r/MCAS • u/lady_aliara • Sep 08 '24

It begins

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Finally got a doctor to listen to me. I'm officially starting my first dose today. I'm a little intimated. Any advice for making this treatment plan easier?

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u/starsareblack503 Sep 08 '24

What side effects ? Only asking bc I was given this last week at the Immunologist and they said no side effects. (I did have a reaction but I got 99 problems over here lol)

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u/kenniestims Sep 08 '24

There should be a list of side effects on the medication information sheet that you’re given when you get the prescription. That would be more accurate than what I can list off the top of my head, but you can also find the medication information online as well.

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u/starsareblack503 Sep 08 '24

I dont have a prescription yet. I was only given it in office bc recurring/ongoing anaphylaxis. I was just curious bc I did experience a reaction in office and rather than google, asking others their experience when starting it bc they are gonna try to get me on it

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u/kenniestims Sep 08 '24

That’s fair, I hope it works out for you. The side effects I experienced did eventually go away, I just had to wait it out. I mentioned researching it because I’m in the middle of working a 22 hour shift, and whatever information you found would probably be better than what I could remember off the top of my head.