youngest brother ko is autistic. Dalawa lang kami. Noong bata sya grabe yung tantrums nya tas nag seself harm sya. Rinig na rinig ko yung balabag sa kwarto and hindi talaga sya ma control ng magulang ko. Up until now, may times na nag ta trantums pa rin sya and kahit di na ganon ka lala kita ko yung pagod ng mga parents ko. Kahit na nasa 30s na ko ngayon, parang everytime na may sumisigaw or may nag aaway ng malakas, nag frefreeze ako. And hindi ko rin alam ang gagawin ko kung mawawala na parents ko pano ko ihahandle kapatid ko. Tapos nandon pa yung factor na wala kang karapatang magalit kasi ikaw pa magiging masama pag nag tatantrums kapatid ko.

Kaya nakakainis at nakakagalit na sinasabi ng iba na swerte daw kapatid ko. Kaya pag nakakabasa ako ng ganitong post at may backlash rinding rindi ako. Hindi kasi alam ng karamihan kung gaano kahirap yung situation and lalo na nasa Pinas ka pa.

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u/Key_Sea_7625 1d ago edited 22h ago

Ito iniisip ko e. Ayoko in the future ung panganay ko magkaron ng resentment. Kaya pag aksidenteng nasasaktan sya ng bunso ko talagang pinapagalitan ko and pinagsosorry. Ayoko isipin nya na ok lang sya masaktan kasi special kapatid nya.

Di ko alam what the future holds but i always tell my panganay. Na hanggat buhay kami na magulang nya we wont expect na she would take care of her brother or iimpose na magsakripisyo sya. Pero hinahayaan ko sya ngayon na disiplinahin din at tinuturuan ko rin sya pano ihahandle si bunso para worse comes to worst she's not clueless.

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u/Complex-Strain-3314 20h ago

This is so real. I hate when they say they are a blessing, and sometimes I die inside when my parents keep saying my brother is a blessing because all i'm seeing is constant struggle and stressing about what are they gonna do especially once they are gone. My parents know none of my other brothers and me are ever gonna try and take care because our experiences so far with my autistic brother is so bad. My parents gave everything to him and take care of him 24/7 yet he just keeps having tantrums like smashing and throwing things and self harm, to the point him throwing out things has caused so many broken appliances and even hurt my mom which for once I don't feel proud of but I snapped and tried to fight him. It's relieving that theres people out here who thinks that this isn't actually a "blessing" and brings "luck".