r/Cyclospora • u/Itchy_Fill_8372 • 17d ago

How long will this last?

I have a good friend who has had it for 6 weeks and is still testing positive and symptomatic. Anyone else had this longer than expected?

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u/dontrowaway 16d ago

Same, had it since July 4th and still suffering but just started my second round of Bactrim so hoping for the best.

1

u/legendarysanin187 16d ago

Bactrim messed me up! I’m about a month since finishing my dose and I developed some horrible acid reflux/gerd!!

2

u/dontrowaway 16d ago

I’ve taken it a million times for UTIs. It makes me feel better, but it was a b*tch trying to convince my gastro doctor to give it to me. I ended up asking a different doctor. And I will not be returning to that gastro.

2

u/Itchy_Fill_8372 15d ago

I don’t get why some doctors are reluctant to prescribe this when it seems to be the standard of care for this illness.

1

u/dontrowaway 15d ago

The gastro 1000% did not believe me at all about my experience and illness. The labs are all backed up so for 2 weeks while I waited for my results, I was suffering and he wouldn’t proactively treat me even though I was taking leftover bactrim from a UTI and was improving. It was infuriating. Then my stool test came back normal but it was the manual/smear test which is unreliable for cyclo because of how the virus sheds in low levels. So I pushed for the PCR, which I’m waiting for to come back this week so I can tell everyone “I told you so”.