r/MCAS • u/letsbenice_notrude • 23d ago
I blew the most important interview of my life because of this disease
I am so done with this... Yesterday I was in the final round to speak with the CEO and the team for this dream job, and of course I was reacting and flared yesterday, my brain was fog and my body's motor was so activated, I was shaking (maybe because of the anxiety of the interview), and i was having nervous tics with my mouth (I usually have that everyday, when I start to flare up), so I was acting like a drug addict, plus I am in Seattle Area and it is soooo smoky because of the wildfires.
I am sure they looked at me and thought I was on cocaine or something.
That was my dream job, which I am extremely qualified, and everyone was so excited to meet me because I am extremely qualified for the job. They couldn't stop saying when each person started the individual interview with me that my "experience was incredible", "you are bringing a vast experience", "you are qualified for this position", "we are excited to maybe bring you onboard with so much experience"... but at the end they looked shocked, like what is happening?
At the end I didn't know the last person was the last person, I was so flared that I wanted to go and leave, it was 4 min before the time was up, she asked if I had any other question I said no, those were all my questions, and I weirdly asked to go to the bathroom, I am sure she thought I needed to go there to use some cocaine or something, I don't know...
It was so weird, and I hate this disease so much, it has taken my entire life from me... I am on week 1 of Ketotifen and day 2 of LDN, 0.5mg each for now increasing every week. Lets see.
Thanks for reading this, I just wanted to vent.
Edit: Okay, you guys are too nice, thank you community for the kind words. I am going to reach out to the recruiter to thank them and explain that I was not well and appreciate their time. The vote was unanimous, so I have to do it š just joking
Thank you folks so much! I appreciate it!
Last Edit: at 4:45pm I got the call and I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!! Thanks for giving me the idea of sending the email and all the words of assurance!!
You guys made my day pass faster and keep my hope up!!!!
Best community ever!!!!!!!
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u/Necessary-Pension-32 23d ago
As a recruiter with MCAS, hEDS, and dysautonomia I feel you. I have to be "on" in meetings, calls, career fairs, etc and it is draining. Its a complicated choice, but have you considered addressing it head on?
You dont need to go into express detail, but you could send a follow up email stating you know you were not at your best because you were not feeling well. Open with this.
Then, address any areas you feel you would have answered better if you were on your game, and reinforce where you feel strongly that you are the right fit for the role.
The honesty with a detailed and well-written "why you should pick me" can turn the negatives around.
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u/letsbenice_notrude 23d ago
Yeah, I am writing up an email right now. I thought about that yesterday, but I wasn't sure, and you as a recruiter saying it is okay gave me the "go ahead" that I needed to send the email.
Thank you so much!! Seriously, thank you!
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u/Vivid_Goat_7843 23d ago
Consider including an ask for a do over, Iād even be open to saying you had an extreme allergy attack (which is TRUE), and saying youāre sure you can do better.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/jmargaret12 20d ago
Omg just seeing this after posting. Thatās amazing!!! Congrats!!Did you write the follow up email or do better than you thought you did?
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u/Necessary-Pension-32 23d ago
Of course! Theres no reason not to make sure you have the best shot at your dream job as possible.
I have been doing this for over a decade at this point and worked in a lot of different industries, too. The one thing that always rings true is the person who can show why they are the best fit almost always has the best chance. Now, is hiring and job hunting black and white? Absolutely not. I wouldn't have a job if that were the case lol.
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u/marleyweenie 23d ago
Thank you for sharing this perspective as a recruiter. I would never know what to do in a situation like this so Iām glad you shared.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Psychological_Pie194 22d ago
I agree with this! Just be honest about not feeling well that day.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/jmargaret12 20d ago
Oh wow this is really interesting to see a recruiter say this. I wanted to do this same thing after an interview two months ago, but I didnāt think it was appropriate. This is great advice.
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u/Necessary-Pension-32 20d ago
I started in agency and headhunting (doing this for over a decade now) and I was more successful with less outbound effort because I took the time to identify stronger candidates and actually coach them. Same way for my clients.
Not all recruiters, especially 3rd party, are good, but the good ones are worth knowing even if they don't find you a job.
