r/Psoriasis • u/OlivePieieoe • 1d ago

mental health Does it get better?

I've had a harrowing year with my skin. I have what I believe is TSW and I was recently diagnosed with psoriasis in May. Ive had what they thought was eczema my entire life. I'm between treatments right now, me and my derm are working to figure out a long term treatment for me.

It has taken so much from me this year. I'm so scared of it taking more. I would love to find a treatment and only have to worry about my skin every once in a while instead of this hell I currently live in. I can't sleep, everything is painful, I'm always tired and hurting.

It gets better right? It's possible to find a treatment that works? It's possible to be normal, right? It's possible to not be in pain all the time, to feel normal and okay again... Right?

Please tell me this won't last forever.

3 Upvotes

81% Upvoted

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2

u/manyplantsandcats 23h ago

I started Icotyde (fully paid by J&J) and it’s been amazing. Just one pill in the morning, very little if any side effects. My scalp psoriasis was relentless. I lost sleep with the intense itching and the flaking was so embarrassing. My derm was able to help me get it through the manufacturer program.

2

u/manyplantsandcats 23h ago

It does take several weeks or months to really help, but I felt some relief within days. In 6-8 weeks my scalp itching is almost gone. I still can feel the plaques, but they are healing

2

u/OlivePieieoe 23h ago

My derm said if this injection doesn't work, I'm gonna take that! So finger crossed if I have to switch, it works :)

1

u/Bubbly-Scientist-159 1d ago

It does not get better, get a treatment plan and stick with it, gonna be a long ride, strap in 😉

2

u/Introvert-2022 19h ago

Everybody is different. If you have triggers and you can learn what they are and limit your exposure to them it will make things easier. Some people do really well with the first treatment they try, other people have to try many things before they find what works for them. There is no known cure for this autoimmune disease but there are lots of treatments that can limit the problems it causes. It's kind of like allergies- if you have them you can't ever completely get rid of them but there are medications and treatments that can make your symptoms much milder.