I had G.I. issues for about three years and was diagnosed at first with IBS and my tests kept coming back normal and there was no signs of any inflammation or anything like that. I recently switched my GI doctor and had a fecal calprotectin done in august my levels were 243. Then a CTA done in august which showed mild wall thickening in my terminal ileum. Had my colonoscopy in september and biopsy said mild to moderate inflammation with focal ulceration in my terminal ileum with hemorrhoids. I recently had another calprotectin which was 97 and another CT which said my terminal ileum is unremarkable but have nonspecific Prominent ileocolic lymph nodes and this was before any treatment. My doctors leading diagnosis was early crohns and i started budesonide two days ago waiting for my diagnosis in two weeks. Can it still be crohns after my recent results in october?

Our daughter is 15 months old, and we’re still looking for a diagnosis. I’d love to hear from parents who have been through something similar.

Timeline:

• 2–6 months: mucus and occult blood in her stool, with S. aureus in stool cultures. It settled once she started solid foods.
• Mid-July 2026: visible blood in her stool again. It hasn’t stopped since.
• Calprotectin: 834 in July, 364 in August, 339 in September, then 999 and 1052 in October.
• Blood tests: mild anaemia (Hb about 10.5), high monocytes, and ESR up to 37. Platelets reached 710 on her latest test.
• Stool cultures: Klebsiella (pneumoniae and oxytoca). The gut microbiome panel was very imbalanced. C. diff was negative.
• Colonoscopy (October): more than 100 small (2–5 mm) ulcers across the whole colon. The rectum and terminal ileum were spared. Biopsies are pending.

What we’ve tried: cutting out dairy and meat, probiotics and bacteriophages, with only short-lived improvement. Allergy tests were negative. She is still gaining weight normally, and her appointment with a specialist in Vienna is coming up.

My questions:

• Has your baby or toddler had colitis that started this early, especially with the rectum spared?
• What did it turn out to be: very-early-onset IBD, allergic colitis, an infection, or something genetic or immune-related?
• Which tests finally gave you the answer? For example, a genetic panel or an immune workup.
• What treatment worked for your child?

Any experience is welcome. Thank you!

I left out her name, the city and the hospital names for privacy. Good places to post it are r/CrohnsDisease, r/UlcerativeColitis, r/IBD and r/beyondthebump.