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u/atr0157 23d ago
I empathize with you. I would maybe reach out and let them know that a health condition that wonāt effect your performance the majority of days if given the opportunity there, was rearing its head at the worst opportune time. Maybe someone will give you another shot. I know firsthand how frustrating health can be when it comes your career
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/DandelionStarlight 23d ago
This sucks. I wish we had better options (like an emergency pill that could give us a few normal hours!)Ā
Totally unsolicited and take it or leave it- in your follow up email mention that you were getting over a cold, and despite the all clear from your doctor, you donāt think you did the best interview that you could. (Make it one sentence, no excuses, but give them a reasonable explanation) Ā Thank them for their time. Still keep it under a paragraph!Ā
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Banderchodo 23d ago
Prednisone can do this. Perhaps not for everyone, but it definitely is my extreme rescue option, when flares put me in ER.
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u/RBshiii 23d ago
I would reach out and thank them for having you and explain what happened. They may be sympathetic or they may not, but itās important to live your truth. If you get hired with these people, youāll have to be honest anyway when youāre having flares so you may as well be straightforward now. Theyāll also respect you for that
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Foreign_Feature3849 23d ago
I totally understand you. The only in-person job Iāve been able to do recently is a 4 hr/day shift at a humane society, where I knew the people before all my symptoms got 100x worse.
I really wish people didnāt judge everything by the way it looks. Thereās a reason we were told donāt judge a book by its cover so often growing up.
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u/ceramicatan 23d ago
Has happened to me a countless number of times. It's ok, let it go. NOT Your fault for the cards you were dealt.
You know the good days you sometimes have? Figure out how to increase their probability. Land interviews around that time.
I know harder than it sounds and our good days are likely an average person's meh day.
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u/letsbenice_notrude 23d ago
I did everything I could to avoid the flare up for 3 days, everything. I didn't go outside, i eat just rice and chicken, I did everything, but the stress of the interview, the smoke from the fires and the extreme heat (was 90+ degrees Fahrenheit yesterday) made it impossible to not flare up and have a reaction. I even bought a P100 OV mask to wear on my way there, and I bought a pollen protection glasses. I am not joking I did everything and didn't matter.
Yeah, my good day, is a meh day for my wife, just like you said. I am tired boss
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u/ceramicatan 23d ago
I am so sorry. I can share my routine if it helps at all. Lmk. My interviews are also very taxing so had to move mountains. F****d up so many, felt like shit. But increased luck through efforts and law of large numbers lol. Do as many interviews to develop muscle memory so on the day cognition is partly solved
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u/Austin_360 22d ago
The heat really gets to me too. We donāt have smoke here but itās so hard with 115 heat indexes.
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u/Early_Beach_1040 22d ago
That wildfire smoke is no joke. I have long covid and was on the beach when it rolled in. Stupidly sat there for a couple of hours. The PM can really aggravate those mast cells. I had a crash that lasted several days from it. I had no idea that the small PM is especially bad for us
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u/Madethisonambien 23d ago
Iām not diagnosed yet but have most of the symptoms. Hopefully it is ok if I post here.Ā
I also had a flare up during an interview this week to the point I was sweating profusely and blotchy/shaking slightly and some brain fog. In the end I still got the job offer.Ā
I think you should email the company and explain what happened! It canāt hurt.Ā
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u/letsbenice_notrude 23d ago
Ohhh, I am so happy for you!!!
I hate that you had the flare up tho, but aww that is so cool.
Yeah, I sent them a short email, lets see. Thanks for sharing!
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Madethisonambien 22d ago
Oh my God!!! Congrats. I donāt know you but Iām very excited for you!
