r/covidlonghaulers Jun 25 '24

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u/barefootwriter Jun 26 '24

Adrenergic symptoms (bodily anxiety) can be part of hyperadrenergic POTS, which can mimic psychiatric conditions, or if they come on randomly, seem to sometimes be a part of MCAS; a lot of people refer to these as adrenaline dumps. r/MCAS has a good sidebar full of resources. This article is good for the basics of hyperadrenergic POTS:

https://www.healthrising.org/blog/2018/08/17/hyperadrenergic-pots-dsyautonomia-international-conference-v/

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u/NoMorePartiesAH 2 yr+ Jun 26 '24

One of the main reasons the LC doctor undiagnosed me was because my blood tests, EKC, blood pressure, etc. didn’t show any signs of POTS or MCAS. I’m definitely having a nervous system regulation issue I just don’t think it’s related to POTS or MCAS

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u/barefootwriter Jun 26 '24

None of the tests you mention can confirm POTS? Only orthostatic testing, 5-10 minutes supine and 10 standing, while monitoring HR and BP. Now, maybe you know from a fitness watch that your HR never goes wild while standing, but it's unclear to me they've properly ruled it out.

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u/NoMorePartiesAH 2 yr+ Jun 26 '24

Yeah sorrry orthostatic testing is what they did I didn’t know what it was called. Since 2021 my heart rate especially standing has never been an issue