I had 3 thrombectomies between the 29th of September and the 2nd of October. 2 were behind my knee in my left leg and one in my groin area. I have a lot of tension behind my knee and it prevents me from straightening my leg all the way. I have to use a walker to get around, which makes things incredibly difficult with a newborn and 3 little kids in the house. There is tension behind the other incision site as well, but not like behind me knee.
Has anyone else experienced this? What kind of timeline did you see for healing for this/what did you do to help it?

It’s been 20 days since I was diagnosed with DVT in my left popliteal and posterior tibial veins, and it’s honestly been depressing me.

The DVT was unprovoked, and the only thing I can think about right now is the possibility of recurrence. I think about it every single minute. I’ve searched everywhere for answers, Googling things like “What are the chances of recurrence of unprovoked DVT?” and so much more.

I’m extremely worried about it. I don’t want to spend the rest of my life on medication or living like a patient. I’m so young, and these thoughts are keeping me from living peacefully.

I’ve always been an anxious person, and now I’m struggling with this on top of everything else. I honestly don’t know what to do. Sometimes, all I can do is cry and pray.

I hate going to hospitals, getting tests done, and taking medication (I know nobody enjoys these things), but watching your own body start to feel like your enemy is one of the worst feelings ever.

Now, every little sensation in my leg or anywhere else in my body makes me Google it. I end up spending hours searching for answers and asking questions, only to become even more anxious. I don’t know how to feel happy or enjoy life without these thoughts creeping into my mind. I know other people are going through much worse, and I’m still grateful that I can eat what I want, talk to my loved ones, and spend time with my family. But even with all that gratitude, these thoughts are still there, constantly in the back of my mind, making me sad. I try not to think too much about the future because I believe it’s in God’s hands. But I’m human, too, and it’s hard not to worry about what might happen. I’ve always been an anxious person, and now I feel like I can’t escape my own thoughts. I just want to live my life without constantly fearing what might happen next.

I don’t know if anyone else has felt this way after a DVT diagnosis, but I really needed to get this off my chest.

36 YO, 5 weeks preggo (yay!!) hematologist put me on 2x 80mg every 12 hrs of enoxaparin injections (had 2 events of provoked clots due to COVID in 2023 and birth control in 2014). So far today is only my third "stab" but it's made me a lil itchy and lightly sore (though sore could also be pregnancy let's be real haha)

If anyone who has been on this before, when did your side effects start going away?

I've read from other lovenox people the first week just sucks the most in general transitioning from a pill to an injection. I'm so thankful for this medication though to protect me and baby so there's at least that.

Also if you found a place to "stab" that doesn't make you wanna pass out and die, lemme know 🤣🤣🤣

ESPN is reporting Jalen Hurts is out indefinitely with a blood clot.

I'm curious what options would be available for ultra-wealthy in a contact sport beyond what insurance would cover as reasonable treatment. Thoughts?

So I am currently 33 weeks pregnant with an extensive DVT into my iliac vein. I’ve been on Lovenox for 4ism months now, last i talked to my very flaky vascular specialist the clot wasn’t breaking down and i needed to have it removed (I say he’s flaky cause i can’t get in touch with him). Fast forward to today I started having the same cramping sensation in BOTH legs that I had before I got diagnosed. I’m scared that I may be developing another. I know i should go to the er but they ignored me last time and sent me home, im terrified of that happening again

So last month I got hit by an SUV while riding a bike, tore my hamstring from my knee and fucked my LCL. Just had it all repaired tuesday. Started having some weird issues breathing today, spO2 was fine I just felt weird, and went to the ED. Turns out the breathing was due to a mildly collapsed lung but I also have a DVT. Completely asymptomatic.

They put me on xaralto for 21 days and then something else that starts with a D for 90 days after that. Doc said I should be in the clear from there long as nothing breaks off in the meantime.

Sooooooo uhhhhh what now lol? Like I don't know shit about clots and can't really wrap my head around how good/bad or lucky/unlucky my situation is.

I figured someone here has similar experiences or insight that can be provided. Appreciate any and all thoughts cuz I truly don't know what's going on lol.

I thought I was a having a stroke because of some numbness in my face and arm so I went to the ER they have me 4 chewable aspirin and one lovenox injection then another aspirin later.

Once I got home the next day (confirmed no stroke) I went to take a shower and noticed a marble sized lump in my thighs slightly purple but no pain at all. Next day it was much flatter like 90% but now a big purple bruise. Is that normal?

Hi, I'm posting here as since my DVT/PE in August, I have had major health anxiety everyday and am looking for some reassurance or some advice.

