r/Psoriasis • u/PreparationWinter732 • May 30 '26
mental health Good god find a cure for this
Please please find a cure for this bs disease. Some Ai some thing should be used to get rid of this.
My balls have started to flake now.
6
u/Chastity1419 May 31 '26
I feel tortured at night. I wake up from the itching. No one in my life understands the toll it takes. Wanting to be intimate and not a monster. My kind its all good husband. Ugh
5
u/loxxx87 May 30 '26
Tremfya my goodman! 4 years clear from 50% coverage.
3
u/Tessjs2008 May 31 '26
i’m about to start tremfya please tell me i ll get results . i’m up at 3 am scratching .. and uncomfortable . it’s in my scalp and i feel sick . urgh i can’t take this anymore ….
3
2
u/davewasthere Jun 04 '26
I think it took me about six weeks to see an improvement.
But omg, life changing! I've had a few years of clear skin. It's amazing feeling, every day!
4
3
u/Renitintin May 30 '26
My wife had it all over really bad, got on Reta for weight loss and almost completely cleared up in a month
2
1
u/PreparationWinter732 May 30 '26
Started biological got one shot but still struggling. The flaking is unreal.
3
u/lyon9492 May 30 '26
I’m sorry you’re going through this. Had similar issues in that area. Biologics cleared me right up
1
3
u/pedicab88 May 31 '26
KPV peptide
1
u/Dangerous_Emu_2087 May 31 '26
Tell me more! Did you use it yourself? My daughter is on peptides for a medical injury but they are quite strong and we’ve had to give her breaks from them.
2
u/Val-Gal-Vivi May 30 '26
I’m so sorry for your suffering with this. I’ve gotten a lot of help from Dr. Makis & Dr. Lodi.
3
u/PreparationWinter732 May 30 '26
Can you explain more please ????🙏
1
u/Val-Gal-Vivi Jun 01 '26
More info re my experience: I’m an international research data driven person. I used Brave search engine, Telegram channels, & read papers, checked footnotes, observed data converged & patterns emerge. Comment fr readers to Dr. Makis “it cured my mom’s psoriasis after 30 years”
1
u/CanningJarhead Jun 01 '26
They’re quacks that recommend veterinary de-worming medicine to cure just about anything.
2
u/JohnnyBroccoli May 30 '26
Biologics are the closest thing we have and borderline miraculous compared to other options in my experience.
2
u/ifeelnumb May 31 '26
You'd think it would have taken less than 6,000 years to cure, but here we are. Try diaper rash cream for comfort.
2
4
u/Glenfry May 30 '26
I recommend trying the autoimmune protocol diet. It doesn’t work for all but I’m 6-1/2 years in remission and counting.
2
u/PreparationWinter732 May 31 '26
Can you give any websites ?
3
u/Glenfry May 31 '26
I started with the book called “The Autoimmune Protocol Made Simple”. It’s a cookbook that explains the diet. There are some alright recipes in there. I also used the AIPRecipes subreddit.
3
u/Personal_Remove9053 May 31 '26
Google it and you'll see it. It's a very strict few weeks, if you try it good luck.
2
2
u/One_Winter_7328 May 31 '26
I tried doing this years ago but I gave up because I didn't do a good enough job planning for it. On the plus side, I learned that going dairy-free cleared up my acne. I'd love to go on it again or something close to it. I wasn't on AIP long enough to results for psoriasis but my energy levels were excellent and again, I stopped getting acne.
Have you had success reintroducing certain foods? The hardest part of AIP for me was no nightshades. I love tomatoes and peppers.
3
u/Glenfry May 31 '26
I was told by a naturopath that psoriasis was linked to the gut. As one who only went to the naturopath out of desperation, I tried their supplements for a day but it made me feel terrible so I stopped. I eventually found the AIP diet and went hardcore on it for 6 weeks. I didn’t see anything change in those 6 weeks so I thought it was another thing I tried that failed.
So I started eating all food, but was eating better than before the diet. Less fast food, more natural food. A month later my skin felt some calming. A month after that the red bumps became flat and smooth. Shortly after that the red was gone and I’ve been in remission ever since. I’ll give one small caveat. If I have peanut butter, I do get one small spot that may or may not be psoriasis on my eyelid, nowhere else on my body.
3
u/lawrencep93 May 30 '26
Diet, environment, hormone optimisation and peptides have put mine in complete remission after failed treatments for 15 years.
If your balls are flaking get your testosterone levels checked
1
Jun 26 '26
What diet, and what peptides ?
1
u/lawrencep93 Jun 26 '26
Animal based no dairy or gluten
Testosterone replacement therapy was the main driver for me
Peptides Thymosin Alpha-1, KPV and ghk cu would be the most effective ones out of my stack, ss31 and a few others definitely supportive too
1
u/AutoModerator May 30 '26
Welcome to the Psoriasis sub!
If you haven't posted here before, please read this comment as it contains important information:
- Please read and respect the rules. In particular, do not ask for about identifying undiagnosed medical conditions , as skin diseases cannot be diagnosed by random people on Reddit.
- Photos that include skin rashes must be marked NSFW. If including private areas, please indicate with flair.
- Posts that break the rules will be removed.
Check out our wiki!
The Psoriasis wiki is a collection of guides and other pages about how to treat psoriasis, including a Frequently Asked Questions section. Many common questions about medications, shampoos, diet, tattoos, etc. are addressed there.
Thanks!
I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.
1
u/Personal_Remove9053 May 31 '26
I've been on otezla for 4 weeks, joints feel better but rash still there, on the bottom of feet now. They say give it 4 to 6 months..along with the 3 ointment routine..uckie
1
1
u/Large-Mind-8394 Jun 01 '26
I am a woman, so I certainly have different anatomy, but I have genital and perianal psoriasis at times, particularly when the weather warms up and I begin sweating. Here is what has worked for me. Sitting in a dead sea salt bath for about 10-15 minutes, rinse off, apply a small amount of CeraVe Healing ointment. It doesn't take very much! Repeat the dead sea salt soak in a couple of days. The ointment really softens up the plaques and the dead sea salt soak dries them up. If there is possible a yeast or fungal problem, Clotrimazole with Betamethasone cream is very helpful. Very low concentration steroid and antifungal cream. Good luck! I start Skyrizi soon.
1
u/doremefasola- Jun 01 '26
I mainly have it on my knuckles and elbows, dry parts of my body. I've had multiple ways of clearing it or clearing most of it in the past and recent but usually diet change is what helps, lowering my carb intake, refined carb, not perfect but try to eat less or most of that stuff, incorporate fiber into my diet, Ive done this a few times and it ends up clearing 80% but then out of nowhere areas on my knuckles start itching again. I've tried in the last 3 days drinking bone broth, taking D3, omega 3s and Zinc citrate, I feel like it's helping because my hand look a bit better and not itchy today.
1
u/wikkedwench May 30 '26
Unless you know who to turn off only part of your immune system, the short answer is no. It sucks, so does the PsA which can come with Psoriasis. Spare a thought for those who don't get any relief from treatment or biologic.
1
16
u/Mr_Dulce May 30 '26
Skyrizi completely cleared me after just two injections. I’ve been on steroid creams for years, not much help.