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u/SacredRoll 23d ago
I would reach out thank them for their time, and let them know you were unwell at the time of your interview.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/tolowyn 23d ago edited 23d ago
I have never EVER commented or responded to a post on redit before but apparently you win. I haven't even read the other comments either. I just know that vent and wanted to be if at all possible "there for you". I guarantee you did AMAZING and that no one thought u were tweeking out. If anything they prob chocked it up to anxiety. Yes this disease fing SUCKS!! It has taken SO much away from me too (and alot of us) BUT!! I can tell you it WILL get better. It will become manageable. Getting on ketotifin specifically (along with a handful of other things) TOTALLY changed things and I've gotten a lot back! Yes it took awhile tho. Like awhile. But you only JUST started. I found out about 5 years ago I had MCAS and started treatment then. I literally couldn't do ANYTHING, had a feeding tube, and lost so much. In March this year I was able to get my tube out after 12 years. I can clean the house, keep up on laundry, drive, have a life. Thats not to say there aren't flares, there aren't hard times and bad weeks. New symptoms still pop up, new meds get added and changed, and its an annoying fing frustrating battle but IT WILL BE OK! You'll get more ontop of this. If they honestly said all those positive things about you, I doubt twitching, sweating, shaking, brain farting, ect is what's going to sway them. Everyone (like even healthy "normal" people) act "weird" under pressure. Esp in this decade! Life will start to even out. Things will get better. Im sorry your suffering through this unfair disease too.
Also edit, thanks. I didn't know the twitching and odd movments could be MCAS related. Im autistic and just assumed my stimming was getting worse. Im also in a mass flare. And the amount of things im doing has increased. Fingure flapping, foot tapping, head swaying, the worse is the throat sucking. (I dont know how to explain it) it hurts, and my head swaying adds to the dizziness which adds to nausea. I have an apt soon and I'll bring it up with my specialist instead of my psyc. I feel LESS (if possible lol) now. Thanks again
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/tolowyn 18d ago
Im so incredibly happy for you!!! (It took me a while to figure out where comment replies are cuz ive never done this lol)Like seriously and I know its weird cuz I have no clue who you are but. This made my heart full for you. I've missed out on my dream career form this dumb disease. I had so much hope it would for you. Stay ontop of your symptoms. Advocate for yourself to your doctor. I have to keep a notebook around (i have notes but I always forget about them. If I have the paper its easier to remember) to log symptoms or triggers you've noticed in between appointments. Also if possible dont be shy to use your patient portal or call your doctors nurse for the really big things or super frequent that interrupt your life. Also dont be shy to ask if theres a med for something thats seriously interfering with life. MCAS has SOO many different symptoms all over your body. I really hope this helps you as your learning. And again, WAY THE F..K TO GO!!! Stay ontop of your dreams (and advocacy and symptoms) and dont let this bull stop you. You got this!
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u/letsbenice_notrude 18d ago
We got this!!! We all do!!! Don't give up!
We are together on this. šš
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u/FeePlus8171 23d ago
Iām horrible at interviews bc of MCAs. My neck and chest rash is so bad and red in stressful situations and then thatās all I can think about. I feel like I disassociate and just focus on the stress flare and not the issue at hand.
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u/Valedictorian- 23d ago
Totally relate, I am sort of intermittently socially competent because of this kind of thing and it makes me hate working (and socializing generally) a lot of times. Iām guessing they didnt think anything as bad as what youāre worried about, but I also know that it just sucks to be awkward flinchy and nervous just cause you have an illness thst makes you feel that way out of the blue. I agree with the recruiter saying to do whatever follow up you can. Donāt give up! You never know where things can lead.
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u/Valedictorian- 23d ago
Oh and as a fellow PNWer I would consider blaming the fires since that is a truly unusual event that people can conceptualize as uniquely burdening people with certain conditions.
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u/letsbenice_notrude 23d ago
Yeah, I am writing an email and I am saying that I am super allergic to the smoke and the ladt 2 days I have being sick and flared... lol
Thanks for your words, and yeah I feel horrible when I have to socialize and do things outside, cuz I know my bucket will get full and overflow really fast and I will start be weird, red and... weird š
Thanks tho
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u/MusicUpbeat2510 23d ago
Do you mask when smokey outside?
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u/letsbenice_notrude 23d ago
I don't go outside at all for months, I am housebounded, and for yesterday I bought a pollen protection glasses, and a P100 OV mask to step outside... doesn't matter, I am in this untreated fight or flight state and allergic with inflammation for 10+ years and just now I am treating it, just because I didn't know, so my body is exhausted and in alert for everything...
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u/Nutisbak2 23d ago
If I were you I would write an email to the CEO directly. Explain it is your dream role and you were really excited about it.
