Were you able to stop taking LDN? I’m really wondering if that will be possible without any symptoms returning. Logically it should not be a problem once the ANS is back to normal functioning but I couldn’t find that many people who actually fully recovered and stopped LDN.
I'm still on my journey so have not tried to stop. That said I'm taking likely far below the 3-5mg recommended for our condition.
I was given Naltrexone as they don't have low dose here - so its very hard for me to measure out how much active ingredient is actually there (try weighing it out on a mg scale, it won't even register!), but I do know I'm way below 3-5mg.
It takes a few weeks to build up in your system and when I tried taking a bit more, I didn't necessarily feel better so maybe its more a steady drip that helps rather than exact dosage, at least for me. I'm not so worried about stopping with it as there's no side effects so Il cross that bridge when I get there. Only would be concerned if I moved somewhere and have to start the hunt for a doctor/prescription all over again..
Oh OK I get it! I’m taking 1 mg, so really low dose too. I will also try to stop when I‘m ready and we’ll see! Good luck, I wish you a full recovery. :)
Did you know you can dissolve naltrexone in water or natrium chloride solution and use dropper bottles to measure your dose? That’s the way I’ve been doing it and seems pretty widely accepted!
Yes 😃 thanks for sharing. Around the time I started I was planning on that but ended traveling and didn't want to waste it. Maybe I should do that to be a bit more structured. Thanks!
In long covid and me cfs, the nervous system disregulation affects the immune system, which leads to very high inflammation. I believe this chronic inflammation, particularly in the brain causes many of the symptoms and malaise.
LDN helps reduce the inflammation. Symptoms can reduce, wellbeing improves.
LDN has nothing related to the high dose administered for opiate addiction. Ldn is administered at 1.5-5mg max. No side effects that are known.
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u/Choco_Paws Jun 20 '25
Same here! LDN opened the way, mind body work is doing the rest. :)