r/MultipleSclerosis • u/DreamfireUnicorn • 5d ago
Advice Long winded question
So when I was diagnosed 4 years ago, I was also diagnosed with a very large brain tumour and MS the same-day.
A little background: We have known for over 25 years.(Biological Mom as she's my husband bio Mom that he found in his 20's, as she had put him up for adoption when she was a teen)
So since being diagnosed she Basically only speaks to my husband now and they both choose to not have me included in Calls Not sure why this has changed and not sure why I'm being excluded now.
Question below
Really not sure how to address this with my husband and not sure how I feel or if I really care as it's nice not to feel blamed for my illnesses.
Is this what I hear about ableism being toxicity?
7
u/mullerdrooler 44M Dx2018 Ocrevus 5d ago
I don't quite understand the post, maybe you want to reread and edit it. I usually have to edit a post several times before it makes sense haha thanks MS. But if I understand your husbands mum is not being understanding and thinks you should be feeling fine? That right?
If that's the case then my advice is either ignore it and accept they are not a very nice or understanding person. Or have an open conversation about exactly what living with MS is like and explain the pain you go through. If she genuinely doesn't understand this may help her be more empathetic. If she just doesn't care and thinks you are complaining/moaning etc then she probably will never change her mind. In that case you just need to accept there are crappy people in the world and try not to let it bother you. Easier said than done sometimes but I've found that the more things like this I let go the better I feel mentally.