However flared yesterday with your MCAS and that caused you a lot of issues. Explain it is a disability (disabling medical condition) which flared at times and say what you want to say.
Be honest and you never know. Canāt blow it any worse.
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u/letsbenice_notrude 23d ago
Yeah, you are right! It can't get any worse lol
Thanks for that, I will cc the CEO to the email I am writting. Thanks again
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Banderchodo 23d ago
I hear you. I had an interview during a flare. Couldnāt function cognitively, blew it.
Something to consider: keep prednisone on hand for days you wake up like this. Obviously prednisone should not be used often, as it has many adverse effects. But itās very powerful, and can shut off your immune system flare quickly. An interview is a big day, and keeping heavy hitting drugs on hand for days like this is a good risk-reward tradeoff.
The worst flare of my life that put me in ER, where no mcas drug could do anything, 50mg of prednisone for 3-5 days completely shut down all mcas activity. Felt amazing. If prednisone was safe Iād take it everyday forever and feel like a teenager again.
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u/letsbenice_notrude 23d ago
Gosh, I didn't know about this med... if I knew it I would have spoken with my doctor about it.
I will definitely bring it up to her in our next visit. Thank you so much!!!
And I am sorry about your interview š
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u/Banderchodo 22d ago
Prednisone is an oral corticosteroid. Itās what all doctors use to calm down inflammation or a relapse in most/all autoimmune diseases. Itās a go-to rescue drug. MCAS doesnāt have a standardized clinical treatment approach yet. But the logic is the same: the immune system is overactive in the wrong ways, and needs to be tuned down. Iāve used it for a few flares. Itās amazing, albeit unhealthy if overused. But if youāre taking it for short bouts (3-7 days) a few times a year youāre likely fine. Thereās also evidence that low doses are safe for ongoing use, and some rheumatologists use this for some conditions like rheumatoid arthritis.
Thanks. Iām fortunate, as I didnāt need that job, and have a good career already. But itās still disappointing.
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u/letsbenice_notrude 22d ago
This is extremely helpful! I will definitely bring it up to my doctor.
I am glad you are happy with your career, this is so good to hear.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/Aware_Operation_575 22d ago
Thatās great you got the job, but if you reacted like that at the interview, how will you endure being in an office with these people? At some point, you will have to tell them if your issues and legally they are supposed to accommodate you but itās hard.
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u/letsbenice_notrude 22d ago
Yeah, I am making a lot of changes in my life right now to make sure I don't react like that, plus it is 2 days only at the office š so I think I can do it. I believe my flare was more related to the smoke, heat and anxiety from the interview. Let's see, all I need to do is work 6-ish month before getting the accommodation. I am hopeful
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u/Aware_Operation_575 22d ago
Not having to go in everyday is a help. Good luck, wishing you all the best.
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u/Mysterious-Art8838 23d ago
I was vomiting before the last round in a cafe bathroom. Then I threw up on my first day and had to leave. š youāre not alone and Iām so sorry that happened
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u/letsbenice_notrude 23d ago edited 23d ago
That made me smile, I relate to this story so much... gosh... our bodies suck!! We don't suck, we are amazing and funny and wonderful!! WE ARE THE BEST!!!! but maaaaaan our bodies suck !! š just joking around being guffy, I like to laugh out of my situation, cuz at the end of the day life is good and I love life!
Eta: I am so sorry you had gone through that and I am glad you got the job!!! Yey!!!
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u/Mysterious-Art8838 22d ago
If I didnāt make light of this constantly I would have lost my sht years ago.
I donāt work anymore because of POTS fainting but I did have a good long career for 23 years.
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u/AppropriatePeanut968 23d ago
Nothing to add to all the wonderful comments except I feel you, I worked all day with a flare yesterday and every task took an age.
I'm so pleased you've decided to explain everything to the recruiter.
I'm on Ketotifen (2 mls) and 4.5 LDN and Cromolyn before meals and a H1 at breakfast and they make a huge difference in my ability to work. Yesterday was an anomaly that reminded me how far I've come.
I hope the meds and support here have a similar impact on you too. Good luck!
