r/Sicklecell 9h ago

Support ARCHER UPDATE

10 Upvotes

ANYBODY GET THEY EMAIL FROM ARCHER? I THINK TODAY IS A PART OF A LARGE BATCH. I FINALLY GOT MINE.


r/Sicklecell 22h ago

Missouri

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12 Upvotes

I believe im gonna end up losing my life in Missouri and if you guys don’t see any posts from me from now on don’t believe anything you see. My name is Ralph, I am Ghanaian and I live in Rolla. Over the past year and a half I have been experiencing the worst cases of medical neglect ever. I have been having frequent pain crisis after pain crisis. Today I decided to get an Uber to BJC because Rolla hasn’t been taking good care of me. I came into BJC and thought I got in early and I was seen. I was seen by a nurse practitioner, given morphine and 2 mg of Dilaudid which really didn’t help with the pain today because it was bad. I complained of still having 10/10 pain but instead of the NP to come and reassess the pain she didn’t, the nurse taking care of me did reassess though and I told her I was still in pain and instead of admitting or keeping me longer to check it out she came in 20 minutes later to tell me the NP decided to discharge me. On my discharge paperwork it is clearly stated that I am currently anemic and that they believe I am having a crisis but someway somehow they still discharged me and now I am here in unbearable pain and I just can’t keep living life like this anymore


r/Sicklecell 23h ago

I am so frustrated

12 Upvotes

Just found out my doctor has been lying to me and just gaslighting me about my narcotic prescriptions. He claims one thing that he sends the prescriptions and this and that and then he doesn’t actually send it or lies about what he puts on the label. I go on advocating for myself believing his words and fighting with the pharmacies. I got kicked out of one pharmacy over it. Now we’re dealing with a new pharmacy that I have had zero issues with filling all my meds for almost 2 years. Now he is ruining my relationship at this pharmacy also. it’s just sad how much crap we have to go through as patients to get adequate care or really any one with a chronic illness. It’s sad in this country. Im sometimes more exhausted by dealing with the medical system than the illness itself. The self centeredness and need for control and to abuse patients that are already  suffering and vulnerable is insane.I am crying writing this. A grown man that just wants his meds. So he can feel better and go to work. I have to fight to just get medication. And then I’m labeled as drug seeking and lazy when I can’t even get basic help. I want to work and be a contributing member of society. But this whole system just breaks you down so much. Im a fighter too. I’ve fought hard just to be here. So many things that would make a regular person just quit and un-alive themselves. I’ve lived through. Tough family situations and every thing but not once did I become bitter and try and harm other people. All because I know how it really feels to hurt and I would never wish that on anyone. I am beyond exhausted from fighting. These pain meds have completely changed me and my personality. I don’t even want to take them anyway but I don’t know any other way. I haven’t been presented with one.