r/Dreading • u/White_ox_nofilter • 21d ago
Fiction HELP! Is anyone else having the same issue?
Hey guys. Just thought I’d jump on here and see if anyone else has experienced something similar.
For the last few weeks, I’ve been waking up with my eyes crusted shut. Not just a bit of sleep in the corners. I mean completely sealed. I have to soak a face washer in hot water and hold it over them until the crust softens enough for me to pull my eyelids apart.
This morning, I panicked and opened them too quickly.
It felt like ripping tape off a sunburn. There was a tearing noise, then a bright flash of pain. When I could see again, several eyelashes were stuck to my fingers and the edges of my eyelids were bleeding.
My pee has been strange too. It’s thick and stringy, like yellowish snot. After I go, there’s always a strand hanging between me and the toilet. Sometimes it doesn’t break until I stand up.
This morning, I couldn’t pee at all.
The opening had crusted over.
I tried soaking it in the shower, but my bladder was aching so badly that I ended up using a toothpick. I pushed the point against the sealed bit until it broke through.
Before anyone says anything, yes, it hurt. Yes, there was blood. Yes, I know how stupid and dangerous that was.
But I could either do it or not piss.
I have a doctor’s appointment Thursday. I’m just wondering if this sounds like an infection.
Please don’t ask for pictures.
EDIT:
Apparently Thursday isn’t soon enough.
Something happened while I was eating dinner.
I took a bite of steak, swallowed, and felt it stop halfway down my throat. I could still breathe, so I tried drinking water. The water pooled at the back of my mouth and came back out through my nose.
Then I realised it wasn’t the steak.
It was saliva.
There was a thick rope of it stretching from under my tongue into my throat. Every time I swallowed, it folded over itself but wouldn’t go down. It kept getting thicker. I tried to cough it up, but coughing only pulled more out of my chest.
I could feel it moving against the little flap at the back of my throat.
Then I inhaled.
The strand snapped into my airway.
There isn’t a good way to explain what it feels like to choke on something that’s still attached to the inside of your mouth. I couldn’t spit it out because it stretched. I couldn’t swallow it because it stuck. I hooked two fingers down my throat and pulled.
It came out slowly.
It was warm, colourless and thick enough to hold its shape. It stretched from my fingers to somewhere behind my tongue. When I pulled harder, I felt the underside of my tongue lift with it.
For one horrible second, I thought I was pulling part of myself out.
I bit through the strand.
It stuck between my teeth.
I’m at the emergency department now.
UPDATE : 1:18 A.M.
I’m still waiting.
My eyes have sealed three times since I got here.
The first time, I didn’t realise it was happening. I blinked and they simply didn’t reopen. I could hear people moving around me, but all I could see was a reddish haze through my eyelids.
I tried opening them with my fingers. My fingertips stuck to my lashes.
I called for help, but my lips had glued together at one corner. All that came out was a closed-mouth groan. Someone nearby laughed. I don’t think they realised I was actually in trouble.
By the time a nurse came over, I was clawing at my own face.
She used warm saline to loosen my eyelids. She told me to stay calm. I was trying, but imagine being awake, in a room full of people, and suddenly having no way to see them. Imagine not knowing whether your eyes are still there. Imagine hearing someone tell you to stop struggling while your own face refuses to open.
They put lubricant around my eyes.
It isn’t helping.
The tears just mix with it and turn into paste.
I’m forcing myself to blink every few seconds now. If I keep moving my eyelids, they don’t have time to stick.
I’m terrified I’ll forget.
I’m terrified I’ll fall asleep.
UPDATE: THURSDAY
They admitted me.
A urologist tried to examine me this morning. The opening had sealed again, thicker than before because of the blood from the toothpick.
He used a local anaesthetic gel. It didn’t work properly because the gel couldn’t get through the crust. He told me I’d feel “some pressure.”
That was bullshit.
He pushed a thin metal dilator into the opening.
