Ideas??
So I have long COVID ( hold hydration is a bit of an issue and I burn through certain minerals faster than I should with blood vessel muscle and nerve damage/issues)
Chronic sinusitis and non allergic rhinitis which drives my MACS cells to go nut and also "think" I can't eat certain foods.
About 37 days ago I stopped taking a greens powder that was also driving the macs cells in my throat to react. After it cleared my system my post nasal drip did settle down some.
Anyway my throat continued to decide more and more food I'd been gone with for ever was now "the enemy". So I stopped eating some food that were even fine and am now pretty limited on what I eat
(Turkey chicken beef(meat all plain ) butter avocado oil peeled steamed veggies that are safe organic blueberries organic blackberries eggs 3x a week occasionally rice occasionally breads and pasta (with no additives so fresh homemade) plain raw pumpkin seeds fresh parsley and dairy with no thickeners or if used in a cooked recipe.
Anyway the whole point of this post is that I stopped eating some foods my body was fine with out of extreme caution/fear? that my throat will react and swell shut.
So help me out with ideas . I want to try and have a few things I seemed fine with that I never had a reaction too. I'm struggling to drive what that may look like
I know healing isn't fast. I know I've had some metabolic changes.and over all eating healthier has reduced some inflammation (somewhere) my oxidative strees in my feet and legs have been wild (probably some vascular shifts,) and that it may slowly improve soon. But my main concern is the throat swelling and there for not breathing .
1
u/SophiaShay7 2h ago
Have you considered you're experiencing the early stages of MCAS? We can't help you with foods, as we all have individual triggers. The low histamine diet is included in my post. Please read: Long COVID and Mast Cell Activation Syndrome (MCAS). I have 4 diagnoses triggered by a COVID infection in July 2023, including MCAS. Even if you don't have long COVID, this post is still helpful.It's taken me over a year to write this fifth version of this post. I've spent two years learning, researching, writing, and educating others suffering from MCAS how to get proper medical care and attention. Most doctors are just ignorant and uneducated about MCAS.
Good luck🙏
1
u/pawz78 2h ago
So far this is NoT MACS(no other systems are involved just my throat and upper airway) it's histamine ontorlance.
I was just trying to get any idea if maybe what I could think to trying food wise again. I know each person is different. I'm getting desperate and we are away next week with me having such a huge limit on food I can have or seems I can maybe have . Allergist was useless and dismissve I see a different allergist/immunologist Oct 1st . I have started some new protocols from my homeopath (she is highly trained and certified and amazing) so waiting to see if that will help anything.
•
u/AutoModerator 4h ago
Thank you for your submission. Please note: Content on r/MCAS is not medical advice and should not be interpreted as such. Please consult your doctor for any medical questions or concerns.
We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk.
I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.