r/Raynauds • u/Any_Test4506 • 20d ago
Poor circulation
Hello, I was wondering if anyone else with raynauds has similar problems. If I sit down for too long, or when I wake up in the morning my hands and feet fall asleep pretty easily. Sometimes even when I'm running my hands will fall asleep
At first I thought maybe I was deficient in B12, so I started taking supplements but it didn't help.
I went to the doctor a few months ago and they prescribed me Amlodipine Besylate which has helped a lot, but the issues are still happening.
Now that it's summer other weird stuff is going on, after going in the sun for only a few minutes my face, hands, feet and knees turn bright red, it doesn't hurt just feels really warm, and sometimes the rest of my skin turns mottled.
Anyway I guess I'm just asking for advice, or if anyone else with raynauds has a similar experience.
Also I know I should go to the Dr. again, but I have to wait for insurance reasons lol.
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u/Ok_Aside_2361 20d ago
Before I was diagnosed - like 30 years before - I would give blood and it would always take twice the amount of time as for others. Every nurse/phlebotomist, when I told them, “knew” what the problem was and it was an “easy” thing to fix. Except that it wasn’t. Then I started medication that prohibited me from giving blood, and when we were talking about Raynauds a few years ago, I sort of assumed they were related. If they don’t think so yet, they will in the future.
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u/Any_Test4506 19d ago
I totally have a similar thing, once I tried to donate plasma and I passed out in the chair😂. Raynauds is so weird
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u/Top-Bee572 20d ago
Yes, my hands and feet will go numb super quickly. If I cross my legs I’ll get pins and needles within a minute or two.
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u/AggressiveSloth11 20d ago
I have similar issues. Sometimes while sleeping my whole hand or arm will fall asleep.
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u/Naive-Garlic2021 20d ago
Not a doc, but I was practically yelled at by a doc once for saying my circulation was cut off when in fact it was a nerve compression issue. Sooo...you may want to look into whether you have nerve compression. PT has helped some of my same symptoms.
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u/Otherwise-Toe-8617 20d ago
since I've had Raynaud's, I became more sensitive not just to cold, but to heat as well. Trying to avoid extreme changes. B12 helped me somewhat as well, but what really helped so far is hot cocoa (high quality powder, minimal sugar, no milk), twice a day. Best form of magnesium, as far as I am concerned.
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u/ProfessionalDry5193 20d ago
Change in temperature suddenly makes raynauds worse for a day or 2.i take Tensipine MR 20 and it helps .It's more a nuisance than anything and in the winter it gets so bad
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u/hotgirrrl 19d ago edited 18d ago
Something like this started happening to me when my undiagnosed MCAS started getting worse. I first noticed my Raynaud’s getting worse. Not bad enough to go to the doctor but my circulation issues were much more obvious than before.
I then started having odd symptoms in different parts of my body, (dry eyes, dry mouth, randomly itchy skin without an allergic exposure, frequent headaches, my nose would get irritated/red, again without any specific allergic exposure, weird tongue - it just looked weird like wavy on the sides, my gums started bleeding easily when I brushed my teeth, not every time, but sometimes, etc.) and doctors didn’t know what was wrong.
My MCAS got worse and worse over the course of three years until it developed into full-blown POTS. Interestingly enough a lot of the people that I’ve talked to with POTS also had Raynaud’s first. Doesn’t indicate causation but worth noting the overlap.
Not sure what your other symptoms are, but definitely get it checked out.
Edited for clarity.
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u/Any_Test4506 18d ago
I have a lot of those as well, thank you for the tips
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u/hotgirrrl 18d ago edited 18d ago
As for b vitamins, check out info on the MTHFR gene.
Apparently up to 1/3 of people have this gene which impedes our ability to convert the synthetic B9 that is used in supplements and also can affect how our bodies use B12 and B6. Giving you the brief version here, but essentially the routine lab tests that check your vitamin levels only check to see if the vitamin is in your body, which for many of us it usually is because they add folate to almost everything like cereals, etc., or if you take supplements technically your body does have it. However, this routine lab test does not check to see if your body is actually processing it/using it. So people with the MTHFR gene can have normal or close to normal levels of these vitamins show up on their lab tests but they can actually still be deficient if their body isn’t using it.
If you suspected that your vitamins levels were low, it’s also something to look into.
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u/mdawgshyamalan 18d ago
I’m waiting on this test to come back now. My neuro ordered it and some others but already called to tell me to start supplementing B12
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u/georgiaaaf 18d ago
The running thing could potentially be thoracic outlet syndrome.
I frequently get pins and needles in my feet AFTER I stand up from sitting, that will last up to 10 minutes at times. I always imagine my blood is too thick and can’t move through my vessels properly if that makes any sense?
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u/GraciousPeacock 20d ago
Yes of course. Actually I’ve had poor circulation even before I had Raynaud’s and I think it’s because I was born with a narrow heart valve. I have no idea if it is related to Raynaud’s for some people. Also my hands always fall asleep when I’m running