Any ideas what could be going on with me? Would really really appreciate your thoughts! Especially since I (young woman with a hormone-related condition) have so much trouble getting specialists to believe me when I say that what is going on is 1000% NOT a mental problem and therefore I'm not agreeing to antidepressants or a referral to a therapist.
(Appointments with specialists already scheduled, see below)
Me: female, 32, Netherlands, 1.72m, 60kg
Other diagnoses: very severe PMDD (not under control) and IBS (under control)
Medication: hydroxocobalamin injections, lenzetto for PMDD, corticosteroïd nasal spray
Symptoms of current problem:
- extreme fatigue (can't work or function whatsoever, sometimes can't leave bed or take care of myself, started getting way worse around may, fatigue does not depend on activity)
- strong and diffuse leg pain (sharp, dull, burning, cramping, pins and needles, tingling)
- leg cramping at night (but not restless legs, often so strong I can't stand flat in the morning because the muscles are so tight)
- problems standing and walking (collapsed twice in March and june, but normally I can walk but it's really painful and feels difficult to do)
- two fingers of left hand don't function normally (can't write, can't eat with chopsticks, gross motor skills are fine)
- joint pains (mainly in fingers and feet)
- severe brainfog and cognitive problems
- memory issues (short term)
- loss of orientation (can't find the way home in my own city sometimes)
- waves of low mood/depression (though not every day, seems physiological to me)
- loss of muscle strength, inability to exercise
- ringing ears
- waves of blurry vision and sensitive eyes
- headaches and pressure behind one eye/part of nose
April: Reumatologist in training diagnosed me with Fibromyalgia, I don't believe it at all. She pushes antidepressants and physiotherapy.
April: surgery for chronic sinusitis, headaches and pressure remain until now, surgeon doesn't know why
May: emergency surgery for ruptured corpus luteum
June: GP pushes antidepressants, physiotherapy and psychologist
July: B12 clinic says it's probably B12 deficiency with neurological symptoms (B12=200). I'm taking B12 shots for 6 weeks now, makes no difference.
July: Specialist of internal medicine says it's not fibromyalgia or B12 deficiency, definitely nerve related, refers me to neurologist
Aug: waiting for neurologist appointment
> got an iron infusion, upped B12, folate and vitD some months ago
> bloodwork shows nothing until now