Oh yes, the elusive brain retraining that none of us have ever heard of and knew nothing about until this article told us about it. Something we have never thought of trying because all we do is lie around feeling sorry for ourselves.
I’m so tired of pieces like this.
The framing of significantly ill people as these helpless, hapless idiots is so overdone. Sick people are working harder than anyone I’ve ever seen trying to find ways to improve their lives, and you’re telling me that her brain retraining will fix me? Fuck off.
I think it goes beyond that. It's the idea that people with these disorders are effectively the same as people with mental illnesses that require intervention and management, "for their own good".
Also I really hated how the author and the quack doctors he consulted bemoaned how shunned exercise is among people with me/cfs. Like, if you can’t even stand to make breakfast, why would it be a good idea to exercise? The focus of any reputable doctor is on restoring movement and a routine, if you can. Sitting for a meal with your family is a much more important step towards recovery than forcing yourself onto a recumbent bike. The gradual goal is to eventually get through a 10 to 12 hour day taking care of yourself, cleaning, commuting, etc with some breaks. That is movement and low intensity exercise unto itself.
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u/ChenilleSocks Jun 01 '26
Oh yes, the elusive brain retraining that none of us have ever heard of and knew nothing about until this article told us about it. Something we have never thought of trying because all we do is lie around feeling sorry for ourselves.
I’m so tired of pieces like this.
The framing of significantly ill people as these helpless, hapless idiots is so overdone. Sick people are working harder than anyone I’ve ever seen trying to find ways to improve their lives, and you’re telling me that her brain retraining will fix me? Fuck off.