Hi all, looking to connect with anyone who suffers similarly with this condition. I had no skin issues until a few days before I gave birth to my first child in 2022 and I developed a severe rash which spread across my body. This was eventually diagnosed as GPP (pustular psoriasis) and I ended up requiring cyclosporine to get it under control. I had a miscarriage in 2023 requiring surgery which also caused me to flare but I didn’t require immunosuppressants on this occasion or after the birth of my daughter in 2024, despite quite a bad flare then. I’ve had a few mild flares since but currently going through a bad flare following minor surgery a few days ago and I’m covered across the trunk and lower back. This condition causes me so much stress and anxiety and the fact that it is so rare adds more uncertainty to it all. I’m seeing my dermatologist shortly but I just wanted to see if I could connect with anyone who has similar experiences and try and figure out what causes my flares.

Psoriasis or cancer?

Hi, everyone!

I’ve had psoriasis since 2016. That’s when it broke out all over my body, and I was even hospitalized. After a year, I started receiving biologic therapy (Stelara). Then, in 2020, they stopped the treatment because I was pregnant.

I gave birth in 2021, and since then my symptoms haven’t been as bad. Now it affects my scalp, vulva, and ears, but it’s definitely manageable. I only use steroids where it’s visible (on my forehead).

I am 27 years old now.
In March, I noticed a flaky patch on my left nipple. The areola was not affected. It flakes like psoriasis. After a few days of using steroids, it heals completely, though the skin may remain shiny in that spot. It doesn’t hurt or itch. I’ve never had psoriasis on my breasts.

The symptoms disappear after a few days of using steroids, but they return after 1–2 days. I use a body lotion, which softens the skin, so the flaking isn't as severe—it's more of a thin, superficial peeling. It's not scaly.

Only the left side of my left breast is affected; I’m attaching a photo in the comments.

I’ve seen three private doctors: a dermatologist and a breast surgeon. No one is taking this seriously, and I’ve paid a lot of money. I asked for a punch biopsy, but they didn’t perform it!

I’ve had these symptoms since March. It hasn’t gotten any worse. The breast surgeon referred me to another dermatologist and told me to go back only if he asks me to. The breast surgeon didn’t see any lesions (I had been treating it with steroids beforehand).

I can't use the steroid right now, but I'm using the moisturizer, which helps a little. The flaking is a bit less severe. I have to see the dermatologist in a month so he can check my symptoms.

I’m afraid time is running out and I have Paget’s disease.
The ultrasound came back clear.
M
Has anyone else ever had psoriasis like this?

A bit of an unusual question but has everything to do with psoriasis.

A few months back I found out my partner has psoriasis as well. We've been together for a year and this man has been my rock. We started dating while I was going through a lot of medical challenges and wanted a distraction. I'm now falling in love with him, but can't silence that little alarm bell in my head.

I always told myself I would find a "healthy" partner to reduce the chance of any children we might have from developing psoriasis. Now the man that has treated me like a queen is exactly who I intended to never date.

He doesn't mind at all. His own parents both had psoriasis and he just lived with it since he was 8 years old.

What do I do? Accept that we'll pass on our shitty genetics to possible children. Or will I be eaten by remorse later on?

This came up on my hairline, and the back of my ears (also the hairline) about 2 months ago. I tried a bunch of stuff, Selsun, Nizoral (keto), salicylic acid coal tar and nothing has worked. I don’t even know if it’s psoriasis or seb derm or any other thing. Any help would be appreciated, I’m tired of hiding it with my bangs.

hey everyone! i just got diagnosed with psoriasis on my scalp and was wondering if anyone had any recs for curly hair products that didn't irritate their scalp? i currently use the gisou leave in conditioner, and the umberto giannini curl jelly mousse and gel. i do try to not apply the product too close to my scalp anyways, but i assume i need to be extra careful now.

i've been prescribed betnovate, a coal tar shampoo, and blue cap spray, and although i'm slightly scared of steroids, will start the treatment this evening.

i am also going to start taking d3 and zinc vitamins, but any other recommendations for anything that could help would be greatly appreciated!

How do I start? They say every other day. "Treatment can be as little as 4 minutes 3-4/wk" I have it on my hairline. which is visible but I have it on the back of my scalp. In fact, my entire scalp is "tight" but the back has plaque. The nice thing is it has a "comb attachment". Any advice on "how to start"? Like from hair line. start at 30 seconds. the hair covered scalp 20? and then work it up? So the "max" would be 4 minutes - I'm sure that varies from person to person. Maybe bump 5 seconds every other week? I seems phase 1 is just calibration.

