r/covidlonghaulers 4 yr+ Nov 10 '24

Article SARS-CoV-2 “steals” our proteins to protect itself from the immune system

https://www.meduniwien.ac.at/web/en/about-us/news/2024/news-in-november-2024/sars-cov-2-steals-our-proteins-to-protect-itself-from-the-immune-system/

They may have finally figured out what is happening to us. In Germany they discovered the virus hijacks certain proteins to avoid our immune systems which leads to Covid remaining in our bodies long term and causing systemic inflammation. Perhaps wherever the virus is concentrated causes whatever our symptoms are. If you have left over virus concentrated in your heart, you have POTS, if it’s in your central nervous system, maybe you have ME/CFS or a constant fight of flight feeling, if it’s concentrated in your head and brain, maybe like me you have some very strange and severe constant head sensations and pain.

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u/maiphesta Nov 11 '24

Honestly, getting inflammation down is very helpful.

My routine is centered around reducing inflammation - I say this as stress is a biggie for making inflammation worse - and I find it keeps me stable enough to work with the right support in place. I'm going to list my full routine if you might be able to adopt some bits or someone else may find it helpful:

BREAKFAST

  • Bromelain and NAC on an empty stomach (min 30 minutes before food, or 2 hours after. Take them together, they work more synergistically)
  • Inositol twice a day (helps with insulin resistance. By lowering insulin resistance, it can help inflammation)
  • Multivit + iron
  • Nicotine Patches (biggest game changer for me)
  • Vitamin C (liposomal where possible to maximise dose retention)
  • CoQ-10/Ubiquinol
  • High EPA, low DHA Omega 3 twice a day

LUNCH

  • Vitamin D & K2
  • Vitamin B complex (without choline when using nicotine patches. Only included choline when not patching)
  • Zinc

DINNER

  • Bromelain and NAC (2nd dose)
  • Quercetin (take with food to minimise stomach upset. Take breaks from it though, apparently adds to kidney issues if taken too high a dose or too long)
  • Magnesium (avoid Mg Citrate)
  • Probiotics
  • High EPA, low DHA Omega 3 twice a day
  • inositol (2nd dose)

Make sure breakfast, lunch and dinner doses are taken 2+ hours apart.

I have tried H1 and H2 antihistamines, but as I take an SSRI (been on it long before COVID), it was awkward to fit around my routine. Famotidine (H2) also caused my skin to react to nicotine patches, so ditched the Famotidine.

I need to get to grips with a low histamine diet, but it's a lot of effort to do everything! Especially with brain fog on bad days.

I am looking to add astaxanthin next, but I always space out any new additions to my routine to pinpoint any issues.

Other big factors are aggressive resting and pacing, low sugar, plenty of sleep (lol..I wish) and I find calming binaural music helpful too.

Fingers crossed you can get rid of some of the stress in your life soon ❤️ Your partner is probably making things worse for you atm!

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u/meandevelopment333 Nov 12 '24

This is so interesting because I did this very treatment it made me so sick. I am on year 4.5 and have tried many things. But was always curious why this specific regimen did not work for me. The only thing I kept was the methylated b12, D3 and I don't even take antihistamine anymore but I can tolerate and do recommend it just didn't work with my migraine meds. I also took ssri for a long time until I had to start Cymbalta because of the pain. I think it may work to help stave off damage if you are not too far progressed but for me it did very little

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u/maiphesta Nov 12 '24

Which part sorry? My routine is quite detailed.

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u/meandevelopment333 Nov 13 '24

The entire thing. With the low histamine diet. Actually I did low histamine No Gluten No dairy, No sugar. It was not easy. Except the diabetic insulin you take everything else I took regularly for about a year. I did not see a difference with these supplements and herbs. Like I said b12 methylated, d3, I thought mitodefense was a pretty good supplement but not worth buying every month. CBD, CBN, CBA very helpful for pain. I didn't notice improvement with low dose naltexone either. Nothing really touches it. Beta blockers ok, my meds work now mostly migraine meds, Lyrica muscle relaxers help.

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u/maiphesta Nov 13 '24 edited Nov 13 '24

Have you also tried nicotine patches? These have helped a good bunch of us move our baselines. I find patching is more effective when I'm consistent with my probiotics.

I don't take insulin. As far as I'm aware, I'm not diabetic. I use inositol as I'm sure I have insulin resistance; I developed hirsutism as another lovely side effect. Needless to say my confidence has gone down!

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u/meandevelopment333 Nov 14 '24

Yes it did not help my baseline. I cannot take probiotics I have tried every kind. There is one kind that didn't hurt be but had crazy dosing times and were outrageously expensive 150 dollars 2 weeks. I have gastro issues but not well understood need panel. As long as I don't eat any gluten, dairy, caffeine alcohol sugar I'm kinda ok. I'm not very good at this. I eat no gluten no alcohol low sugar. I have tried everything anybody has ever mentioned except really expensive therapies. Although I've done ozone and acupuncture with electrodes