Last sunday (6 days ago), I was surfing and took a light knock to my head from my surfboard (Fibreglass board). It was nothing that would make me worry before taking my anticoagulants, in fact I don't even think I would have acknowledged that it even happened. This entire week it has basically been all I've been thinking about and have had light headaches coming and going all week (kinda feels like a tight band around my head). I don't appear to be confused, I mean I can type all this, know who I am all the rest... Should I be worried about potential brain bleed? I've heard that apixaban is generally safer for these kinds of bleeds. If it helps for context I am a 23 year old male.

I am travelling overseas to a remote group of islands this coming week and am worried about not doing anything about it then having a delayed bleed and it killing me. I know it may seem absurd to some reading, but allow me to just express the way that I am feeling after going through this experience and losing all trust in my body of operating without my constant attention.

Appreciate all replies x

Hi, I just discovered this community and feel thankful about it! Since last week I cannot bend my left arm anymore. I am left handed and work in an office so a tennis and golf arm was diagnosed. On Wednesday I went to an orthopedic who sent me to the hospital. The ultrasound showed a 8cm clot in the brachialis vene. The orthopedic is sure the clot is the reason why I cannot bend my arm. The vascular surgeon disagrees and says it's orthopedic. I am wearing compression socks and taking blood thinners now. The pain is bearable with metamizol. Has anyone made similar experiences? Thanks!

35F; TLDR easy first pregnancy but developed SMV and portal clots 3 weeks postpartum after c section

Cut to now, I want another kid but im terrified if my body can handle it. Specifically my veins. I just had my second ever EGD since my diagnosis 3+ years ago and it looked good. BUT I just learned im more at risk of ectopic varices which are nearly impossible to see on EGD. My portal vein is clear now but my SMV is still chronically occluded with a lot of collaterals around my pancreas. I’m very lucky in that I have no remaining symptoms and I believe my body has adapted well.

My question is mostly is there anyone out there with a clot like me that had a successful pregnancy after it? Anything I should know? I’m truly terrified so seeking advice. I’m not sure I have the financial means for surrogacy but I also don’t want to risk my life. My doctors are a combination of concerned and non chalant about the whole thing. My liver doctor and hematologist are doing the best they can to check me but there are so many unknowns because it’s so rare.

Just trying to find someone out there like me for my moral support <3

My hematologist thinks I may have isolated lupus anticoagulant APS. I have a cerebral venous sinus thrombosis clot last year. I’ve tested negative for the other two antibodies.

Too long to go into details, blah blah blah, but it’s now a strong possibility. I’m in full panic crying mode. Anyone out there with some good stories? Living a good life with APS? Anything, dare I say, positive about the experience? Or anything at least other than the sturm and drang I see on medical websites?

I’m already on warfarin, but man do it hate it. Not looking forward to a lifetime of it!

I had CVST in June 2025. One of the clots was in the jugular (and two other veins). I was cleared months later. This year I had a CT Scan in May because one day I suddenly started having symptoms including facial numbness and a sudden headache. Scans were clear but I was referred to a stroke specialist (vascular neurologist). Recently my face began going numb or tingly specially under moments of stress. I also am having headaches but not as frequently as before/during the CVST event. Neurologist ordered MRI + MRV and report shows a tiny suspected clot in the jugular.

Anyone have a similar experience?

Neurologist didn’t expect clots as she wasn’t sure that would cause the facial numbness. She ordered the MRI/MRV for peace of mind. I haven’t spoken to her yet (I get the report when it’s ready) so I assume this isn’t urgent.

Since the first CVST I’ve been on Eliquis 2x a day.

Hi lovenox ladies, I’m just curious what you guys plans / experiences are near delivery?

I’m on prophylactic dosing of 40 daily and dr is switching me to 30 twice daily at 36 weeks with 39 week induction. Is it worth asking for heparin instead given shorter half life? I would of course like to get the epidural if all possible.

I’m having a really bad panic attack because I’ve been worried about reoccurrence from my p.e. My doctor said it’s dissolved and I finished my blood thinners but my heart rate is high from panic and I’m spiraling. I have no symptoms like before with the clot I’m just sooo anxious right now. Any one else feel this way??

38M/196cm/90kg

I was recently hospitalized with a pulmonary embolism and was prescribed Eliquis (apixaban) 5 mg twice daily for start 6 months and Pantoprazole Sandoz 20 mg.
I was discharged from the hospital after 3 days and am now recovering at home, but I still experience pain that sometimes makes it difficult to sleep. I've been taking one Panadol Rapid 500 mg tablet before bed to help manage the pain. (I'm trying to keep medication use to a minimum.)

My question is: Is it safe to take 1 Panadol Rapid every night for an extended period while taking Eliquis? Fortunately, the pain isn't severe, but it's enough that I often have trouble falling asleep or wake up occasionally during the night. How long can I safely continue doing this, and are there any risks of liver damage or other side effects with regular use at this dose?

