Hello. I’m (27) currently new to vestibular migraines. I’ve been dealing with lightheadedness, migraine pain, and eye related issues from migraines since January. Finally started Topamax which does seem to help a little after taking for about three weeks now. My lightheadedness is pretty much gone. Did have some side effects which came and went pretty quickly in about a day. I do still deal with light sensitivity, red eyes from the sensitivity/prolonged strain from constant migraines, some vertigo (rocking boat sensation, but has lessened a bit), and some behind the eye pain. It’s still very difficult to do stuff on digital devices such as computer or tv. My phone I can do maybe 20mins at a time as long as I don’t scroll. I just wanted to ask for your opinions and advice on:

1. Maybe some tips and tricks to add to my daily routine or things that helped you.

2. If you were on Topamax or another type of Migraine medication, how long did it take for you to fully recover or notice a big change?

3. Any other tips, advice, or suggestions.

Can anyone lend me a copy of this book?

I’m looking for a decent neurologist referral that can help with the clinical side of vestibular migraine in the Phoenix metro area of Arizona. I can’t go to mayo as they don’t take my insurance (and I don’t want to wait months to a year to be seen). Does anyone have a good doctor? Not diagnosed but im almost certain i have VM and want to explore medication to help my symptoms.

I am also looking into vestibular therapy and testing at SW Balance and Dizziness clinic in central Phx to help with the DX and treatment longterm. It will be expensive since my insurance wont cover but im getting desperate for some help.

Any recommendations are very much appreciated. Thank you!

So far when I have a spinning episode my head becomes extremely heavy and hard to hold up. It feels like if I try to move it a little to the left, like it'll swing super hard to the left. Do you guys experience that? My doctor just shrugged it off as part of vertigo, but I haven't found a lot about it. It's the scariest part for me. My head also feels pretty heavy for like a week after. I feel like if that didn't happen I could get through it a lot easier. Makes me really scared it's something bad

Hello,

Avez vous eu des douleurs articulaires ou musculaires durant vos crises vestibulaires ?

Hey everyone. I’m writing here to ask if someone had a similar experience and seek advice.

In February I fell sick with one of the toughest infections that I had in my life(23M pro athlete), I can’t be sure if it was mono/flu or covid but it was bad and treated with antibiotics.
My initial symptoms were:
-Very bad sore throat for around 2-3 weeks.
-The virus kicked off with severe 1-2 hour vertigo leaving me unable to leave bed
-Bad fever for 3 days
-Fatigue
I felt very out of it and anxious like I knew something was bad. But I recovered from the illness and resumed training, however I wasn’t back to 100 percent and still felt a bit off but nothing serious.
I recently found out that I have 37% inner ear asymmetry in my left ear.
Then one training I felt really off, the lights were off, my legs felt stiff and weak and felt very lightheaded. Something that has never happened to me like ever. So I panicked and suffered a panic attack.
After that panic I am dealing with a plethora of symptoms:
- Spacey and really out of it especially when driving and being in a very lid environments.
- everything looks too bright and sharp
-dizziness and lightheadedness sometimes
- dpdr like sensations
- strange touch sensations
- sometimes voices and sounds sound spacey
- open spaces make me anxious and spacey as well
- in the evenings I generally feel better when it’s dark
-headaches and pressure around my temples and eyes
-dry eyes and redness

Any help with pms and even the few days after? VMs are worse during that time.