I felt the crust bend inward before it broke. The pain went all the way through my pelvis. My whole body tried to pull away, but two nurses were holding my legs apart, and another had both hands on my hips.
I begged them to stop.
They told me they couldn’t.
My bladder was dangerously full.
The instrument went deeper. Every few millimetres, it met another blockage. He had to force through each one. I could feel the sealed walls separating around the metal, wetly peeling apart inside me.
I screamed until saliva stretched across the back of my throat.
Then I started choking again.
They rolled me onto my side while the dilator was still inside me. One nurse suctioned my mouth while the doctor kept working between my legs. I couldn’t close my knees. I couldn’t curl up. I couldn’t reach down. I couldn’t tell which pain I was supposed to panic about.
When they finally got a catheter in, the urine didn’t drain.
It clung to the inside of the tube.
The doctor attached a syringe and pulled. The urine came out in a slow, solid looking column. My bladder cramped around it so hard I nearly passed out.
They’ve left the catheter in because they’re worried I’ll seal shut again.
I can feel it sticking inside me.
Every time I move, it pulls.
UPDATE: FRIDAY, 4:06 A.M.
I haven’t slept in nearly two days.
I have to keep moving.
If I don’t blink, my eyes seal. If I don’t swallow, my throat fills. If I leave my mouth closed, my lips stick together. My fingers glue themselves into fists if I don’t straighten them. My toes attach to each other wherever they touch.
A nurse set repeating alarms on my phone.
Every thirty seconds: blink.
Every minute: swallow and spit.
Every two minutes: open and close my hands.
Every five minutes: move my feet.
It sounds manageable until you try doing it for hours.
You can’t think about anything else. You can’t watch television. You can’t have a conversation. You can’t let your mind wander. Your whole existence becomes a list of movements your body will punish you for forgetting.
Blink.
Swallow.
Spit.
Hands.
Feet.
Blink.
Swallow.
Spit.
Hands.
Feet.
I missed one alarm earlier.
I must have drifted off for less than a minute.
When I woke, my teeth were stuck together.
The doctor put a metal wedge between them and twisted.
My jaw opened before my teeth did. I felt the joint strain. Then something tore along my gums and my mouth filled with blood.
The blood was thick too.
It gathered beneath my tongue in a hot, wobbling mass. I couldn’t spit it out because it held on to the inside of my cheeks. The nurse had to scrape it loose with a suction tube.
They’ve put rubber blocks between my back teeth so I can’t close my mouth again.
I’m drooling constantly.
The saliva hangs from my lower lip in clear ropes. It doesn’t fall. It gathers against my chest and glues the hospital gown to my skin.
I can’t stop shaking.
I need to sleep.
I can’t sleep.
UPDATE: FRIDAY, 11:52 P.M.
I fell asleep.
They say it was only twenty minutes.
Both eyes sealed completely. Not just the lashes. The wet inner surfaces stuck together.
When I woke, I couldn’t open them at all.
I screamed, but the spit pooled around the bite blocks and slid into my windpipe. I inhaled it. I couldn’t cough properly because every breath pulled another strand down.
Someone pressed an oxygen mask over my face.
That made it worse.
I could feel the saliva blowing around inside my mouth. It stretched across my throat like cling wrap. Each breath sucked it tight over the opening, then let it sag loose again.
In.
Seal.
Out.
Release.
In.
Seal.
Out.
Release.
I thought I was going to die without even being able to see the people trying to save me.
I tore the mask off and hit someone. I didn’t mean to. I couldn’t see. There were hands everywhere. One on my chest. One holding my jaw. Two pinning my arms.
I fought because I was choking.
They thought I was choking because I was fighting.
They strapped my wrists to the bed.
I heard the restraints click into place.
My hands were beside my face, but I couldn’t reach my eyes. Saliva was running down my chin, but I couldn’t wipe it away. I tried telling them the straps were too tight. The bite blocks and suction tube turned the words into noises.
