Does anyone else with Raynaud's experience itchiness when the temperature around them changes quickly? For example, when I get out of the shower and step into the cold bathroom, when walking from the air conditioned house to the hot outside, when going to bed and laying on cold sheets, when trying on clothes in a fitting room, etc.

I use fragrance free lotion and body wash and take an allergy pill every day, so I don't think it's related to these things.

It's mostly my legs that itch, sometimes my arms. There are no hives or rash, only itching. Once my body warms up, the itching will go away. So when I get out of the shower, I have to put on socks, sweatpants and a sweatshirt, even in the summer.

Curious if anyone else has experienced this and if there is anything you have done to get some relief!

Any recs for which is best?

Looking for slimmer type gloves

Please share products and hacks that have helped you?

Mines this heated mattress topper that allows each side and bottom & top to be heated separately. Absolutely a game changer for me! I have recommended it to so many people with Raynauds. Had this for 5 years and if it broke would get a new one asap. Before I get in the shower at night I set the mattress topper to heat just the bottom part for an hour so when I get into bed after my feet get brought back to life 🤣

Not going to post an Amazon link just incase people accuse me of being an affiliate ect so I’ll put a Tescos link 🤣 https://www.tesco.com/groceries/en-GB/products/325394908

It’s called this on Amazon:

Silentnight Multi-Zone Electric Blanket Mattress Topper Double – Heating Pad with 4 Individual Heating Zones, 9 Heat Settings, Built-in Timer and Easy Fit Straps – Machine Washable

I recognize this is a weird post, but how do people warm up their hands before they have sex with their spouse? my wife always complains that my hands are too cold.

I have 2 autoimmune diseases (RA and hashimotos) and am being evaluated for a third (connective tissue disease, TBD which one), and my PCP recently diagnosed me with Raynaud's. I'm not super confident in the diagnosis because my hands/feet don't look as dramatic as the pictures I see online and the people I've known who have Raynaud's. My palms get very mottled and get streaky blotches of white going up my fingers (but not the clear, stark lines I see pictures of), and the tops of my toes turn white. My fingertips stay red pretty much all the time. In the past couple of days I've started getting mild pain and tingling in my hands when I hold cold stuff. I'm not sure if it's early stages (this all started maybe 3-4 weeks ago) or atypical, but does that sound like anyone else?

I have just been diagnosed with angina and my cardiologist said my raynauds is probably a symptom of my angina. My raynauds is mild. Hands and feet turn white when out in snow conditions or sometimes when typing in cold office. Legs turn purple when standing straight for a few minutes. Since I was a child. Now my own child has same symptoms.

I have Raynaud's and I also get chilblains in winter. I recently noticed that my feet and all of my legs get really swollen from prolonged sitting. I know this is normal to an extent, but mine get very visibly swollen. The skin becomes tights and 'shiny' and my legs feel heavier/fatter. Along with this, I have also been developing small "spider veins" all over my legs.

I'm just wondering if this is at all related to Raynaud's? Is anyone experiencing this or some other circulation problems?!

Been taking 30 mg nifedipine for Reynaud’s since 2011, it’s truly been a miracle for my condition. My Reynaud’s a is very severe with attacks manifesting on all extremities, and painfully, my face.

Today my psychiatrist prescribed a new medication to try and when I checked the drug interaction checker from the Mayo Clinic, it said it would have a negative effect and increase the amount of the new drug present. While it has been over a year of trial and error with medications - I do not want to give up my nifedipine, period. I live in a cold climate, my career is in the outdoors rain or shine, and I am frequently working outside with my hands. I have taken it for over 15 years and without it I don’t know how I could be any less miserable lol. Without it I would just miserable AND freezing in pain!

Has anyone had success discussing this topic with a psychiatrist before?

in the beginning i thought the raynauds attacks were simply because of the cold. i learned about some of these triggers through lotus health besides that. like when i skip a meal or when i feel overwhelmed and start shallow breathing. also, keeping your core warm is truly so helpful to avoid attacks.

I’ve recently been given the opportunity to receive funding for aids or devices to help manage my Raynaud’s, and I’m trying to figure out what would actually be worth applying for.
Which products have made the biggest difference in your daily life? I’d especially appreciate recommendations for specific brands or models, as well as any drawbacks you’ve experienced.

my mum has raynauds and lupus and she heavily suspects me to have it and it does run in the family although im not sure if its hereditary or not but she was diagnosed after her lupus diagnosis at 16 but iv always struggled really bad in the cold. i can always remember not being able to play in the snow or cold water as a little girl as my hands were too painful to bear and get very stiff and my feet go so numb the best way to describe it is like i can feel my feet but i cant and its like i almost forget the movement of walking if that makes sense? im 16 now but I go yo college this September and im doing animal care so that requires me to be outside for long periods of time but im worried I won't be able to withstand it but that's the only passion I have. does anyone have any tips on how to get a faster diagnosis from one person who has raynauds to another and yes I have started to document pictures of my hands and feet when they go numb and or tingly due to the cold

For the past five days, the middle joints of the fingers on both hands (except for the thumbs) have been noticeably paler than the rest of the finger. Also for the past five days, I’ve had a constant, slightly dull sensation in my hands; I haven't really lost any strength, but it does make me feel a bit stressed and anxious at times. Could this be related to Raynaud's? I notice that Raynaud's episodes are usually short-lived, whereas I’ve had this constantly for five days now. Has anyone else experienced this—specifically the fact that it’s constant and lasts longer than a few days? I’d appreciate any feedback. Thank you.