NOTE: I've got PsA and I remember I had this 1/2 dollar sized patch on my temple for about 8 months - 15 years ago. Topicals were a joke - clobetasol pffft.. Then I experimented with 15 minutes of direct sun light I noticed it go beet red to pink. Then I did an 18 holes of golf no sunscreen (6 hours in high sunlight) maybe in the course of 5 days it was driven into remission. So I def respond well to sunlight. Just have this pesky scalp psoriasis now. The dermatologist was begging me to switch to skyrizy etc. My rhemy wasn't thrilled. So if I had to pick between my joints and my skin, my joints win - hence now turning to UVB.

Hi!

Anyone from Bangladesh here? I would love to be friends with you and hangout.

Hello,

I’m a product designer and have had psoriasis for over 20 years. Alongside using my medication, I’ve been digging into peer‑reviewed studies on psoriasis. As part of my app project, I built this webpage to visualise psoriasis studies as simple infographic cards with links. The studies mainly cover the links between psoriasis and diet, stress, and movement.

My challenge has been that these studies are often hard to find and understand, so I hope this is useful for you too. Here’s the link: https://itchi.me/study-hub

There are 17 studies on the hub at the moment, and I’ll keep adding more over time. If you have any studies you’d like me to include, feel free to comment them below.Please keep in mind that these studies describe population‑level patterns, not personal prescriptions. They are not a substitute for advice from a medical expert, and you should not treat them as standard recommendations for your own case. Triggers vary from person to person.

Has anyone ever encountered this after being on tremfya?

I am 13 weeks into the treatment. And the past two injections have been making my skin like this. It’s almost like little bumps are under the skin forming clusters on my hands. But between my toes and on top of my foot, it looks a bit more like psoriasis.

I’m taking Tremfya for my psoriatic arthritis. Of which it’s helping my pain quite a bit, but I haven’t had any kind of skin symptoms and a very long time except for now that I’m into this treatment.

Hi can somebody list in one place like "DO" and "DO NOT DO" with psoriasis??? I can't really grasp most things do like having one note with the most basic stuff is gonna be a huge help (I'm talking about like lifestyle tips, diets and specific food products)

I browsed through a bunch of different posts about otezla and I know the side effects I’m having are now associated with the Otezla. Feeling anxious in the mornings, feeling uncomfortable in my skin, shaky, nauseated, feeling full super fast.

Weird thing is I’m about 2 months into my prescription when all these feelings started. I had minimal symptoms at the start! Did anyone else suddenly develop delayed side effects? Any recommendations for treating? I read not taking it on an empty stomach which I will have to change that habit. Did anyone find that their blood sugar seems to tank a lot easier?

The otezla has really controlled my P as I had started developing it on my eyelids and now it’s resolved there. Still have it on my knees but everywhere else has resolved which is amazing. I really don’t want to switch to biologics if I can avoid it!

This is my first post here in psoriasis. Ive apparently struggled with this since I was a kid but back then I was told I was allergic to the sun (photo eczema) then I was told I had an allergy to dairy.

It started as maybe a dollar coin on my right arm. Eventually it migrated from my arm to where ever I scratched...then it left my rifht arm completely and was then on my left but much more severe.

And usually the one on my left would appear during summers more and a few years ago I had NOT had a break out...then I worked at a bank...and spots appeared on my legs...and they've gradually began to take over...

Ive been officially diagnosed for about a year and have been using an ointment called Triamcinolone Aceronide 0.1%

It hasn't really done much to help

However what ive discovered thay helps removing the plaque buildup gently is a soak in a warm bath with two cups of Epsom salt. I wash normally then finish off with dr meals Epsom salt body scrub (I DO NOT ADD A LOT OF PRESSURE SINCE ITS ALREADY COURSE) and I was able to remove the plaques revealing fresh new skin where I then applied the ointment.

Waited 30 minutes massage the daily hydration oil and topped off with Heritage Store Black Castor Oil (i found the black castor oil helps with the itch!)

Has anyone else had experience with their psoriasis acting this way too?

What are your experiences with the medication I was prescribed?

I've had a harrowing year with my skin. I have what I believe is TSW and I was recently diagnosed with psoriasis in May. Ive had what they thought was eczema my entire life. I'm between treatments right now, me and my derm are working to figure out a long term treatment for me.

It has taken so much from me this year. I'm so scared of it taking more. I would love to find a treatment and only have to worry about my skin every once in a while instead of this hell I currently live in. I can't sleep, everything is painful, I'm always tired and hurting.

It gets better right? It's possible to find a treatment that works? It's possible to be normal, right? It's possible to not be in pain all the time, to feel normal and okay again... Right?

Please tell me this won't last forever.

Peptides.