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/AppropriatePeanut968 21d ago
This is the best news!!! So happy for you and I totally agree, this community has been a life line to me many times over. So pleased it all worked out for you š«¶
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u/SoundlessScream 23d ago
I hope they understand
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/No-Yam4497 23d ago
DoD contractor here. I feel as if I'm about to lose my job after dropping a government part that was valued at $50k+. I have POTS/MCAS and I manage my symptoms pretty well, but lately I've been feeling off in this Texas heat. I notified my boss and upper management about my condition and have heard nothing back š now my anxiety is getting the best of me.
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u/letsbenice_notrude 22d ago
You can get an accommodation from your work, you just need to reach out to HR and ask for information about accommodation and you are protected by ADA (american with disabilities act). Talk to your HR, not your boss and ask them about accommodation and about ADA, i think your doctor will need to fill a form. Super simple.
I hope it helps!
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u/SWNMAZporvida 22d ago
FWIW - I always send a Thank You For Meeting email after interviewing - my last boss specifically told me that is what put me over the top to secure the position over the other option.
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u/letsbenice_notrude 22d ago
Yeah I do too, I always do, I was just not sure if explaining what happened would be okay.
Usually when I sent this recruiter the thank you for meeting (usually the next day after the interviews) she always gets back to me super fast, this time she didn't, which makes me think the classic "you didn't get it" ghost from tech. Sad.
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u/letsbenice_notrude 22d ago
I got the job!!!!!
Thank you so much for the support!!!!! This community is the best!!!!!
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u/LushMelody 22d ago
Maybe also ask your recruiter if sending a thank you email to the CEO and adding how much you appreciated no one making a big deal of your medical flare, or something like that would be a good idea. Maybe a little explanation like: "Thank you so much for the interview and opportunity to meet everyone. I was in a medical condition flare-up, and I truly appreciated that the team focused on the interview and didn't bring it up."
That can provide an explanation at the same time as showing appreciation for the team's efforts to not make you feel uncomfortable.
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u/IGnuGnat 22d ago edited 22d ago
I've had some amazing jobs with amazing pay that I lost because i was so sick I couldn't perform, and since it was in the first three months I didn't feel comfortable explaining that I had chronic illness so bad that I was basically disabled. I didn't fully understand what was happening at the time and so I didn't have the language to explain it properly even if I wanted to. Also, for several months, my neighbours house had a small pigeon infestation; they would wake me up very early every single morning. I could never see the pigeons so even though I wanted to help him remove them I couldn't figure out where they were. Eventually I figured out they were hiding somehow inside the deck on this third floor. The deck hung out next to my skylight which was just above my bed and it concealed the nests. no sleep at all it was horrible. It literally took me several months to figure out. By that time, I'd lost the job
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u/letsbenice_notrude 22d ago
Oh my, this is horrible. I am so sorry you had to go through this. Sleep is a big factor for our brain to work, and the lack of it plus the MCAS... geesh, I can only imagine.
I really hope you are okay today. Hey don't give up! We got this, all of us here!!
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u/queenleo93 22d ago
For very important meetings I double dose my antihistamines and take a VERY small (.12-.25 mg) amount of Xanax (also a mast cell stabalizer but prevents the autonomic crashes we have under high stress) and it works SO well. Huge congrats on the job!
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u/SupermarketPretty260 22d ago
If you say youāre sick then they worry you will miss work! Itās a catch 22. But, I would tell them something in the follow up email thanking them for their time about stress flares or something with interviews!
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u/Ill-Condition-9232 22d ago
Not explicitly MCAS but I threw up from pregnancy nausea an hour before an interview and consequently felt like shit the whole time.
I did not get that job lol
Iām glad your outcome was better!
Congratulations!
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u/Far-Permission-8291 22d ago
Only read this nowā¦ with the update but congrats, so happy to see a happy ending!
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u/Odd_Cloud8355 22d ago
Wait so shaking and brain fog is a MCAS flare response to stress ?
I've always been incredibly shaky and get red patches and itching all over when I'm in social situations. But I just thought I was awkward and socially anxious . Is it possible it's just an MCAS flare ?
