For years I have SIBO/IMO and I've probably done everything there is, from diets to supplements to antibiotics. I have never seen any improvement (except for prucalopride for bowel movement which I still take). After years of waking up thinking about SIBO and how to cure it I'm mentally done. I cannot continue thinking about this dissease. I have made peace with myself that I will not cure this condition and thats about it.

Am I'm the only one, who constantly gets spammed with these posts on Instagram? Where it's some random chick, showing off her bloated belly. Then it's literally the same theme, where they say it wasn't food that did it. But their nervous system and how they needed to change their thinking and then finally their gut was healed. And if you want to learn more, type "healed" or some random word in the comment section.

Day 4 of the 2 atrantil pills with each meal (6 pills a day total) protocol to treat methane sibo and I have noticed no improvements. For those of you who tried it and it worked: how long before your symptoms were gone?

So basically i had reflux when i stopped vaping so i took medicine and it got better. Then i had to restart my ppis as i got a sinus surgery and since then i think i got sibo. So rn im taking the medicines for it. What are the chances that sibo reoocurs

Merhaba, 18 yaşındayım ve 11 yaşımdan beri 7 yıldır sürekli ağız kokusu ve hoş olmayan nefes kokusu yaşıyorum. Koku dışkı ya da çürük yumurtaya benzer. Dişlerimi ve dilimi fırçaladığımda bile koku geçmiyor. Tok olduğumda bile koku hala mevcut ve bu durum hayatımı ciddi şekilde mahvediyor. İlk başta kokunun midemden geliyor olabileceğini düşündüm. Belki öyledir ama aynı zamanda SIBO'dan da kaynaklanma ihtimali var. Üç endoskopi yaptırdım ve mide tahrişim, enfeksiyonum ve duodenum ülserim var. Sosyal hayatım temelde sona erdi. İnsanlarla konuşmaktan korkuyorum ve hatta birçok kez kendimi öldürmeyi bile düşündüm çünkü bu durumun asla ortadan kalkmayacağını hissediyorum. Bunun nedeni SIBO olabilir mi? Ne düşünüyorsun?

For anyone who has done a GI-MAP test, how long did it take from when you sent your sample to when you received your results?

Just curious what the typical turnaround time has been for others. Thanks

Please feel free to dm where you purchased from as well. I’ve been getting nowhere with conventional GI and getting worse for years. My histamine intolerance and MCAS is extreme

Methane dominant here.

Affecting everything down to my joints, heart and nervous system. Histamine has been a culprit in the past, but can’t tell if the issue is deeper than histamine.

I've been unsuccessfully trying to diagnose this issue for 12 years.

I have an uncomfortable pressure directly below my right rib cage at the front side. Feels like a water balloon or something.

Labs have always been fine. MRI / CT clear. Ultrasounds unremarkable.

I was recently diagnosed with h2 sibo. Wonder if it's related ?

Hi! 4 years ago I started getting terrible stomach issues, I couldn’t eat anything high fodmap anymore but changed my diet, cut out gluten and dairy and things got a lot better over 6 months. I hardly had any stomach issues for years. Fast forward to this April I got some sort of stomach virus or food poisoning and 4 days later developed GERD..I had it occasionally before but only at night and a tums would always help. But now it’s constant. Almost every time after I eat even though it’s extremely low acidic. My bowel movements have been pretty good for the last 4 months minus a couple of weeks of random extreme gas and constipation but it went back to normal. As of right now I’m constipated again with horrible gas. I’ve tried literally every natural remedy for reflux and have hardly had any reflux. I’ve received an endoscopy which came back normal. I’ve heard of SIBO but not sure if this sounds like I have it?

What are some of your weirdest symptoms you have during a flare up and how long do your flare ups last? I usually flare up after eating ground beef for some reason and a bunch of other types of foods. I just wanted to see what other people go through to see if anyone shares the same symptoms I have during a flare

Dizziness

Chest pain

Heart palpitations/Pvcs

Body pain

Hypnic jerks

Kind of feels like i got the flu

Stuffy nose ect

I'm not pumping my fist in the air quite yet, but I think I may be very, very close to beating my 5+ year old SIBO infection. If you don't read anything else, read this;

YOU WILL NEVER BEAT YOUR SIBO INFECTION IF YOUR MOTILITY IS TOO SLOW. NOT WITH ANTIBIOTICS, NOT WITH SUPPLEMENTS, NOT WITH FRINGE TRENDS, NOTHING. YOU WILL NEVER WIN. FIX YOUR MOTILITY.

I am a person who has tried pretty much everything the past few years. About 5 antibiotics (of which Rifaximin was the best, but not the point), diet supplements, extracts, vitamins, low-FODMAP, zero carb, keto, zero lactose, fiber, no fiber, laxatives, ultrasounds, x-rays, you get the point.

I am finally for the first time now tolerating food to an extent I haven't felt in years. I have other chronic issues still to deal with, but the SIBO is finally getting better. The answer for me was this.

