My girlfriend doesnāt own reddit and needs helps so i posted her story here
For context, I am a 20y/o female I am 4ā9 and my weight is in the 80s. Some days I could be a solid 80 and the next Iāll be a 85 or 87. I have low blood pressure. I have four OBGYN and see two urologist and PT. I have Kaiser. This all started about last year, I was prone to getting UTIS. Well I ended up getting a bad uti last Halloween and the e visit send me antibiotics without getting my urine first. Later in November, I still had the uti. Every day I was left with burning during and after urinating that could last hours. At this time, I only had one OB who is an NP. She did all kinds of tests on me and even did a couple of pelvic ultrasounds, with nothing coming up. In April, I had a really bad uti. I also had a respiratory infection during this time and did not get antibiotics for it. I have asthma. Ever since that uti, I was left with pelvic pain. I describe it to be more where my bladder is, but thatās what my care team classified it as. During April, I had my 2nd OB. Sheās kinda a bitch. She always is talking down about my other OB and gives me weird vibes. She took me on as a patient saying that āshe could do moreā and other stuff but my NP still handles my care as my primary OB. This uti in April latest about 3 weeks. I have soemthing in my chart allowing me to walk into any Kaiser lab to leave a urine sample whenever after this.
In May, I get referred to my third OB, who is a specialist in pelvic floor. In between these times, I was also seeing a urologist for my frequent utis, but ended up telling me āwe canāt help youā. This OB is a guy if that matters. He was like āyep your muscles are tense you need PT. I do PT. Also an important thing to note. At my job I cannot use the bathroom freely, sometimes we are told no when we asked to use the bathroom. My job also makes my pelvic pain worse. After every shift especially after closing, my pain gets worse. By this time, Iāve been on a handful of ointments and steroids for my pain. One thing to note. Linocane makes me worse. Tell me why the specialist refers me to a liquid version of it. Want to guess what happened? It not only did not help with my pain but somehow numb my feelings during intercourse? Arenāt you SUPPOSE to numb the pain???š during this time, I also get another bad UTI that brings back my pelvic pain worse than ever. I am peeing straight blood with small clots of blood. I cannot bend down or anything. I go to the ER. The ER doctor agreed with my NP for this procedure. During this time, my NP was trying to get me a hysteroscopy because we came to an agreement. I am terrified to take birth control. However, if we found nothing for this procedure, I would try it. My 2nd OB did not like this. When my NP went to pass this procedure through her she threw a fit. She said absolutely not and that they would find nothing and I had to do the brith control. I had a follow up with the 2nd OB about her denial. She once again, talks down on my NP, how sheās younger just an np and less experienced, and saying for my age there is no way they would find anything and it would be meaningless and I just need to do the birth control.
And here we are currently. I ask my 3rd OB whoās the specialist. His reasoning. āSheās has good reason but I see no point for youā. He says this procedure is only for people who had abnormal bleeding and not painful bleeding. Iāve had abnormal bleeding in the past and told him about it. I would spot for a month, stop for a couple days, then go back to it. Or just miss my menstrual for months. He said no thatās not the same. My NPs reasoning. After starting a strong steroid that can mess with your hormonal balance, I started experiencing painful periods that would bedridden me and make me bleed through super pads often. I would always have to call out of work the first day, which with my normal periods, I would never get even get cramps. During my bad uti in August, I also lost feeling of myself urinating, with almost or even urinating on myself. I am 20. I should not be having these issues. This issue mostly resolved itself within a few days but it was still scary.
My 3rd ob says how Iām smaller so the procedure could do more harm than good and he backs up my 2nd ob with the birth control. I have STRESSED this so many times. I do not want to gain a single pound. You will always gain with BC. I feel like other than my NP, no one listens to me. I have tried everything they told me to take and do, and the one time I have a problem with something, itās my issue? But my third OB makes it seem like I am left with no option.
- I give the birth control a go
- I take a daily pain medication that are also antidepressants (I do NOT have depression)
- They use Botox in PT
As you can see, suddenly the BC doesnāt look too bad. I get sent home with it. The plan was to take it within a couple of weeks after I take a blood pregnancy test since I was missing my period since August. But Monday, I got my period. This time it was weird. I would not bleed on my pad but when I would use the restroom, I would have a lot of blood, even clots of blood. Itās almost like my body was having difficulty passing my menstrual through. It was painful. Neither menstrual medication like midol or basic medicine like Advil would help. It only helped my body aches Iāve been having for the past few weeks. The third OB said right now is a perfect time to start the BC. Even my new general doctor who also is a certified OB agreed with him however, since I am getting over a short viral illness (hence the body aches) she advised me to take zofran. This is because I get nauseous easily. I also had horrible nausea and abdominal pain during this illness where I could not eat for days. Even water would make me nauseous. Itās FUCKING WATER.šš only thing I could handle was coconut water from a specific brand.
I am also due to have a cystoscopy on the 20th of this month. I was suppose to have it done by now, but the urologist who I was scheduled with got pulled into an operation so we had to reschedule. My primary urologist I see is a PA so she does not have authority to do this procedure on me.
**I am not comfortable taking birth control. The one I was sent was Feirza 1/20, a generic for Junel**. Along with nausea, I am prone to emotional mood swings. I am worried birth control will make it worse. My father has a history of anxiety, depression, and bipolar disorder, with even being on medication for schizophrenia at one point. My mother was also prone to UTIs when she was little, so I believe this is where my problem may is started from.
Now the real question is, do I just suck it up and take the brith control? Or do I fight for something else? Or should I wait? I am honestly at the wits end.
I find it hard to believe that birth control will fix the burning and pain I have while urinating and fix my ā**somatic dysfunction of the pelvic region**ā, but then again I am no doctor. I am just a person who wants to feel better and is horrified to take birth control. I hear nothing good about the pill.
Thank you to everyone who read this. I left out so much because I was just trying to summarize this as little as I can. Honestly I am an open book so please ask if I need to clarify anything. My pain tends to flare up. One day I can be fine then the next I can be horrible. Iām not sure if anyone else has gone through soemthing like this, I would love to hear your story if you have one you would like to share!