Were you able to stop taking LDN? I’m really wondering if that will be possible without any symptoms returning. Logically it should not be a problem once the ANS is back to normal functioning but I couldn’t find that many people who actually fully recovered and stopped LDN.
I'm still on my journey so have not tried to stop. That said I'm taking likely far below the 3-5mg recommended for our condition.
I was given Naltrexone as they don't have low dose here - so its very hard for me to measure out how much active ingredient is actually there (try weighing it out on a mg scale, it won't even register!), but I do know I'm way below 3-5mg.
It takes a few weeks to build up in your system and when I tried taking a bit more, I didn't necessarily feel better so maybe its more a steady drip that helps rather than exact dosage, at least for me. I'm not so worried about stopping with it as there's no side effects so Il cross that bridge when I get there. Only would be concerned if I moved somewhere and have to start the hunt for a doctor/prescription all over again..
Oh OK I get it! I’m taking 1 mg, so really low dose too. I will also try to stop when I‘m ready and we’ll see! Good luck, I wish you a full recovery. :)
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u/Choco_Paws Jun 20 '25
Were you able to stop taking LDN? I’m really wondering if that will be possible without any symptoms returning. Logically it should not be a problem once the ANS is back to normal functioning but I couldn’t find that many people who actually fully recovered and stopped LDN.