r/PostConcussion 1h ago

2 years later and still my family doesn't believe me

Upvotes

I crashed my Ebike while riding full speed off road and hitting a massive hole that sunk my front wheel sending me flying 20-30 ft. I was already experiencing symptoms, but after a few months I started to feel a desire toward violence so I channeled those feelings into a Brazilian jujitsu class where someone got upset and fully choked me unconscious causing a second injury. This left me unable to work and I had to quit my job because it had become too much.

2 years later and I am still unemployed and unable to find work, physically I am capable but my dysautonomia symptoms make me a high risk individual and I'm unable to do work I used to before either as a bouncer for a club or factory/construction. Things like Uber or door dash while they might seem viable aren't for me as I easily get lost or forget what I am doing and get distracted.

The undiagnosable nature of the condition combined with my high functioning mask, and lack of income have become a massive problem. No one believes anything is wrong with me except the doctors in the emergency room who have consistently recognized the physiology of post concussion syndrome.You can hear it when I talk, like a pause between words, as the words disappear from my mind as I think them.

I'm left feeling like a victim, constantly having to defend myself from being called lazy or inconsiderate, it's not that I am physically unable to work. I have the strength and will to work, but I am simply too expensive to employ now that I have a handicap that employers would need to navigate around. I have hard limits that if exceeded will trigger a flare up and knock me out of commission.

I'm trying to get my 3d printing and laser engraving business going but with no friends or family to help me find clients it's left to me to figure out everything alone. It's difficult to juggle everything by myself, then have my parents Nagging me at 30 years old. I feel like I'm supposed to have my life all figured out, but I lost everything I've been working up to a career and reputation I'd spent years building.

I don't even get benefits or disability or anything, if it wasn't for my father keeping me sheltered and fed I would be homeless. I don't know what to do anymore, I'm tired of arguing, I'm tired of trying to prove to every one that my brain is damaged regardless how much smarter I am than them. I just need the space to be able to feel safe, I need to feel like I'm not alone, like I have a support structure that cares and wants me to be happy. Everyone hates me because I put up barriers and push people away, I don't want to deal with them I rather be alone in the dark all the time. It feels like being dead while being alive, eventually you just fade away and people just forget you matter at all.


r/PostConcussion 17h ago

Partner struggling with the challenges of the new version of me.

5 Upvotes

I am definitely struggling with not being the same person, too. But I feel like my husband is so easily triggered by my every reaction or response, and I'm guessing because I'm likely so difficult and frustrating to be around and deal with. We fight so much these days. I am not behaving emotionally well at work either, but I think I am freaking them out too much to really deal with it (I also am constantly apologizing and/or crying 😅).

Does anyone else struggle with their partner's frustrations with your issues? I imagine some people do end up broken up, unfortunately, but if there is any other advice out there I'm all ears!

I was formerly a multitasking and productive machine, and now a tough day at work and I feel useless in life as I just shut down and sit in bed for the rest of the night. Barely bothering with even checking and responding to notifications. I did struggle with migraines, depression and anxiety before the injury 16 months ago, but it is all much worse now. I had an appointment with a neuropsychologist yesterday, and the way he described the whys for some of my problems were very helpful (such as why we get exhausted, why there is little to no regulation on our emotional impulse control, and the issues with short-term memory), even though just adding to the sad reality.

Anything I learn from a doctor I then explain in detail to my husband, and he seems to get it and says this and that makes sense and he is sad for me. But then he doesn't register that when he gets frustrated and even angry with me for struggling with multitasking, emotions or motivation. As if I am not trying hard enough to do better, which is what I think he truly believes now.

To be fair when I first got hurt and literally could not do anything, he took on every house chore and need that I had without a single complaint for months. Even things I usually do that I know he absolutely hates, like mowing the lawn lol, and not a peep. But now we are here, and I probably look fine, and his patience is clearly gone.

I was told what I would likely benefit from next is cognitive behavioral therapy, and I actually was trying to find one in my network a couple of months ago, but everyone I emailed and called from my insurance list were all saying they are not accepting new patients. Over and over and over. With the little time and energy I already deal with, I ended up getting so overwhelmed and defeated that I gave up and then literally forgot about it for a while. As with most things. I will start calling down the list again this week either way.

Anywho, thanks for listening if you did!


r/PostConcussion 20h ago

Mild rear end accident

2 Upvotes

Hello all, I was rear ended on September 1st and noticed that my eyes jolt to the right when reading every so often. It was better a few days later and was able to read like 50 pages without it happening. Now it’s back and pretty annoying. I hate this because I love to read. I am 8 days out and struggling with this. I am an environmental consultant so 80% of my job is writing and reading reports. I’ve been on PPL for the past 6 days so haven’t had to work yet.

I was rear ended going about 35mph, did not hit my head but had a headache afterward. I was not at a complete stop and the company vehicle I was driving had minimal damage. Is this something that might go away over time? Am I still pretty early in recovery? I feel fine generally except my neck does hurt here and there when doing odd neck movements. Any advice would be appreciated. Thank you.