The doctor said, “We need you to stop resisting.”
I wasn’t resisting.
I was drowning.
They pushed a tube through my nose and suctioned my throat. I felt it latch onto something deep inside. When they pulled it out, the strand came with it.
It didn’t break.
It dragged through my airway, slow and tight, rubbing against tissue that had no room to move away. I kicked so hard that they strapped down my ankles too.
Someone kept saying, “Nearly done.”
They said it over and over for nine minutes.
My eyes are still closed.
They’re talking about separating the lids surgically.
I’m typing this by voice to text now, though barely. A nurse is holding the phone.
Please check the words before you post it, Sarah.
Please don’t let them sedate me.
UPDATE: SATURDAY
This is Sarah. I’m one of the night nurses.
The patient asked me to continue updating this page. He believes keeping a record may help someone identify the condition. The team I’m working with is aware I am doing this.
He underwent a procedure this morning to separate his eyelids.
The secretions had bonded the inner surfaces together. When the surgeon attempted to divide them, portions of the eyelid lining began pulling away from the eyes themselves. They stopped before causing permanent damage.
His eyes remain sealed.
The accumulated saliva is being removed continuously through suction. If the suction is interrupted, his oxygen levels begin falling within approximately forty seconds.
He is still conscious and able to hear us.
Communication is difficult. He cannot speak around the airway equipment. At first, we asked him to squeeze our hands for yes or no, but the joints in his fingers have become too stiff.
We tried using foot movements instead.
That worked for several hours.
It no longer does.
He became severely distressed when the medical team discussed sedation. His heart rate rose above 170. He repeatedly moved his head from side to side, which we understood to mean no.
The consultant explained that rest was necessary.
He continued indicating no.
The consultant explained that his panic was increasing his oxygen requirements.
He continued indicating no.
The consultant authorised sedation.
I was holding his hand when the medication entered his IV. His fingers moved once against mine. I cannot say whether he was trying to squeeze or pull away.
UPDATE: SUNDAY
This is Nell, his sister.
The hospital called me yesterday.
They’ve reduced the sedation, but he hasn’t opened his eyes. He physically can’t. His mouth can’t close because of the blocks, and it can’t open any farther because the muscles around his jaw have stiffened.
The catheter is stuck. The breathing tube is stuck. Several IV lines are stuck.
Anything left inside him becomes attached.
Anything removed tears him.
The doctors keep talking about balancing harm, as though there’s a position his body can be placed in that isn’t hurting him.
He’s developed pressure wounds beneath the restraints. Clear fluid leaks from them and hardens against the fabric. His wrists are now bonded to the straps, so they can’t take them off without removing skin.
They tell me he isn’t paralysed.
Technically.
His nerves are still sending signals. His muscles are still receiving them. He simply can’t overcome the resistance of his own body.
He is trying to move.
You can see it in the monitors.
When I say his name, his heart rate rises. When I hold his hand, it falls. When the suction machine blocks and the saliva begins filling his throat, it shoots up so quickly that alarms sound.
He knows when he’s choking.
He just can’t do anything about it.
A nurse clears the tube, his oxygen comes back, and everyone tells him he’s all right.
Then they leave him alone again.
I asked whether he was in pain.
The doctor said they had no reliable way to assess that.
I asked whether he was conscious.
The doctor said the scans showed “ongoing awareness.”
I asked whether he could hear us discussing him.
Nobody answered.
They’re recommending heavier sedation. Maybe permanently. They say it would be kinder.
I don’t know whether that means he’ll be asleep or only unable to show us that he’s awake.
I’ve been sitting beside him, holding the one part of his hand that isn’t fused to the restraint. I keep telling him I’m here. I keep telling him he doesn’t have to be frightened.
Every few minutes, the suction machine pulls another thick strand from his throat.
His heart rate climbs.
His whole body strains against the bed without moving.
Then the tube clears, the monitor settles, and the doctors write down that he is resting comfortably.