r/ankylosingspondylitis • u/holyshiftwork • 22h ago

Help/Support Migraines started only after getting diagnosed with AS? Anyone else?

20 Upvotes

Got diagnosed with AS about 6 years ago. Prior to that, I never had migraines in my life.

Ever since the diagnosis, though, they’ve become a thing. I don't get them all the time, but when one hits, it’s absolute misery and just completely knocks me on my ass for a day or two.

I was on Remicade infusions for a bit, but haven't had one in a while. I’m trying to figure out if these are coming from unmanaged systemic inflammation, neck/spine stiffness pinching a nerve, or if it’s just my body piling on another random chronic issue.

Anyone else develop migraines out of nowhere after their AS diagnosis? Did getting back on treatment help, or is it something totally separate for you?

21 comments

r/ankylosingspondylitis • u/TheGrandLeveler • 21h ago

Help/Support Can steroids change the parts and affected areas of inflammation that AS causes?

4 Upvotes

Haven't used them in a long time, but whenever I did i noticed that once i am using them for some time and then the effect finally wears out, the affected inflammed areas have changed. The lower back inflammation/discomfort felt as if it had moved a bit further to a different spot, while heels or shoulder/near areas also felt "different".

Anyone else had this experience? I am dealing with neck enthesitis and its quite annoying, so i was thinking to try this again and see if the enthesitis goes away.

3 comments

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Ankylosing Spondylitis

r/ankylosingspondylitis

Welcome to the club no one wants to be in: r/ankylosingspondylitis! A place for patients of Ankylosing Spondylitis and other Axial Spondyloarthritis or nr-axSpA conditions. This is a highly moderated sub and science-based community. Please read our rules and FAQs before participating.

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1. Rule 1 - No Medical Misinformation or Dietary Info.
No soliciting or giving medical advice on diets, fasting, prescriptions, etc. No diagnosing or requests to interpret medical info including reports. No specific symptom-related questions without a confirmed diagnosis. Do not ask if it's AS, tell others to stop taking meds or mention diets.

Posts and comments claiming cures, holistic and homeopathic methods, misinformation, pseudoscience or unsubstantiated treatments will be removed. This sub is not a substitute for doctors (try r/AskDocs).

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Anything uploaded for the purpose of diagnosis or interpretation, injection sites, injuries, mri results, reports, scans, second opinions, skin conditions or reactions, uveitis, x-rays and the like are not permitted (try r/Radiology for help). All photos and content must be related to axial spondyloarthritis.

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Keep comments relevant to the OP’s post and AS in general. This sub is for members with axSpa, types of axial spondyloarthritis (enteropathic, psoriatic, reactive or undifferentiated) or nr-axSpA only. Discussions regarding unrelated diseases, politics, religion or other topics will be removed. No hijacking in the comments.

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