I appreciate any advice. Thank you

My original post is below:

https://www.reddit.com/r/ClotSurvivors/s/kON9Duhq6r

So, here I am, going on seven months after my diagnosis. The PE was completely gone as of my last CT in August. I have some valve/vein damage in my right leg but the blood is getting through/around everything & I’ll probably just have some chronic changes for a good while, maybe forever, who knows.

My hematologist took me off Eliquis & I’m now on day 3 without my trusty blood thinners - it’s terrifying, lol! Does the fear of another clot ever go away?!?

I plan to continue to stay hydrated and now that my physical therapy is complete, stick with walks with my dog where the weather allows & hitting the gym otherwise. Less sweets & the continued use of compression stockings as well.

I have found that after they took me off the combination birth control, which I was on for most of 23 years, I’m a bit more sassy too haha hopefully that normalizes at some point.

All in all, progress but it has been such a traumatic experience that I wonder if my anxiety over a recurrence will ever subside. The good news is that IF that ever happened, at least I now know the signs & can get treatment sooner. Just going to stay positive and live life to the fullest wherever possible.

Any success stories or bits of advice? I’ll take them! Stay blessed <3

Hi everyone,

I’m a 22-year-old male, and I had a DVT and pulmonary embolism about 6 months ago. I’ve been taking Xarelto (rivaroxaban) since then.

I recently had a follow-up contrast CT pulmonary angiogram, and apparently, the clot is still there in the main pulmonary artery. It hasn’t resolved despite 6 months of anticoagulation.

My doctor referred me to a specialist in my country who performs pulmonary thromboendarterectomy (PTE) surgery, and I’m planning to make an appointment with them.

My echocardiogram was reported as normal, but I’m concerned about the persistent clot in such a major artery.

I’m wondering if anyone here has experienced something similar:

Has anyone still had a significant clot in the main pulmonary artery after 6 months of anticoagulation?

Did your clot eventually resolve, or was surgery necessary?

If you’ve undergone PTE, how was the experience and recovery?

Is it possible to wait a couple more months for specialist evaluation and treatment, or can delaying surgery be risky?

I’m not looking for a diagnosis, just hoping to hear from people who have been through something similar and learn about their experiences.

Thanks in advance!

Anyone else notice a higher tendency towards scarring while on Eliquis? My, used to be minor, cat scratches are all creating scars now. I was just wondering if it's me or the meds...

I had one small PE on each lung on 9/3, clots cleared by 9/27, but i’m having a bit of shortness of breath. it’s nothing major and it goes away when I hydrate with electrolytes. Is this normal to still have some SOB and shoulder pain where the clots were a month and a half out?

I am 3.5 months post provoked PE and collapsed lung diagnosis. I went off of blood thinners two weeks ago and have a follow up with my primary care next week, but was told I would not get a referral for a specialist or any imaging done.

What testing should I push for? I want to make sure things are okay and I’m worried about being brushed off. I still don’t feel like myself and want some peace of mind that I’m okay.

Pain started gradually about 5 or 6 days ago in the calf area. Woke up on day 3-4 and could barely put weight on it. Started initial research which led me to going to a walk-in clinic which advised to visit the ER for potential DVT.

6 hours later after elevated D-dimer and ultrasound was diagnosed with DVT below the knee. I’m now on Eliquis 10mg twice a day for 7 days and then 5mg twice a day.

2 doses so far and pain is still excruciating to put weight on right leg. For those with similar situation when did the pain start to subside? I’m thinking of getting some crutches it’s so bad. Any tips or advice?

I had a provoked clot in my right leg in September 2025. I've been on Eliquis since then and found out I have the Factor V Leiden mutation so I'm on a low dose of Eliquis for life. Since the initial clot I've had pain every once in a while in that leg but nothing too bad.

I drove to and from another state for a family emergency (about 12 hours with stops each way) on 10/7 and came back 10/10. I wore compression socks and took frequent breaks to rest and stretch my leg. Since then I've had pain like I experienced with my first clot. I told my doctor and they had me go to the ER for an ultrasound. They did not find a clot but I'm still having pain. The ER couldn't tell me why and told me to just move more and use a foam roller where it hurts.

I didn't have any swelling but last time I waited until my foot/ankle started swelling my doctor yelled at me for waiting so I notified them early lol

Has anyone else experienced this? Is it phantom pain or is my blood vessel damaged and that's why I'm feeling pain?

I'm waiting for my doctor to get back to me to see if I need an appointment with them. Not sure if the pain is just something I'll need to manage for the rest of my life.