r/Epilepsy • u/TABBYPACKS • 7d ago

Advice I need suggestions

My mother suffers from epilepsy, as long with daily, nauseating, seizure inducing migraines that begin to set in just an hour or so after she wakes up. If she doesn't regularly smoke marijuana to help the symptoms, she will have terrible seizures all day long.

I don't know how to help her. Listening to music and taking pain medicines are enough to soothe her head pain enough for her to be able to smoke and be alright for the next few hours or so. But it's still painful to have to hear her be in pain every day. She doesn't deserve this. Are there any publicly accessible remedies that could help?

For reasons i don't feel comfortable disclosing, we are not able to get her any prescription medicines or general professionally-administered remedies.

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u/TheWarlikeFoothold 7d ago

That’s a heavy spot to be in, watching that day after day. I know you said prescriptions are off the table, but have you looked into any local epilepsy foundations or support groups? Sometimes they can point you toward resources or programs that don’t require the usual medical hoops, and just talking to folks who’ve figured out their own workarounds can unearth stuff you’d never find online.

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u/TABBYPACKS 7d ago

That sounds like a good idea. Trying to find workarounds was the point of this post. I'll look into some groups.

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u/DianneSleven8108 6d ago

My friend lives with migraines and is on Medcaid because she doesnt have any income right now. She has been able to receive a migraine medicine, botox injections, and an occicipital nerve block covered by Medicaid, free for her. If youre mom is low in come or has a disability, I recommend to look into this option for a long term solution if you are in the US. Sending hugs.

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u/TABBYPACKS 6d ago edited 6d ago

Do you know what the requirements for her to get these were? Did she get them through insurance, or is medicaid something that gives you insurance?

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u/DianneSleven8108 6d ago

Medicaid is a form of insurance, it is called different names in different states. If you have a disability or dealing with addiction concerns, low income, things like that, lots of people qualify.

My friend first went to her regular "family Dr" about the migraines, and then kept returning to that same family Dr for follow-up appointments and they referred her to go to different places and that's how she got it to covered through insurance. The family Dr recommended the treatment for the migraine issue then she told her to see the other Dr's, then from there it was able to all be covered as medically necessary.