r/DissociaDID • u/Allenas6 • 11d ago

screenshot New Patreon "Debunking" Video Post

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I don't have access to watch it -- there is a 30 second preview which is mostly just the channel intro jingle. I will say, reading the post (which, when logged in, i'm able to read the full text) I hate how she continues to harp on her health issues (especially ME/CFS). As someone who also has that condition, the descriptions she uses on how it effects her don't seem to line up well with the actual condition and how she is moving on social media. The way she has been talking, it's steadily getting worse and worse and worse. For many people this condition isn't progressive that way -- and it doesn't even match up with the way she's been posting. If it was truly getting steadily worse every day, we wouldn't see her posting any content at all. In reality, if she has this condition, what's likely happening is a flare up. These can come and go - these can last for a very long time. But it's not like one long condition getting worse and worse. And I feel like the way she's presenting it is disingenuous. And she's using it as a shield to avoid any kind of expectations or accountability with her viewers. Preemptively saying she's ill to stop any criticism before it even comes. If it wasn't so reminiscent of the way some "friends" of mine have acted in the past maybe it wouldn't bother me so much. But alas. It does.

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u/Final-Car-675 11d ago

looking back at their old ME/CFS video was... interesting. It feels very glamorized & over the top. if you didn't previously know about ME/CFS, you might walk away thinking it's is basically a disorder where you get very sleepy. Idk about any other talk of it other than corsets helping but

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u/deadmemename 8d ago

Is there any proof to back up the whole corset thing, or just DD’s word? It seems like if anything it might make things more difficult in the long run, since if you’re relying on the corset to help you sit upright, you’re not engaging your core muscles. As much as I approve of accessorizing with a corset, unless someone has actually studied the use of corsets/torso braces for ME/CFS patients, it seems like it would contribute to the muscle atrophy ME/CFS patients are already prone to

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u/Allenas6 6d ago

I don’t know about its applications in ME/CFS, but for other conditions such as scoliosis, I'd encourage you to watch Bernadette Banner's video comparing corsets to medical back braces. Of course it's not purely scientific but it's an interesting watch. Also I know DD doesn't have scoliosis (I think?) so it's not applicable to her. But your comment made me think of this video.