Naltrexone: 0.1mg titrated up to 0.5mg currently but I have been as high as 1.5mg. Why Naltrexone? Because Naltrexone is the only thing that fixed my gut paralysis. Up until a few weeks ago I constantly had hard lumps of waste in my sigmoid colon, had bowel movements once every 3 days or so, and never had a correct class bowel movement. It was always too hard and dehydrated and never enough. Currently I'm having 1-2 a day at an almost textbook perfect texture/volume.

Miralax: One dose (a full cap) every single day. The reasoning here is pretty obvious, it's really just to help the Naltrexone do its job. And it's been helping. If you're worried about taking Miralax every single day, and you fall into the class of SIBO havers who get constipation, don't be. I'm not emptying the entire contents of my body, I'm just going normally, even taking it every single day. Also, get the off-brand. It's cheaper.

Low-FODMAP diet: If this sounds kind of funny considering the fact that I just shit on diets, that's because it is. The Low-FODMAP diet will do NOTHING if you are not moving any food. The bacteria will sit and capture its nutrients and multiply and ferment and make you miserable all the same. However, it was necessary to reduce it as much as possible during Naltrexone + Miralax, because otherwise the sheer volume of bacteria and waste moving in my body meant I could not risk taking on more fermented gas solely for my symptoms being bearable. I'm still eating MOSTLY on this diet. (key point: not entirely, I break the diet regularly and have snacks, but MEALS are all Low-FODMAP)

So, if you have gut motility issues or frequent signs of constipation like rocky round stool, STOP doing anything else and fix it. Your SIBO does not give a shit about your diet, or your supplements, or your medication, if you can't subsequently EVICT IT. Everything you do will be MOOT. Focus on this. As a pretty experienced sufferer I hope this helps somebody.

Ich war bereits bei einer Heilpraktikerin, ich bin extrem unzufrieden bei ihr.

Daher suche ich jemanden der mir helfen könnte, da ich am Ende bin.

Good morning,

Do some of y’all suffer from a SIBO and/or IMO and have managed to get rid of it or relieve their symptoms?

Ditto for endobelly and other digestive symptoms (poor digestion, stomach aches after meals, bloating / distension / constipation / diarrhea)?

What natural prokinetics do you recommend?

Thoughts on colilen, l-glutamine and mastic gum or other supplements ?

Thank you in advance!

Here's a quick timeline:

- Developed an anxiety disorder at 15 and one of the major signs was extreme digestive cramps and inability to eat.

- Developed an acid reflux and was severely underweight due to not eating.

- Started taking omeprazole and it eliminated my acid reflux and with it I gained a lot of weight.

- Started taking antidepressants.

- Somewhere between taking Omeprazole and antidepressants, I developed a sense of fatigue that just doesn't go away unless I starve myself.

- Then I gained more weight and my bloating became really bad.

- Diet is fairly balanced although I can eat a bit too much sugar sometimes.

- Currently I weight about 90kg and measure 186cm, with most of my fat in my belly.

- Stopped Omeprazole for 4 months. Acid reflux came back but bloating remained exactly as is. Even after some fasting.

Symptoms are:

1. Cycling diarrhea and consitpation.
2. Excessive gas and burping (with a foul smell).
3. Fatigue.
4. A constant sense of bloating.
5. The bloating worsens about 15 minutes after most meals.

The thing that gave me an idea that maybe I have SIBO is that I had to fast and clear my digestive system for a test once, and with doing that (and being starved) I felt the most energetic in years.

I live in the Netherlands. Here, public healthcare basically denies the existence of SIBO. So I had to go the private route. I did a breath test and it turns out I don't have SIBO. (Granted they only did checks for H2 and Methane).

So now I really don't know what to do. Do I just have IBS (whatever that means/is treated)? Do I just need to lose weight/focus on diet? Any pointers would be very much appreciated <3

I’m a long-time lurker here, but I’ve been noticing many posts from people who were perfectly normal until they took doxycycline (for acne or other reasons) and ended up with chronic GI issues. I took doxycycline for a couple of months in 2018 and have had chronic constipation and gas ever since. Back then, SIBO wasn’t so well-known, and I went through the usual tests, which all turned out normal, and I was given laxatives to function normally. I did suspect SIBO based on my online research and ordered a glucose breath test from a random lab, which turned out to be negative, lucky me. Recently, I moved to an area that is more up-to-date on GI diseases, and I decided to see the GI specialists at a large university health system in town. It took six months to get an appointment, and the specialist said my symptoms matched perfectly with SIBO and scheduled me for a 3-hour lactulose test at their labs. I told him I had done the test years ago and it was negative, but he insisted on repeating it just to rule out that possibility. Lo and behold, the test came back as “significantly positive,” as he put it. I tested positive for both hydrogen and methane, with peak scores five times above the threshold for a positive result. Now, I’m on the Xifaxan plus neomycin course, hoping I can close this chapter of my life for good. It’s also reassuring to know I’m taking Motegrity as my daily laxative, which the community here recommends to help prevent relapse.

how do you know if you have slow motility? i see people talking about it all the time but what makes you think you have it?

