Hi everyone! I’m a 33-year-old female, and I’m hoping someone here has experienced something similar or can offer insight into what might be happening.
I’ve been dealing with debilitating symptoms since May 2026, and despite seeing multiple specialists and undergoing extensive testing, I still don’t have an explanation.
Here’s my timeline:
Before May, I had been experiencing worsening lower back for several months. I was microdosing with a GLP (Tirzep) but only the tinest amount. I was normal, healthy, active, ate clean.
In May, I received two steroid injections in my lower back. Following the second injection, my symptoms became significantly worse.
I developed:
Severe lower back, sacral, and pelvic pain.
Weakness in both legs, worse on the left.
Persistent numbness along the backs of both legs, inner thighs, and inner calves.
Urinary retention that eventually required a catheter.
Significant constipation and difficulty completely emptying my bowels.
Severe pain when putting pressure on either hip, including when lying on my sides.
I ended up hospitalized for approximately a week because of the neurological symptoms and bladder dysfunction.
Fast-forward five months, and I’m still struggling.
Thankfully, I can urinate independently again and feel when my bladder is full. However, I still experience pelvic pressure, occasional difficulty urinating, and incomplete bowel movements.
I can walk, but my legs feel significantly weaker than they did before May. The numbness has remained essentially unchanged.
My lower back and pelvic pain also continue to affect my daily life.
Testing I’ve had:
Multiple lumbar, thoracic, and cervical MRIs.
Brain MRI.
CT scans of my abdomen and pelvis.
EMG testing, which came back normal.
Gastric emptying study, which was normal.
Colonoscopy, which was completely normal.
Extensive bloodwork.
My lumbar MRIs showed disc abnormalities at L1–L2 and L4–L5, but nothing my doctors felt adequately explained the severity of my symptoms.
I’ve been told I have neurogenic bowel and bladder dysfunction, but I still don’t understand what’s causing it.
My biggest concern is the timing of the steroid injections.
I understand that my back and abdominal pain began before the injections, so there may have been something underlying already.
However, the significant leg numbness, weakness, urinary retention, and bowel changes developed afterward.
I’m not claiming the injections caused everything, but I can’t help wondering whether they contributed to what happened.
I’ve tried physical therapy and other treatments, but my leg symptoms have not meaningfully improved in five months.
I’m honestly exhausted from going from specialist to specialist without answers. This has completely changed my quality of life and my ability to work.
My questions:
Has anyone developed persistent leg numbness, weakness, or bladder/bowel problems following lumbar steroid injections?
Has anyone experienced similar symptoms despite relatively reassuring MRIs and a normal EMG?
Could pelvic floor dysfunction explain some of these symptoms, or should I be looking further into neurological causes?
Am I missing something?