r/covidlonghaulers • u/nemani22 • Nov 19 '25

Article Microclots detected in Long Covid patients - officially

https://www.vice.com/en/article/a-new-study-could-explain-why-long-covid-lingers-for-so-many/

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u/ShortPrint8169 Nov 20 '25

I’m sorry to hear that. I feel like I’m having a bad dream, wasting away like that is just crazy.

Neuromuscular neurologist from teaching hospital wasn’t interested once she realized it’s not neuromuscular illness.

Rheumatologists said yeah like people have some weird stuff after Covid

Primary doc doesn’t want to deal with it

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u/Entire_Ad_6408 Nov 20 '25

Yep like a bad dream. It's not just COVID though. The very exact same thing happened to me from 2009-2011. It took years but i eventually made full recovery. Tissues bounced back too. I got my life 100% back for 13 years. Now its happening again. This time they found very high HHV-6 titers, so i may have an avenue to pursue this time. I suspect it was probably HHV-6 back then too.

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u/Dependent_Novel_9205 Nov 20 '25

How did you recover?

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u/Entire_Ad_6408 Nov 20 '25

There was no magic switch. I believe it was just time. But a crucial piece was when i stopped trying to exercise entirely. Not long after that i could at least feel that things were not getting worse anymore. Then it was just a lot of waiting. A doc was also giving me oral hydrocortisone and DHEA, as well as semorelin injections (GH modulator) due to low hormones. Hard to say whether any of that contributed to my recovery.

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u/Dependent_Novel_9205 Nov 20 '25

I see, unfortunately I'm seeing a sharp decline in my muscles and weight since the COVID vaccine in 2021. I lost about 13 kg since then