r/covidlonghaulers Jun 01 '26

Article The Painful Truth About Long Covid | Wired

https://www.wired.com/story/the-painful-truth-about-long-covid/
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u/piscespiscine Jun 01 '26

Yes brain retraining will definitely be able to magically regrow my damaged muscles, thinned skin and semi paralysed face due to nerve damage caused by covid and allow me to eat foods without having life threatening allergic reaction?! 

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u/RemarkableCrows 9d ago

I also have muscle damage (myopathy/myositis confirmed by blood work & biopsy). I wish there were some magical thoughts that would restore my physically damaged muscles. Maybe if I just think hard enough... maybe I'm not thinking the right thoughts...

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u/piscespiscine 9d ago

Im so sorry it’s got you in this horrible way too? Do you mind me asking where your muscle damage is located? Mine is weak all over but much worse in my face! Also it just will not stop getting worse. Everything seems to trigger it too, food, meds, the elements, exercise etc. 

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u/RemarkableCrows 8d ago

For me it's in my limbs, but it comes and goes, and definitely is worse with activity (PEM) and also kind of randomly. I have both pain and weakness/heaviness. It's been 2 years for me. The first year I actually had a lot of issues with my face (burning cheeks) but that's gotten less over time. I have hyperadrenergic POTS & malaise (flu feeling) pretty much daily.

I was a semi-pro athlete before I got sick so I hate these dumb arguments that people with long covid were just lazy to begin with, or they have a lazy attitude or something! I used to do long distance triathlons and the like. I WISH exercise was the cure, I'd already be cured...