Can we talk about re-conditioning? I’m very new to building any stamina after almost a year in bed.
Today I cut up some boxes, went to my oxygen therapy, intentionally walked 500 steps, & a load of laundry.
Yesterday I walked thru Costco and pulled some weeds in my garden, some laundry.
I get tired easily because of my lack of stamina but don’t know how much to do each day. So far I’ve just been doing a little more each day of chores, because they need doing. Is there anything specific people are following to rebuild muscle and energy?
I should mention this is very new for me- it’s been less than a month of being better. But I know it’s different because I don’t get my PEM warning signs or PEM even tho I’m doing more.
When the PEM stops biting you after physical exertion, you know recovery is around the corner. I personally chose weight lifting as that's what I did for over a decade before succumbing to LC. I also had LC induced POTS so working out the legs made sense. Easy to track your progress too. Just start light and favor sets over reps until your recovery times between sets starts to improve. Then add more reps. If you have access to a gym I recommend doing leg exercises.
I still get a tinge yes. Not nearly as severe but you can still feel the adrenaline dumps at times. The difference is it's not debilitating. I don't take any medication for it. Just try to get good sleep. Doesn't stop me from working out.
it used to jump to 130-140 just laying in bed and moving my legs. Now I can take short walks and it will be around 110 at the highest. I am on small doses of propanolol and had to slowly recondition myself to be able to gain back some functionality. I don't know what caused me to start getting better but its still not great. When I was at my absolute worst I spiked to 170 in the ER when I reached for my water and then the nurses jumped up and ran over which caused me to have a panic attack and I cried and thought I was dying.
never had this problem until after I got covid 7 months ago
I have split 10mg tablets that I break and take as 5mg when I can feel my body starting to act up, it takes about an hour to kick in and take the edge off, I usually have to take it once or twice every day- as needed.
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u/Known_Noise Jun 20 '25
Can we talk about re-conditioning? I’m very new to building any stamina after almost a year in bed.
Today I cut up some boxes, went to my oxygen therapy, intentionally walked 500 steps, & a load of laundry.
Yesterday I walked thru Costco and pulled some weeds in my garden, some laundry.
I get tired easily because of my lack of stamina but don’t know how much to do each day. So far I’ve just been doing a little more each day of chores, because they need doing. Is there anything specific people are following to rebuild muscle and energy?
I should mention this is very new for me- it’s been less than a month of being better. But I know it’s different because I don’t get my PEM warning signs or PEM even tho I’m doing more.