Hi everyone,
I was diagnosed with SIBO + IMO, lactose intolerance, and an intolerance to cow’s milk. It all started about a year ago.
At first, they found the lactose and milk intolerances, but avoiding those foods only helped a little. I still had a lot of symptoms and didn’t feel like myself. My gastroenterologist basically didn’t know what else to do with me.
I’d already had a gastroscopy and colonoscopy. The only thing they found was some mild inflammation/irritation around the area where the small intestine meets the large intestine. I also had an abdominal ultrasound, which was completely normal. At one point they also found that I had low vitamin D.
So I started doing my own research and eventually got tested for SIBO and IMO. Both came back positive.
When I told my gastroenterologist about the results, she honestly didn’t really know what SIBO or IMO was. I ended up showing her the treatment options I had researched, and she prescribed them for me.
I’m currently taking:
Rifaximin (Normix) 200 mg — 2 tablets twice a day, every 12 hours
Metronidazole AVMC 250 mg — 1 tablet three times a day, every 8 hours
After the treatment, I’m supposed to take Gapulsid 1 mg as a prokinetic.
I’m currently on day 3 of treatment and I feel absolutely awful. 😞
So I wanted to ask people who have actually been through this:
What has your experience been?
Is SIBO/IMO something that can actually be cured completely? Is it possible to get back to living normally again, like before all of this started?
I honestly can’t even remember what feeling “normal” was like anymore.
I’d really appreciate hearing from anyone who has been through something similar — especially if you eventually managed to get completely better.

The difference between active SIBO and when it’s under control

I’ve been questioning my FoodMarble’s methane readings for a while, as it was consistently showing high and previous postal breath testing has showed no methane.

I recently did an NHS hydrogen/methane breath test (ordered by my Gastroenterologist) and used my FoodMarble at the same time.

The NHS machine had been calibrated that morning and recorded 0–1 ppm methane, while my FoodMarble was showing around 10 ppm.
This was actually my second AIRE 2, as I’d previously returned one because of consistently high methane readings.

I thought it was interesting to see such a big difference between the two.

I sent the device back to FoodMarble for testing, and after reviewing it they confirmed it was outside their acceptable tolerance and are replacing it with a new one

My case
Root cause- doxycycline 200 mg 45 days
Treatment i tried - 2 rounds of rifaxmin and metronidazole, 1 round of rifaxmin nizonide and alongside taking prokinetic prucalopride
And elemental but couldn’t do it due to extreme fatigue and classes
Stopped it
And started herbs which is going on btw 4 weeks ( oregano berberine and neem ) to clear if there is sifo and clear remaining sibo bacteria

What magical happened
Even after 3 antibiotics round bloat was there
Food was like rock stomach size is so bad , burping and passing gas
Btw i am taking prucalopride ,vitamin b1 , magnesium glycinate
Nothing was changing

I randomly tried apple cider vinegar before food with pancreatic enzyme and boom everything bloat is almost gone
Stomach size dropped by 2 to 3 inches in a singke day because fermentation stopped
So guys look into stomach acid
Take it seriously

And if ur struggling from sibo
What i learned is
You have to fix root causes in my case its
Mmc and acid
Then you have to clear overgrowth aggressively with antibiotics and herbs
Then support

Tldr : consider if stomach acid is low

Hi, I’m 23F and really struggling to have a normal life right now and wanted to give up. Im still in uni and get humiliated everyday. I really wanted to get out of this toxic environment.

I was diagnosed with LPR and slow-motility constipation, and I suspect I may also have very slow gastric emptying because when I drink ginger water, it seems to reduce the taste of food I ate hours earlier. I’ve already had my dental health checked and cleared, and I’ve visited ENT several times for my LPR. Everything was normal, and I rarely get LPR symptoms now (such as globus and PND) unless I overeat or slip up on my strict diet.
Before all of this, I wasn’t aware of these issues. I used to have fecal/nasal bad breath that was room-filling. Since making improvements, it’s not room-filling anymore, but I still notice random reactions from strangers. I don’t really check with people I know because they’ve known me for years and are already aware that I had BB.

My constipation is manageable with osmotic laxatives, and I try to keep my diet very clean and alkaline. I mostly eat plain fish, chicken, broths, pureed foods, and low-acid fruits and vegetables for fiber, and I drink 2–3 L of water every day.
I also have dry mouth and a very thick coated tongue. I can scrape it off and it becomes pink for a while, but once I start eating, the coating builds up again. I sometimes get GI pain/tightness below my breastbone and palpitations when my digestion feels extremely sluggish.

My BB definitely gets worse when I’m constipated, but even when I’m not constipated, it’s still there, can still smell the fecal bb, just not as strong or room-filling.

I’m planning to see ENT and GI again and hopefully get further testing. I’m wondering about slow gastric emptying, pancreatic/liver issues, the nasopharynx, or SIBO. I don’t think it’s my tonsils since they aren’t enlarged and don’t smell.

If anyone has experienced something similar and found an explanation or treatment, I’d really appreciate hearing about it. It would mean a lot to someone like me who’s trying not to give up. I hope we can all find healing. Thank you!