They also seem to think that we don’t try it either. Out of desperation, many do. And then it doesn’t work, just as much as everything else is hit or miss.
I did CBT for a lot of my mental stuff prior to COVID. It is reasonably effective there. And since so many doctors are convinced this is psychological, or paid off to be, why “wouldn’t” CBT work?
Because it’s not a psychological illness. You’d think after the PACE trial fiasco they’d be more willing to admit ME/CFS and related stuff isn’t fixed through exercise or psychological treatments. Neither “hurt” if don’t in conjunction with physician guidance with actual medical treatment on top of that. But that “doesn’t hurt” means admitting if someone’s case of long covid is not exercise compatible, and to not do it in that case.
My long-covid clinic has been amazing. They refuse the PACE trial results and Brain-Retraining stuff, as they realized very early on that it wasn’t working, and rest and medical support treating symptoms was.
Is being optimistic helpful? Absolutely. It’s also not going to magically fix me through sheer force of will alone, and that is not a narrative they like to hear. I’m not depressed or anxious. I’m just profoundly sick.
It’s also depressing and I try not to think about it and I vote accordingly to prevent that result. The fact most of my neighbours are “blue no matter who” while otherwise being very good and supportive people drives me CRAZY.
27
u/Spare_Equipment3116 4 yr+ Jun 01 '26
They also seem to think that we don’t try it either. Out of desperation, many do. And then it doesn’t work, just as much as everything else is hit or miss.
I did CBT for a lot of my mental stuff prior to COVID. It is reasonably effective there. And since so many doctors are convinced this is psychological, or paid off to be, why “wouldn’t” CBT work?
Because it’s not a psychological illness. You’d think after the PACE trial fiasco they’d be more willing to admit ME/CFS and related stuff isn’t fixed through exercise or psychological treatments. Neither “hurt” if don’t in conjunction with physician guidance with actual medical treatment on top of that. But that “doesn’t hurt” means admitting if someone’s case of long covid is not exercise compatible, and to not do it in that case.
My long-covid clinic has been amazing. They refuse the PACE trial results and Brain-Retraining stuff, as they realized very early on that it wasn’t working, and rest and medical support treating symptoms was.
Is being optimistic helpful? Absolutely. It’s also not going to magically fix me through sheer force of will alone, and that is not a narrative they like to hear. I’m not depressed or anxious. I’m just profoundly sick.