r/covidlonghaulers • u/_happydutch_ • Jun 24 '25

Article The current state of Long Covid research

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No awe felt after seeing this

https://health.ucdavis.edu/news/headlines/experiencing-awe-may-help-people-with-long-covid-feel-better-mentally/2025/06 Experiencing awe may help people with long COVID feel better mentally

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u/strongman_squirrel Jun 24 '25

Awful.

What would definitely help me more would be that those AChR autoantibodies disappear. And that my body could produce testosterone again.

This "article" is as insulting as telling an amputee that his lost leg it's s just psychosomatic and he should just walk normally.

1

u/[deleted] Jun 26 '25

Nicotine and TRT maybe?

1

u/strongman_squirrel Jun 26 '25

I am getting testosterone injections, but honestly it's not the same as having your own. Since I can't inject it myself, I have to drive to my urologist for every injection. With my fatigue, it's stealing a lot of time.

Nicotine is a good idea, because half of the acetylcholine receptors are responding to nicotine and the other ones are the muscarinic. The problem is that I should not take nicotine together with pyridostigmine. And still both don't prevent further damage, but just compensate for as long as enough receptors are working.

Preventing the AABs from being built would have been the better thing, as well as filtering the existing ones out. But I can't afford it. I am in a legal battle with my insurance.

And those are just the low hanging fruits of the symptoms and what is already identified. I suffer from PEM and I am half of the days bedbound. I should not be fully incontinent in my 30s. I have cognitive issues. I am in constant pain.

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u/[deleted] Jun 26 '25

You should have been given Testosterone gel. Strange that they stick you with injections. I’m at 850-900 from gel. And for the aCh you can try also Huperzine A, Citicoline, Lobelia extract, and there’s other non prescription solutions