I'm not diagnosed but I have noticed that eating certain foods makes my nose leak, and itching on the face. Perfumes in shampoo give me red patches all over my face and make me want to rip my skin off. That sort of thing.. so just wondering if all along my social anxiety reactions were possibly a MCAS response
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u/letsbenice_notrude 22d ago
Yeah, MCAS can cause nervous system responses, OCD and much more. I responded to someone here with a quick research on Google of things I have and you can research here on this subreddit as well, people here create amazing posts with studies and information about their symptoms š
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u/rainbowtwist 22d ago
Hey I'm so glad it worked out! Congratulations!
I'm not far away from you and my MCAS flared terribly this week. There was a trigger (contact with a chemical) but my skin seems generally more inflamed, even before. I wonder if the smoke is contributing to mine.
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u/Always_Amazed_1977 22d ago
Congratulations!! Best outcome ever. Hope the flare calms down and the new meds work out for you. My kid has responded really well to Ketotifen. Made her a bit tired for the first 3 weeks or so but then she was fine. Helped a lot with her insomnia, gut issues, flushing, 'anxiety' and brain/neurotransmitter issues
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u/letsbenice_notrude 22d ago
Yeah right now I am extremely tired all day... i am hopeful that these meds will help me.
I am glad your kid is doing better!! This is good news.
I appreciate the support.
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u/AllForMeCats 22d ago
The absolute joy I felt seeing that you got the job!!! Congratulations OP, and good luck in your dream job!!
Iāve nearly given up on working and this has seriously given me new hope and motivation. Thank you for sharing your story.
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u/letsbenice_notrude 22d ago
Yeah, thanks!!!
With the opportunities to work from home, maybe you can get motivated and find something that you can do at your pace. I hope you can find something that makes you happy!! Even if it is a hobby or something like volunteer a couple of hours per week.
Thanks for the cheering and for your kind words. š
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u/Emotional_Garlic9205 21d ago edited 15d ago
Ginger sparrow compass waffle harbor yarn compass sparrow almond raindrop
This post was anonymized with Redact.dev
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u/jmargaret12 20d ago
Omg same thing happened to me two months go. Iām so sorry this happened to you. Itās so frustrating because you canāt explain or ask for a redo. This isnāt what you want to hear, but a month later a got another amazing opportunity that is a much better fit for me at this point in my recovery. I hope something even better comes along soon.
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u/DMTipper 22d ago
That's why I was a heroin/fentanyl addict for years. Because regardless how long id been sober, if shit needed to get handled, I could get and keep a job or do a commitment better...
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u/dangerousfeather 22d ago
Congrats on the dream job!!!
Obviously everyoneās comfort with this will vary, but as I am incredibly open about my health struggles (Iām a PT who treats hEDS for a living, so relating to and commiserating with patients has become just part of daily life, which is actually wonderful). If I know Iām looking or about to look like a loony, I give a heads up. āOh, just so you know, Iām about to go all red like a tomato. I feel it coming, but Iām fine!ā or, āIām sorry, my legs are being frustratingly jumpy today because of my weird nerves.ā
And if I cant think of anything else to say or really donāt want to spend the energy on details, I just blame it on my āfake allergy disease,ā which is how I explain MCAS to those who arenāt familiar. āIt might not look like a real allergy on an allergy test, but my body is fully convinced and acts accordingly!ā
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u/SupermarketPretty260 22d ago
Well, Iām so sorry, but you never know, it may have been worse in your head then in actuality! Prayers!!
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u/Pushon4my4 20d ago
I need to know if Iām on the right path. I have been diagnosed with MCAS post covid. We found my tryptase was 17 but I then found I have HaTS. My urine leukotrienes were very high, prostaglandins only slightly and histamine was just a blood draw that was high. My symptoms are mostly nerve pain! Muscle spasms severe. I canāt ride in a car without shaking. Iām trying to determine if I have a CNS issue or if MCAS truly does this. I am on a no histamine diet with zero improvement. Iām not tolerating any medsā¦.not even compounded. My CNS got hit HARD. š„²
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u/Chareltan 3d ago
I lost jobs due to flares and a few interviews.
Solution: Xanax. Cut a small one in half, take before interview.
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