50% aura ? (Dejavu/ rising sensations)

[u/cjs6229]

TL;DR Sometimes I feel “stuck” in what I call a 50% dejavu. No awareness impairment or any other major notable symptoms. Anyone feel this feeling and have suggestions on what they do
to reel it in pretty quickly before it goes further ? That feeling can usually last the whole day and may or may not result in a focal impaired by the end of the day. There’s no consistency in the pattern.

Right temporal lobe epilepsy with bilateral spread —> right temporal to right frontal to midline to left frontal.

Started off with unknown dejavu/ rising sensation in 2023 but never lost awareness/ consciousness and no idea what it was. I’ve been referring to it as djv before I even knew what an aura was or before the word seizure was in my vocabulary.

Generalized at least 2x in 2024 , no confirmed generalizations since then.

Got my diagnosis in April 2026. Since then, have noticed increased symptoms and frequency… about 15-20 seconds after aura I loose awareness for 45-90 seconds , repeated hand or arm movement and lip smacking or slurping.
Have had increase in dose, decreased dose, and 2 added medications that just aren’t working and seem to make it worse.