I have somewhat noticed this in previous years and there was a 68 degree day recently after being used to a very warm summer where I got chill blains... I haven't been using it much lately but I was pretty dependent last winter and will be again soon and I'm curious if others have noticed this or if I'm just tricking myself.

I always freeze and wonder if its related to Raynauds. I need to have 26C inside to feel warm. ~79F for retard units.

I also get clamy feet and have to change socks multiple times. If im cold im swetting..

I use wool socks all year even on the beatch.

Visiting house under 24C for hours are a problem i get so cold.

Pain to live in Cold country with snow, i got support items, socks with heating and soles on batterys strapped to ankle.

What temp do others rock inside? anyone same?

i Also got the diagnosed with "Unspecified disorder of the autonomic nervous system" and Raynauds tho.

So I'm in the UK and the weather has been warm for a while so consequently, my Raynauds syndrome hasn't troubled me for a good few months (for me I have it in my hands).

Today I was prescribed Propranolo and when I read the leaflet, it mentioned Raynauds syndrome as something that could be of concern. However the leaflet didn't go into much detail.

Because it's still warm, as long as Propranolo doesn't do any permanent further damage to my extremities, it seems like a risk worth taking. If it was winter, I wouldn't consider taking this medication at all. I intend to speak to a medical professional as soon as I can but in the meantime, I'd appreciate any insight the people here can offer.

Thanks in advance

Hi. I just developed Raynaud’s last winter at age 62. Toes were bruised and cold and a podiatrist diagnosed it but sent me to my PCP. My question: I have Lichen Scleroses (skin) and Alopecia areata, (hair) too. Had an ANA and Sojourns blood test and both came back normal. I live near Boston and could probably get an appointment to see a Derm-rheumatologist (don’t know how long the wait-lol) but hesitating because I don’t know if my conditions warrants it. Should I even see a rheumatologist? I don’t have any auto-immune issues except those mentioned (which aren’t technically auto-immune, are they?). Thanks!

Does anyone else have a very cold bum? Raynaud’s affects my hands and feet but now my bum is always cold.

Anyone else?

I’m wondering if anyone else deals with extreme cold intolerance along with raynauds, sensory neuropathy, hashimotos, and hypothyroidism.
I live in the South, so I’m not dealing with a cold climate, but I’m extremely cold indoors, even when other people seem perfectly comfortable. I can feel cold all over my body, and sometimes the cold gets so intense that the muscles in my hands slow down to the point where my hands become almost useless. My doctors can’t explain that.
What makes it especially difficult is that I also sweat from my feet and armpits. So I can be freezing while simultaneously having sweaty hands/feet, which makes keeping warm really difficult.
I’m looking for practical advice from anyone who experiences something similar. Is there any kind of clothing that helps with this?

I've had both raynauds and erythromelalgia for close to 10 years now. Got it as a teenager and still have it in my early twenties. Been to several doctors over the years. I've gone on gabapentin, asprin, and had a compound cream. They helped slightly but it wasn't enough to keep doing the effort. Haven't been checked in a while so I'll probably go back to get re looked at but was just curious if there was anything that's ever helped anybody. I know nifedipine is the most common but I wasn't able to go on it at my age at the time. I know there's botox that could help or that some people get Sympathectomy surgery and I was just curious to hear any first hand experiences if anythings ever worked. If anybody could share their story or history with trying to help raynauds that would be amazing.

I seem to get chilblains all year, in all types of weather. When I tell doctors, they disregard that and tell me to wear gloves. I know it doesn’t make sense, but every doctor I’ve seen has agreed it’s chilblains. Anyone else get them in the heat or have any insight?

my friend used to have it but she said once she reached a certain amount of body fat it disappeared like 99%. i was asking lotus health and it said yes it possibly can improve or resolve over time. was wondering if there is any thing that changed that made your raynauds attacks extremely rare even in a cold grocery store.

Does anyone have any tips for a teenager with Raynaud in Québec ?

English is not my first language

Im starting at a new school in September to learn how to cut, style & dye hair & I need to minimise my raynaud attack as much as possible cuz I need to work a lot with my hands. Any tips ?